Kate I too am surprised by the high numbers of children affected. It's one of those things that until it is happening to you, you don't realise how many other...
Hi Kate I think this particular website has more british members. The yahoogroups hipbaby site has more American and Canadian Mum's with children with CDH. I...
Hello Amanda- Freya has had problems with both of her hips as she has shallow sockets on both sides. Her hips were monitored since birth and the left hip had...
My daughter was diagnosed with CDH/DDH at 7 months and had relevant treatment ie traction,spica and broomstick casts. She has done very well and is now nearly...
I have a question about what you wrote. When you say breaking the pelvis are you referring to doing a pelvic osteotomy whereby the doctors will cut through...
Sarah and Amanda, If you go to the www.hip-baby.org website you will find a page that has pictures of different kinds of braces. Maybe one of them will be...
You asked me about breaking of daughters hip. This is how surgeon phrased it to us. As we are still awaiting confirmation of surgery and full consultation we...
Hi there, Yes, the prospect of doing something this invasive to your child is pretty daunting. But I will tell you as one who lived with taking my daughter to...
Hi All We have 4 more days in a cast before Leah gets her brace - Yeah! Yesterday we had our first snowstorm of the season and it got me thinking, am I going...
HI Sara Have you got a date for Emily's cast removal? We have 4 days to go and I can't wait. My back is sore all the time from carrying her, the extra weight...
Hi Kate Emily will have her cast removed on 4th December - so just over 3 weeks to go. I cannot wait!!!! Hopefully, that will be her treatment complete....
Hi Sara Great news that you have a date for Emily's cast to come off, that will be a great Christmas present for her. It's hard when an older child wants to be...
hi all! found this group by chance when i was looking at the steps website, my daughter sophie had one open and one closed reduction when she was 9 mths old...
Hi Tanya Sorry to hear that Sophie's closed reduction didn't work. Just to let you know that our daughter Kiera had a closed reduction in August (aged 19...
Hi All Just wanted to let you know that Leah had her last cast off yesterday - yeah! She is in a brace full time for two months, then she will have an x-ray...
Kate I am so pleased for you. I bet it was fantastic to give Leah a bath (and a good clean!). It must have been quite a nice shock for her to discover she...
Your daughter will adapt, though it will go better if you have lots of things to keep her busy while sitting. My daughter had her osteotomies done when she...
Excellent news - I am so pleased for you and Leah!! Freya has 2 weeks to go in her cast and then goes into a brace. Can you tell me some more about Leah's...
Kate and Leah, I meant to respond to your question about the brace and snowsuits. Claudia went into hers the beginning of Dec. I bought a snowsuit that was a...
Hello, my name's Emma. Just thought I would introduce myself, as I am new to this group. I have two children, Jasmine who is 3 1/2 and Olivia who has just ...
Hi Emma Welcome to the group. I hope it gives you as much support and comfort as it has me..... Sara xx ... From: emj24_j To: clickyhipsclub@yahoogroups.com ...
Hi Emma, Welcome to the group. You`ll find lots of support here. Hope Olivia is getting on o.k with her hip spica. Leanne ... this group. I ... has just ... ...
Hi All, just thought I`d give you an update on Sophies progress. Sophie has been plaster free for 12 weeks now. Since the plaster has been off sophie has...
Im probably a little late:) My daughter is 8months dx with CDH at birth and wore a pavlik harness for 2 1/2month and to the drs suprised her hips went back...
Hi Kate Congratulations. I'm sure Leah will get used to her brace just as quickly as she got used to her cast and find new ways of moving around in it. And...
Hi all My daughter Georgia (now 2years 7 months) has her first 6 month check next week after coming out of her 3rd hip spica earlier this year. There was a bit...
Hi Jen I hope all is well with Georgia's 6 month checkup. Leah is adjusting to the brace really well and loves having baths again. She is already starting...
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