Search the web
Sign In
New User? Sign Up
clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Clicky Hips Club   Message List  
Reply | Forward Message #8 of 2500 |
New member

Hi Lizzie,<br><br>you invited me to the midmifery
club, and I realised that we also had CDH in
common.<br><br>At her 6 week check, our GP picked up that Abby had
a clicky hip.<br><br>I carried her transversly
inside me, and when she came out she was like a little
banana - jaundiced and bent over to one side.<br><br>At
three weeks old I spotted that she had a lump in her
neck (sternocleidomastoid tumor or wry neck) - where
the muscle has become swollen. That righted itself at
about 3 months. The poor little thing could only move
her head to the one side.<br><br>Anyhow, at 5 months
she had the op, and was in a double hip spicca for 8
weeks. Nappies were fun!!! Stuffing cotton wool
everywhere I could to stop things leaking up the
plaster.<br><br>I did read that transverse babies are more likely
to have hip problems, and that the neck thing is
also associated with CDH.<br><br>I think that all is
well now - she's too active to sit really still enough
for the specialist to examine her. X-rays show that
the hip joint is more in place, although the left (I
think!) socket is still smaller than the right one. It's
really hard to see at the moment as the bones have still
a lot of cartilidge which doesn't show on the
x-ray.<br><br>Conch xxx




Tue May 15, 2001 10:07 am

squidgy_1967
Send Email Send Email

Forward
Message #8 of 2500 |
Expand Messages Author Sort by Date

omg, yes, I seem to have one leg slightly shorter than the other! It seems that it's becoming more noticable NOW though. <br>It doesn't appear that I have what...
lizcioci
Offline Send Email
May 10, 2001
10:57 pm

Hi Lizzie,<br><br>you invited me to the midmifery club, and I realised that we also had CDH in common.<br><br>At her 6 week check, our GP picked up that Abby...
squidgy_1967
Offline Send Email
May 15, 2001
10:07 am

Hi there Conch, how old is Abby now? Do you have any photos of her in the dreadful hip spicas? Isn't it a nightmare at the time you are going through all this?...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 15, 2001
10:20 am

Abby's now 28 months. So there's only six months between them. Abby's op was on the 1st June 1999.<br><br>Abby is such a lovely little girl, very girly, loves ...
squidgy_1967
Offline Send Email
May 15, 2001
11:14 am

I've just seen the photos of Sophie. She's a real sweetie.<br><br>Isn't it amazing how quickly they adapt to strange things? If the plaster had been on a...
squidgy_1967
Offline Send Email
May 15, 2001
11:18 am

Abby sounds like a real sweetie! I can't believe you still managed to continue to breastfeed while she was in pots,my hat goes off to you!! Sophie started to...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 15, 2001
12:11 pm

Thanks, Conch, I think so too (but I'm biased).At one stage Sophie had the plaster on that finished just above the knees, which was a lot easier for nappy ...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 15, 2001
12:17 pm

Check out new photos of my daughter Sophie during traction....
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 15, 2001
6:24 pm

Abby had plaster round her waist, and it was a nightmare. I used loads of cotton wool to try to stop things getting on the plaster, but it did get a little...
squidgy_1967
Offline Send Email
May 15, 2001
8:19 pm

YuK! I know what you mean about the johnsons wipes!!!!I can almost smell it now!<br>Luv liz...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 15, 2001
8:55 pm

You asked for my story - well here it is.<br><br>My daughter, Lisa, was born with CDH but it was not discovered until the age of three. The specialist said he ...
gaspode26
Offline Send Email
May 16, 2001
10:44 am

Thanks so much for your story Jules. It's wonderful to hear that Lisa is doing all the normal things a 10 year old does! Sophie,who is now 22 months, is in the...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 16, 2001
3:25 pm

Lisa was OK after the op to remove the pin. She obviously needed pain killers whilst in hospital and her leg was still very badly bruised even a couple of ...
gaspode26
Offline Send Email
May 17, 2001
3:07 pm

I have now uploaded some photos of Lisa in her plaster casts. It has certainly brought back memories while sorting through all the pictures - some good, some...
gaspode26
Offline Send Email
May 17, 2001
3:46 pm

Thanks so much for the reassurance Jules. I'll keep you posted about when Sophie is actually having the op as we haven't got a date yet.Chat again soon.<br>Luv...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 17, 2001
5:52 pm

Your photos are lovely! Lisa is so pretty, does she still have all that gorgeous curly hair? Sophie had a pot like that at one stage,with one leg in plaster...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 17, 2001
6:05 pm

Glad you liked my photos. Yes, Lisa does still have her curly hair although it is not quite so blonde now! <br><br>Look forward to seeing some more photos of...
gaspode26
Offline Send Email
May 20, 2001
6:25 pm

Hi all,<br><br>Just a quick message to let you know that Lisa has her next check-up at the hospital this Thursday 24th May.<br><br>Although I'm sure she will...
gaspode26
Offline Send Email
May 20, 2001
6:37 pm

Hi Jules! I've got my fingers crossed for you and Lisa on Thursday. I know what you mean about worrying when it comes to check up day. Sophie has a check up on...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 20, 2001
8:57 pm

Hi Liz,<br><br>Thanks so much for your good luck wishes for Thursday - it does help to talk about such worries. My friends and family do not really ...
gaspode26
Offline Send Email
May 21, 2001
1:35 pm

Good luck for Thursday... we haven't got a check-up till November (I think!). <br><br>I guess we were also lucky that Abby was either caught early (6 weeks, ...
squidgy_1967
Offline Send Email
May 21, 2001
8:07 pm

Thanks for your message Conch.<br><br>When is the next little one due then?<br><br>When my second was born she had a scan done on her hip and also saw the ...
gaspode26
Offline Send Email
May 22, 2001
1:19 pm

Just to let you know I'm on nights until Friday morning so may not get to check the messages every day (though I'll try to).Good luck for Thursday Jules, and ...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 22, 2001
6:16 pm

Hi all,<br><br>Well, that's our hospital appointment over for another two years.<br><br>The specialist is very, very pleased with Lisa's progress and has ...
gaspode26
Offline Send Email
May 24, 2001
4:12 pm

Hi Jules! I'm so pleased that Lisa is ok, it must be a great relief to you and your family, especially since it looks like she won't need further surgery. I ...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 24, 2001
5:56 pm

That's wonderful news Jules - it must be such a relief.<br><br>My second little pixie is due 1st November, so I'm packing my bags from the end of September (I...
squidgy_1967
Offline Send Email
May 24, 2001
7:18 pm

Hi mousse and welcome to the club. Feel free to let us know a bit about yourself when you feel ready....
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
May 30, 2001
9:12 pm

hi all <br> My son William is three in four weeks time.He was diagnosed at nine weeks and operated on at four months he spent nine weeks in a full length hip ...
mousse_27
Offline Send Email
Jun 1, 2001
8:14 pm

Hi Claire!It's so nice to chat with people going through similar problems , although William's condition sound more complicared than our daughter Sophie's.Do ...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
Jun 1, 2001
8:34 pm

Hi charliemom and welcome to the club. Feel free to let us know a bit about yourself and your story when you feel ready.<br>Liz...
lizzie_jenkinson
lizzie_jenki...
Offline Send Email
Jun 4, 2001
5:57 pm
 First  |  |  Last 
< Prev Topic  |  Next Topic >
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help