Hi everyone, and welcome to all new members
who've joined while I've been away!<br>Firstly, a BIG
thankyou to Jules for keeping up with the post, It's going
to take me a few days to read all the new messages,
so please bear with me!<br>To anyone who doesn't
know, I founded the club after our daughter Sophie was
diagnosed with left CDH at 8 months of age. She is now 2
years and running around like a normal 2 year old. I've
not been around for a couple of weeks because we've
just been on holiday in Florida...and what a greast
time we had, especially Sophie!<br>When I get the
photos developed, I'm going to scan some so you can all
see how Sophie is and how normal she looks now after
all the surgery and hip spicas.<br>I look forward to
reading the post and getting to know all you new members
out there....I can't say that it's great to be home,
after the weather over there was in the early 80's, and
here it's like the arctic to me!!<br>Chat very
soon<br>Liz xx
Hi everyone, and welcome to all new members who've joined while I've been away!<br>Firstly, a BIG thankyou to Jules for keeping up with the post, It's going to...
Hi Helen<br>I didn't know anything about DLA until I read a few messages about it on this site. I received the forms last week and am in the process of filling...
Dear Jules<br><br>Thanks for the warm welcome. I had previously read through some of the messages on here and a lot of it sounds very familiar! It seems a long...
Hi all<br>Am feeling a bit disheartened, we saw the specialist today at Sheffield Childrens Hospital for Georgias first 6 week check up after having her cast...
I sure wish you luck with your 6week check up. Maressa has her 6week check up the 18th of December, so I am feeling a bit scared also. That is great that ...
Sorry I have not posted in a while. Since Maressa has had her cast removed we have been on the move. She is doing very well. Within 2days after the cast ...
Hello everyone<br>Just a few tips to share with you, in case some parents are still struggling with equipment.<br>Anna is 10 months, diagnosed at 8 months. She...
Wow....you have gone through alot of work to find equipment. You know, we did the same thing while Maressa was in her hip spica. You figure the kids are in the...
Hi Leslie and Maressa<br>It is nearly 6 weeks since Georgia had her cast removed and its only a couple of days ago since she started walking by herself. What...
Hi Susan,<br><br>Sorry I havent replied to your message before, I missed seeing it before! <br><br>Jess is now home and is absolutely fine, even tho she is ...
Hi Leslie, don't worry too much, because it took Sophie 4 months to start walking after her cast removal, and yes, it is normal to feel anxious at every check ...
Hi jen, please don't worry too much at this stage, I know that sounds easy for me to say, but Sophie's hip joint was stiff also, and had to have hydrotherapy...
Hi Sal, and welcome to the club....it must be so difficult coping with an older child with CDH, and your experiences and views are extrememly valuable...
Hi all members, well Sophie has finally managed a 'wee-wee' on her potty (well 3 actually), which may sound trivial, but she has complained for a long time...
Hi everyone, and I have finally read all the post since my holiday away, and don't be offended if I haven't answered yours personally..at lot of the ...
Hi all members<br>Has anyone's child been through a "pelvic osteotomy?"<br>If they have, how did your child cope after the surgery and how are they coping ...
Thanks Liz, thats really reassuring to hear, I don't know what we'd do without you...<br>Pleased to hear you all had a great holiday.<br>Wishing you all a...
Hi Susan<br>Georgia had a pelvic osteotomy in August, she was in a cast for 10 weeks.<br>Luckily (comparatively) Georgia was only 17 months old when she had...
Hi Susan!<br><br>I understand your upset feeling because Jenna having to get through another op and cast. We had the same situation last summer, except that ...
Hi Jen<br>Thanks for your reply, Jenna wasn't too bothered the first time around either when she was in cast, even though she was 21/2 yrs old. I'm more ...
Hi all members!<br><br>I haven“t been here for a while, because of problems with the computer. <br>Moa is doing fine with her second cast. She is going back...
Hi Katya<br>Thanks for your reply, there is only two weeks of difference in Jenna and Moa's age. Jenna will be 4years old on the 25th January!!<br>Jenna will ...
Hello again Katya!!<br>I think our messages have been crossing each other ever so slightly!!!! We're both posting about the same time to each other!!<br>I'd...
Hi everyone<br><br>I have just joined and have been reading your emails with great interest. We live in Taupo, New Zealand and have a 6 year old, Lauren, who...
Maressa's hip does not seem to be too stiff. She crawls around and climbs up on furniture with no problem. I do have to say when she walks behind furniture ...
Thank you for the vote of confidence. I know I should not expect so much so soon, however I am so ready to get her back on her feet again and get back to a ...
Hi Susan!<br> <br>I“m glad Jenna has the possibility to join her nursery even when she is in her cast. I think one of the differences between younger ...
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