Hi there everyone,<br>I have just joined this
club as my daughter was diagnosed with CDH when she
was 3 years old. She is now 10 and is fine. I thought
I might be able to offer help and support to anyone
going through this nightmare now.
HI Lizzie, I'm interested in learning more about CDH. <br>For as long as I can remember, my hips would dislocate at the slightest provocation. Even walking...
Hi there everyone,<br>I have just joined this club as my daughter was diagnosed with CDH when she was 3 years old. She is now 10 and is fine. I thought I might...
Hi gaspode and welcome to the club. Sorry I've not been around for a while as I've been working nights. Feel free to tell us your story and how you coped. L00k...
Hi there. Sorry I've been so long replying I've been working nights. I'm sorry to hear about your problem, did this start from birth, and were you ever Xrayed?...
omg, yes, I seem to have one leg slightly shorter than the other! It seems that it's becoming more noticable NOW though. <br>It doesn't appear that I have what...
Hi Lizzie,<br><br>you invited me to the midmifery club, and I realised that we also had CDH in common.<br><br>At her 6 week check, our GP picked up that Abby...
Hi there Conch, how old is Abby now? Do you have any photos of her in the dreadful hip spicas? Isn't it a nightmare at the time you are going through all this?...
Abby's now 28 months. So there's only six months between them. Abby's op was on the 1st June 1999.<br><br>Abby is such a lovely little girl, very girly, loves ...
I've just seen the photos of Sophie. She's a real sweetie.<br><br>Isn't it amazing how quickly they adapt to strange things? If the plaster had been on a...
Abby sounds like a real sweetie! I can't believe you still managed to continue to breastfeed while she was in pots,my hat goes off to you!! Sophie started to...
Thanks, Conch, I think so too (but I'm biased).At one stage Sophie had the plaster on that finished just above the knees, which was a lot easier for nappy ...
Abby had plaster round her waist, and it was a nightmare. I used loads of cotton wool to try to stop things getting on the plaster, but it did get a little...
You asked for my story - well here it is.<br><br>My daughter, Lisa, was born with CDH but it was not discovered until the age of three. The specialist said he ...
Thanks so much for your story Jules. It's wonderful to hear that Lisa is doing all the normal things a 10 year old does! Sophie,who is now 22 months, is in the...
Lisa was OK after the op to remove the pin. She obviously needed pain killers whilst in hospital and her leg was still very badly bruised even a couple of ...
I have now uploaded some photos of Lisa in her plaster casts. It has certainly brought back memories while sorting through all the pictures - some good, some...
Thanks so much for the reassurance Jules. I'll keep you posted about when Sophie is actually having the op as we haven't got a date yet.Chat again soon.<br>Luv...
Your photos are lovely! Lisa is so pretty, does she still have all that gorgeous curly hair? Sophie had a pot like that at one stage,with one leg in plaster...
Glad you liked my photos. Yes, Lisa does still have her curly hair although it is not quite so blonde now! <br><br>Look forward to seeing some more photos of...
Hi all,<br><br>Just a quick message to let you know that Lisa has her next check-up at the hospital this Thursday 24th May.<br><br>Although I'm sure she will...
Hi Jules! I've got my fingers crossed for you and Lisa on Thursday. I know what you mean about worrying when it comes to check up day. Sophie has a check up on...
Hi Liz,<br><br>Thanks so much for your good luck wishes for Thursday - it does help to talk about such worries. My friends and family do not really ...
Good luck for Thursday... we haven't got a check-up till November (I think!). <br><br>I guess we were also lucky that Abby was either caught early (6 weeks, ...
Thanks for your message Conch.<br><br>When is the next little one due then?<br><br>When my second was born she had a scan done on her hip and also saw the ...
Just to let you know I'm on nights until Friday morning so may not get to check the messages every day (though I'll try to).Good luck for Thursday Jules, and ...
Hi all,<br><br>Well, that's our hospital appointment over for another two years.<br><br>The specialist is very, very pleased with Lisa's progress and has ...
Hi Jules! I'm so pleased that Lisa is ok, it must be a great relief to you and your family, especially since it looks like she won't need further surgery. I ...
That's wonderful news Jules - it must be such a relief.<br><br>My second little pixie is due 1st November, so I'm packing my bags from the end of September (I...
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