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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Reply | Forward Message #2490 of 2500 |
Re: [Clicky Hips Club] newbie

Louise,

I will tell you that there is another group dedicated to hip dysplasia that is
much more active with many more members. It is found at yahoogroup under
hipbaby. There is also a website that is part of the yahoogroups found at
www.hip-baby.org. You can get to the e-mail group that way, too. We have a
number of members who have kids your daughter's age.

Did your daughter have any surgery or was she just put into the body cast? Is
she being treated by a ped ortho surgeon? Come visit the group as you'll find
lots of help with older kids, too.

Nancy ( owner and keeper of the www.hip-baby.org website, mom to Claudia,
misdiagnosed at 9 months, diagnosed at 16 months with bilateral DDH and both
hips dislocated, 8 days in traction, adductor tenotomy and closed reductions,
casts for 20 weeks, AVN in the left hip, full-time abduction brace wearing for 1
year, open reduction and bilateral pelvic osteotomies, cast wearing for 8 weeks,
now going for once a year check ups!)

----- Original Message -----
From: ldhswilson
To: clickyhipsclub@yahoogroups.com
Sent: Friday, February 13, 2009 11:39 AM
Subject: [Clicky Hips Club] newbie


hi all I am Louise, single mother to 2 girls my eldest has complained
for ages on and off of leg pains, for years. when 18months old she was
put in pavlec harness for 6 months. Then at 3 she was treated for
fractured hip and in traction for 6 weeks. At 4 she was again treated
for fractured hips and again traction this time both legs.

now she is 5 and in so much pain that doctor has placed her in bodycast
for dislocations
has anyone else similar experience.

perhaps i have the wrong group your kids seem younger.

thanks all confused louise




[Non-text portions of this message have been removed]




Fri Feb 13, 2009 11:13 pm

njssanders
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Message #2490 of 2500 |
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hi all I am Louise, single mother to 2 girls my eldest has complained for ages on and off of leg pains, for years. when 18months old she was put in pavlec...
ldhswilson
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Feb 13, 2009
4:39 pm

Hi Louise I'm Andrea, single mum like you :) I didn't want to read and run as I really feel for you and what your daughter is going through. I'm afraid I can't...
Andrea Macro
andreajean65
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Feb 13, 2009
7:31 pm

Louise, I will tell you that there is another group dedicated to hip dysplasia that is much more active with many more members. It is found at yahoogroup...
Nancy Sanders
njssanders
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Feb 13, 2009
11:04 pm
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