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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Reply | Forward Message #2478 of 2500 |
Re: [Clicky Hips Club] Introduction

Melissa,
Hello. Regarding the walking, because Alivia is 2.5 & very mobile already,
the dr said she'd probably be walking immediately after removing the cast. I
asked if she'd need PT & he said most likely not. I'd imagine it depends on
what stages they are in with walking when the surgery is done. However, this is
new to me too, so I'll have to wait & see.
Brenda

Joy Bush <ladysylpher@...> wrote:
Go ahead and ask whatever you want. If you have myspace or facebook or
cafemom pages i could show you pics of her in the casts and the scars after,
etc.
Well, she was not walking before they surgery/cast (well she was walking holding
onto our fingers but never took independent steps by herself) and her surgery
was May 23, 2007 at 18 months old. It came off on August 23, 2007 at 21 months
old. She was in physical therapy after that (still is but probably don't need
it) and took her first steps on Dec 29th, 2007 at 25 months old so she hasn't
been walking for very long!

But I do not feel like this is the case for other hip displaysia children. We do
not know the real reason why she was so behind/delayed in gross motor
skills........ it had to be from more than the hip displaysia. Also because shes
really tall (and tall children have more to work with) and she has a cautious
nature.

Blessed Be - Joy & Serenity
(I was diagnosed with DDH in both hips at 6 months old, traction for 1 week,
closed reduction, spica cast for 6 months in 1983. Daughter, Serenity, diagnosed
at birth - Nov 2005 with DDH in left hip. 3 Pavlik harnesses, Rhino brace -
never used it. Open reduction with Pelvic & femoral osteotomy at 18 months,
spica cast for 3 months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)

----- Original Message ----
From: ellerylauren <ellerylauren@...>
To: clickyhipsclub@yahoogroups.com
Sent: Wednesday, March 26, 2008 4:04:42 PM
Subject: Re: [Clicky Hips Club] Introduction

Thanks Joy. We debated about going to Kosairs, we have a friend who
had a great experience there (her son has a different problem). But,
since it is 4 hours away & we have Vanderbilt Children's here in
town, we decided we'd go there this time. If we end up having
further surgery we may very well go to Kosairs.

Do you mind if I ask about your little girl's recovery after the cast
came off? How quickly did she walk, etc.?
Thanks
Melissa

--- In clickyhipsclub@ yahoogroups. com, Joy Bush <ladysylpher@ ...>
wrote:
>
> Yes I am really grateful that they got it all done in 1 surgery
(took 5 hours) and only having to go thru the experience with the
spica cast 1 time. And shes all fixed! In 1-2 months she will have
the metal taken out, but it should be a very short surgery and no
cast afterwards and then we will be done forever, yay!
> I would recomend getting it done this way.
>
> We see Dr. Antekeier at Kosair Childrens hospital in lousiville.
They are excellent!
>
> Blessed Be - Joy & Serenity
> (I was diagnosed with DDH in both hips at 6 months old, traction
for 1 week, closed reduction, spica cast for 6 months in 1983.
Daughter, Serenity, diagnosed at birth - Nov 2005 with DDH in left
hip. 3 Pavlik harnesses, Rhino brace - never used it. Open reduction
with Pelvic & femoral osteotomy at 18 months, spica cast for 3
months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)
>
> ----- Original Message ----
> From: ellerylauren <ellerylauren@ ...>
> To: clickyhipsclub@ yahoogroups. com
> Sent: Wednesday, March 26, 2008 10:55:37 AM
> Subject: Re: [Clicky Hips Club] Introduction
>
> Thanks Joy! I am almost hoping they go ahead & do
the osteotomies
> now like they did with your dd. I know that is terrible but it
just
> seems likely she will need them at some point. Are you glad they
did
> it that way for your dd?
>
> Melissa
>
> --- In clickyhipsclub@ yahoogroups. com, Joy Bush
<ladysylpher@ ...>
> wrote:
> >
> > My DD was diagnosed at birth but she didn't have her surgery til
> she was 18 months old.
> > That was May 23rd, 2007. Her left hip was dislocated and she had
an
> open reduction with pelvic and femerol osteotomies and a spica cast
> for 13 weeks/3months after. Shes been wonderful ever since, we are
> almost done with this mess.
> > She will have one last surgery this upcoming May to take the
metal
> plate/pins out of her leg/hip.
> >
> > Welcome to the site!! :)
> >
> > Blessed Be - Joy & Serenity
> > (I was diagnosed with DDH in both hips at 6 months old, traction
> for 1 week, closed reduction, spica cast for 6 months in 1983.
> Daughter, Serenity, diagnosed at birth - Nov 2005 with DDH in left
> hip. 3 Pavlik harnesses, Rhino brace - never used it. Open
reduction
> with Pelvic & femoral osteotomy at 18 months, spica cast for 3
> months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)
> >
> > ----- Original Message ----
> > From: ellerylauren <ellerylauren@ ...>
> > To: clickyhipsclub@ yahoogroups. com
> > Sent: Tuesday, March 25, 2008 3:32:49 PM
> > Subject: [Clicky Hips Club] Introduction
> >
> > Hello, I wanted to introduce myself. My name is
> Melissa and I have
> > three daughters, ages 6, 4 & 18m. My 18m. old Caroline was just
> > diagnosed with ddh. Her left hip is dislocated & they will
explore
> her
> > right hip on Monday, when she is scheduled for a reduction (open
or
> > closed) with possible femoral and pelvic osteotomies.
> >
> > This has all happened so fast, in the past 2 weeks, and I am glad
> to
> > find some support from those who are going through it too.
> >
> > Thanks,
> > Melissa
> >
> >
> >
> >
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> > Be a better friend, newshound, and
> > know-it-all with Yahoo! Mobile. Try it now.
> http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ
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---------------------------------
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Wed Mar 26, 2008 11:26 pm

Show Message Option
adamandbrenda
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Send Email Send Email

Forward 		Message #2478 of 2500 |
Expand Messages Author Sort by Date

Hello! I'd just like to introduce myself - my name is Amanda and my youngest child, Tess who is 13 months, had a closed reduction on 30th September (we've... 		georginarobintess
georginarobi...
Offline Send Email 		Oct 10, 2002
5:45 pm

Hi Amander, My name is Leanne, my daughter, Sophie had a closed reduction August 2001 she spent 12 weeks in a frog plaster. This unfortunatly did not work so...
leanne175uk
Offline 		Oct 11, 2002
10:17 am

Hi Amanda, Sophie is getting on very well. She came out of plaster in August and has recovered very well. Part of this was due to the fact that Sophie spent...
leanne175uk
Offline 		Oct 12, 2002
2:32 pm

Hi I keep trying to reply to your message but my internet connection keeps failing when I spend very long on-line. I'll try again tomorrow. Jen...
jamspamgem
Offline 		Oct 14, 2002
7:21 pm

Hi All I've just discovered this forum from a link on the Steps web page. Our daughter Kiera (21 months) had her CDH picked up two months ago by a wonderful...
samkiera
Offline Send Email 		Oct 15, 2002
1:15 pm

Hi Sam, My daughter Sophie was found to have CDH at 8 months, she had a closed reduction and 12 weeks of plaster. After 3 months the hip dislocated which came...
leanne175uk
Offline 		Oct 16, 2002
6:32 pm

Hi Leanne Thanks for replying! Can you tell me how Sophie was after the open reduction (painwise) and was the hip spica the same as the one she had for the...
samkiera
Offline Send Email 		Oct 16, 2002
8:39 pm

Hi Sam, Sophie didn`t have too much pain after the op. They gave her morphine but that made her quite sick but after something to stop the sickness she...
leanne175uk
Offline 		Oct 17, 2002
11:24 am

Thanks Leanne, it helps to know a little of whats coming up, the spasms sound frightening though, at least we'll be prepared now if it does happen. We...
samkiera
Offline Send Email 		Oct 17, 2002
5:23 pm

I wanted to introduce myself. My name is Holly and I am a mother of 5 children, 3 girls and 2 boys. When I was a baby I had a Congenital Hip and my 5th child...
Holly Robinson
brettholly
Offline Send Email 		Apr 8, 2004
4:28 am

Hi Holly Welcome to the forum. Sorry, it's taken so long for me to respond! I'm sorry to hear that your baby has CDH and that pavlik harness didn't work....
sara_dudley
Offline Send Email 		Apr 14, 2004
8:01 pm

I recognize a couple of names here, my youngest is hannahka was diagnosed at birth with bilateral DDH 8 days driple diaper, pavlik for 4 months, free for 4...
hannahka20022000
hannahka2002...
Offline Send Email 		Jul 28, 2004
4:56 am

Hello, I wanted to introduce myself. My name is Melissa and I have three daughters, ages 6, 4 & 18m. My 18m. old Caroline was just diagnosed with ddh. Her...
ellerylauren
Offline Send Email 		Mar 25, 2008
8:32 pm

Welcome Melissa. The board isn't very active, but Joy is a wonderful resource! (Thank you Joy). We adopted our daughter from China just 4 weeks ago. After...
Brenda Lovins
adamandbrenda
Offline Send Email 		Mar 25, 2008
10:51 pm

Hi Brenda, I've been reading about your sweet Alivia, what a journey you've been on! I admire your courage. We are in Tennessee, just outside Nashville, so...
ellerylauren
Offline Send Email 		Mar 26, 2008
3:52 pm

My DD was diagnosed at birth but she didn't have her surgery til she was 18 months old. That was May 23rd, 2007. Her left hip was dislocated and she had an...
Joy Bush
ladysylpher
Online Now Send Email 		Mar 26, 2008
1:41 am

Thanks Joy! I am almost hoping they go ahead & do the osteotomies now like they did with your dd. I know that is terrible but it just seems likely she will...
ellerylauren
Offline Send Email 		Mar 26, 2008
3:57 pm

Yes I am really grateful that they got it all done in 1 surgery (took 5 hours) and only having to go thru the experience with the spica cast 1 time. And shes...
Joy Bush
ladysylpher
Online Now Send Email 		Mar 26, 2008
7:29 pm

Thanks Joy. We debated about going to Kosairs, we have a friend who had a great experience there (her son has a different problem). But, since it is 4 hours...
ellerylauren
Offline Send Email 		Mar 26, 2008
9:04 pm

Go ahead and ask whatever you want. If you have myspace or facebook or cafemom pages i could show you pics of her in the casts and the scars after, etc. Well,...
Joy Bush
ladysylpher
Online Now Send Email 		Mar 26, 2008
11:22 pm

Melissa, Hello. Regarding the walking, because Alivia is 2.5 & very mobile already, the dr said she'd probably be walking immediately after removing the...
Brenda Lovins
adamandbrenda
Offline Send Email 		Mar 26, 2008
11:26 pm
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