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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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A Little Bit About Me   Message List  
Reply | Forward Message #2445 of 2500 |
Re: A Little Bit About Me

Thanks andreajean for the tip, i will ask the hospital next time she
goes in for her op.Hope all goes well with your daughter and your
son,take care kuana --- In
clickyhipsclub@yahoogroups.com, "andreajean65" <andreajean65@...>
wrote:
>
> Hello there
> I can't really help I'm afraid but wanted to wish you all the best
> with your daughter. My daughter is just 4 years old and started 6
> months of treatment at 1yr, it's just her left hip that's affected.
> I'm sorry I can't give you any advice but I do understand the worry
> of it all, my son has treatment for something completely unrelated
> and will have surgery until he's 18yrs. Be brave, you can cope and
> get through this, you are lucky that you have a supportive family
> that do there do their best to understand. Why not ask at the
> hospital if their is anyone with similar circumstances that you
> could be in touch with? Anyway, Good luck, take care
> Andrea
>
> --- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@>
> wrote:
> >
> > Hello everyone,I'm a new member and I would like to tell you a
> little
> > bit about me. I'm 31 years old and I am a single mum with a
> daughter
> > who is almost 8. Radharani(my angel)has had Bilateral congenital
> > dislocation of her hips (BCDH)since she was born but it was not
> > diagnosed untill she was 2 1/2! over the years she has had about
5
> > operations (some where she was in a spika cast)and when she was
> > actually about 5 we found out that she also has Agenesis of the
> > acetabular(no sockets formed when I was 3 months pregnant). She
> maybe
> > having more ops when she turns 8 or will have to wait until she
> turns 18
> > (hope not!)She never complains and seems to cope better than me
> most of
> > the time, she's just amazing anyway what I wanted to ask was if
> there
> > is anyone who has been diagnosed with the same condition? If so
> i'd
> > love to know how they have been coping and what they feel. I feel
> like
> > I am so alone in my plight most of the time,my family is a great
> > support but they can not entirely know how we[my daughter & I]
> feel. It
> > upsets me to see Radharani being picked on or feeling bad about
> her
> > self because of her hips and i'm don't always know the right
> things to
> > do to help her so any advice would be very welcome and
> appreciated,Look
> > forward to your replies,Many Blessings to you all, Love Kuana....
> >
>





Wed Nov 21, 2007 2:39 am

kaykles
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Message #2445 of 2500 |
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Hello everyone,I'm a new member and I would like to tell you a little bit about me. I'm 31 years old and I am a single mum with a daughter who is almost 8....
kaykles
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Sep 16, 2007
12:32 pm

Hello there I can't really help I'm afraid but wanted to wish you all the best with your daughter. My daughter is just 4 years old and started 6 months of...
andreajean65
Offline Send Email
Nov 16, 2007
8:03 am

Thanks andreajean for the tip, i will ask the hospital next time she goes in for her op.Hope all goes well with your daughter and your son,take care kuana ---...
kaykles
Offline Send Email
Nov 21, 2007
2:39 am
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