Hello there
I can't really help I'm afraid but wanted to wish you all the best
with your daughter. My daughter is just 4 years old and started 6
months of treatment at 1yr, it's just her left hip that's affected.
I'm sorry I can't give you any advice but I do understand the worry
of it all, my son has treatment for something completely unrelated
and will have surgery until he's 18yrs. Be brave, you can cope and
get through this, you are lucky that you have a supportive family
that do there do their best to understand. Why not ask at the
hospital if their is anyone with similar circumstances that you
could be in touch with? Anyway, Good luck, take care
Andrea

--- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@...>
wrote:
>
> Hello everyone,I'm a new member and I would like to tell you a
little
> bit about me. I'm 31 years old and I am a single mum with a
daughter
> who is almost 8. Radharani(my angel)has had Bilateral congenital
> dislocation of her hips (BCDH)since she was born but it was not
> diagnosed untill she was 2 1/2! over the years she has had about 5
> operations (some where she was in a spika cast)and when she was
> actually about 5 we found out that she also has Agenesis of the
> acetabular(no sockets formed when I was 3 months pregnant). She
maybe
> having more ops when she turns 8 or will have to wait until she
turns 18
> (hope not!)She never complains and seems to cope better than me
most of
> the time, she's just amazing anyway what I wanted to ask was if
there
> is anyone who has been diagnosed with the same condition? If so
i'd
> love to know how they have been coping and what they feel. I feel
like
> I am so alone in my plight most of the time,my family is a great
> support but they can not entirely know how we[my daughter & I]
feel. It
> upsets me to see Radharani being picked on or feeling bad about
her
> self because of her hips and i'm don't always know the right
things to
> do to help her so any advice would be very welcome and
appreciated,Look
> forward to your replies,Many Blessings to you all, Love Kuana....
>