Hello everyone,I'm a new member and I would like to tell you a little
bit about me. I'm 31 years old and I am a single mum with a daughter
who is almost 8. Radharani(my angel)has had Bilateral congenital
dislocation of her hips (BCDH)since she was born but it was not
diagnosed untill she was 2 1/2! over the years she has had about 5
operations (some where she was in a spika cast)and when she was
actually about 5 we found out that she also has Agenesis of the
acetabular(no sockets formed when I was 3 months pregnant). She maybe
having more ops when she turns 8 or will have to wait until she turns 18
(hope not!)She never complains and seems to cope better than me most of
the time, she's just amazing anyway what I wanted to ask was if there
is anyone who has been diagnosed with the same condition? If so i'd
love to know how they have been coping and what they feel. I feel like
I am so alone in my plight most of the time,my family is a great
support but they can not entirely know how we[my daughter & I] feel. It
upsets me to see Radharani being picked on or feeling bad about her
self because of her hips and i'm don't always know the right things to
do to help her so any advice would be very welcome and appreciated,Look
forward to your replies,Many Blessings to you all, Love Kuana....