--- In clickyhipsclub@yahoogroups.com, "lady0fpern"
<rebecca.hollands@...> wrote:
>
> Just thought I would introduce myself. I'm Rebecca and the mother of
> a 12 week old son, Aidan.
>
> He was diagnosed with clicky hip when he was 2 days old and wore
> double nappies for 2 weeks. We joked about 'Does my bum look big in
> this?'. As my husband's mother passed away, I didn't realise that she
> had Clicky Hip - so unfortunately Aidan inherited this from his
> paternal grandmother.
>
> We saw the consultant when he was 2 weeks old and he was put into a
> harness which he has been wearing ever since. After 6 weeks of
> continuous wear he is allowed out of it for an hour a day - which
> means bath time. He smiles as it is removed, however I feel the worst
> mother in the world when we have to put him back in it as he is not a
> happy bunny.
>
> At the last appointment, at the hospital, they have been talking
> about an arthrogram etc. The decision will be made at the end of this
> month - and I'm praying that the harness will do its job in the next
> few weeks. So worried about how Aidan and myself will cope if he
> needs surgery and if he has to go into a plaster cast.
>
> Any advice etc will be much appreciated.
>

Hi Rebecca,

My daughter who has just turned 6 was born with a clicky hip which was
discovered when she was 1 day old, she spent 6 weeks in a pavlik
harness which unfortunately did not work for her after that she was
put into a spica which she was in for about 9 months then was put in
to an abduction brace which sadly dislocated her hip again. The local
hospital she attended decided there was no more they could do for her
there and referred her to a top hospital in Edinburgh where she had to
have an open reduction and major reconstructive surgery due to the
damage caused by the abduction brace. after her surgery she spent just
over a year in a spica so altogether she was just over 2 years in
different contraptions before she was sorted out.

She is now doing brilliantly and you would not really know that she
had been through all that other than that she still tires easily and
drags her leg a bit when tired. I too was born with a click hip but
both the consultants she has had have said that it is not a hereditary
condition and just an unfortunate coincidence that she too was born
that way, not convinced by this I have done a lot of research in to my
family history and that of my husband and there has been no known
cases in either family so I think maybe they are right.

Anyway chin up cos as you can see from my story it will all be fine in
the end and it doesn't seem to put the babies up or down as said
before it is all they know but does become more difficult if they are
in spicas when they are older.

Good luck and I hope Aidan will sorted out soon.

Eilanna & Janna