Rebecca

It sounds good that they have found the problem so
early, so there will be a better chance of the
treatment working. My daughter's CDH was missed twice
and not discovered until she was 5 months old. She
had a 'closed reduction' - where the hip is put back
into the socket without surgery, then placed in a
plaster for about 6 weeks. She then had to wear a
plastic splint for six weeks. So no baths or swimming
for 3 months! She also had an arthrogram at 2 years
to check everything was developing properly. The
general anaesthetic isn't very nice to see them go
through but on the whole the treatment doesn't seem to
bother them. Grace is 7 now and her hips are fine -
we just have a check up every two years. I hope
everything goes well with Aidan. The organisation
Steps are a great source of support and their website
is a worth a look.

Good luck
Hazel

--- lady0fpern <rebecca.hollands@...> wrote:

> Just thought I would introduce myself. I'm Rebecca
> and the mother of
> a 12 week old son, Aidan.
>
> He was diagnosed with clicky hip when he was 2 days
> old and wore
> double nappies for 2 weeks. We joked about 'Does my
> bum look big in
> this?'. As my husband's mother passed away, I didn't
> realise that she
> had Clicky Hip - so unfortunately Aidan inherited
> this from his
> paternal grandmother.
>
> We saw the consultant when he was 2 weeks old and he
> was put into a
> harness which he has been wearing ever since. After
> 6 weeks of
> continuous wear he is allowed out of it for an hour
> a day - which
> means bath time. He smiles as it is removed, however
> I feel the worst
> mother in the world when we have to put him back in
> it as he is not a
> happy bunny.
>
> At the last appointment, at the hospital, they have
> been talking
> about an arthrogram etc. The decision will be made
> at the end of this
> month - and I'm praying that the harness will do its
> job in the next
> few weeks. So worried about how Aidan and myself
> will cope if he
> needs surgery and if he has to go into a plaster
> cast.
>
> Any advice etc will be much appreciated.
>
>




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