Hello Diane,
I hardly ever post on this site anymore, but I'm also
in Oxford and my little girl, Naomi had her operation
by the same team at the John Radcliffe site. They're a
fantastic team - one of the world's best in this area.

He *will* manage in plaster. They find the first few
days difficult, but soon adapt. Naomi could roll over
and even drag herself along in her plaster (she had a
pelvic osteotomy on one hip so was in a plaster which
started at her chest and covered one-and-a-half legs
with a broomstick in the middle). At this stage, it
seems heart-wrenching an dyou don't know how you will
get through it. But you do. My advice is to book lots
of little 'trips' to get yourselves through the time
period.

Are you local to Oxford? If you wanted to borrow some
of our stuff you'd be welcome. Naomi was nearly 18mths
when she had her surgery so a bit bigger. We have a
Britax Elite car seat which she could fit into (wrote
to Britax for some strap extenders) and I could fit
her into the Tripp Trapp with some manipulation.

My email is omiyominoo@... if I can help more.
Good luck!
Anna xx
--- diane_hargraves <diane_hargraves@...>
wrote:


---------------------------------
Hi, I'm a new member and thought I'd let you all know
what are
situation is. We have twin boys Alister and Nathan
who will be 10
months old on Saturday. Both have CDH.

Nathan was a breech baby so we were sent for the usual
tests. His
right socket was very shallow so they put him in a
Pavlik Harness.
After 16 weeks they decided this wasn't working and
wanted to do an
arhtorogram to see what was going on. In the meantime
they decided
to check Alister as well and decided although not as
bad his right
hip was a little shallow.

The boys both had arthorgrams done three weeks ago.
Alister does
have cartilage so the have put him into a Hewson brace
and hope this
should sort things out in about 3 months. Nathan
however is going
to need an operation to sort his out, which we have
been told they
will not do until he is one. We have been referred to
the John
Ratcliffe at Oxford for this treatment and are
awaiting an
appointment.

Nathan is free from harnesses/braces at the moment
which is good, he
is however starting to roll over and sit aided and I
am a bit
concerned that this will cause him extreme frustration
once he has
had the operation and is in plaster. Has anyone had
experience of
this?

We are taking each day as it comes and I think we are
hoping Ok. We
had to get a new car seat for Alister when he was put
in his brace
because he was too wide. The pushchair has become a
bit of a
problem as of course we need a twin. At the moment we
have borrowed
a tandem which gives Alister enough room in the front,
but we will
have a problem should they both end up in
braces/plaster at the same
time. Advice greatly appreciated.





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