Hi Marie

Welcome to cllickyhipsclub. Sorry to hear hear you've had a rough
time. As you say, at least you are back home now. Glad to hear Amy
is really happy and coping well. As everyone will say, it's toughest
for parents!

My daughter, Lottie 15 1/2 months, started treatment last October
and spent her first birthday in traction. She was in traction for a
week then went to theatre for examination, arthrogram, abductor
tenotomy, closed reduction and had a full spica fitted. Lottie was
very happy in her spica, she had been crawling and cruising the
furniture before her treatment and after about a week of being in
the spica she was mobile again! She came out of the spica almost 3
weeks ago and is now in an abductor brace 24/7.

We already had a Birtax Club Class Extra car seat and paid £5 for
the extension strap (which was sent out virtually by return!). We
had 2 small towels filling the deepest part of the seat and a
cushion in front. It wasn't ideal but Lottie would not have fitted
in anything, with the pushchair as well, she sat on rather than in
it. We have just taken the cushions out of both the car seat and the
pushchair as she is loosening up and a little more flexible and
without the bulk/thickness of the spica the brace isn't a problem.

We bought a Tripp Trapp chair (which I have to say wasn't cheap but
has been great! Apparently there is a very much cheaper equivalent
but I don't know where it's available from) we use it without the
baby bar at the front and I tie her to it(!) using a cloth travel
hair chair which a friend has loaned us. A bean bag would be useful
for you to have (if you haven't already got one! That is the one
thing that we were told to get!)

You may be able to get equipment second hand, might be worth you
actually advertising what you need.

Good luck with your search and with Amy's continuing treatment.
Take care

Andrea & Lottie
x




--- In clickyhipsclub@yahoogroups.com, "bushwa20032003"
<bushwa20032003@y...> wrote:
>
> Hi there
>
> Our daughter Amy is 16 months old and has CDH, she has just come
back
> from hospital yesterday. It was very hard in hospital, she was
> absolutely brilliant though, our little angel. She was in
traction
> for the week and then had a operation to release her tendon and in
> now in a hip spica for 3 months. Unfortunely for our little
darling,
> she had severe rotavirus on top of this in hospital and had to be
on
> drip, it was horrible, yet she was so strong. We are, at last, so
> pleased to be back home. She is coping very well and is giggling
all
> the time at the moment! We are trying to find/arrange equipment
for
> her and not having much luck with carseats, as Amy is older, her
legs
> are wider in her spica (18 inches) and we are having trouble
finding
> one (the only one we have found is £500+ yes, right, as if we have
> that sort of money!) Any info, advice on everything would be
great,
> i'd love to talk to others going through the same as us, hope you
can
> help and look forward to joining the club!
>
> Marie