Marie,

I'm so sorry you're going through this, too, but you're right - they are sooo
resilient! My Amy is now just turned a year old, and has been out of her spica
for 3 weeks now (in a removable plastic brace thing which we can take off for
swimming, baths, 3 hours a day, etc). But I do keep her in her brace for car
journeys.

I haven't measured her recently, but we have a Britax Elite car seat (try
www.kiddicare.com) which has very low sides so a much wider baby could fit in it
- and it's nowhere near the £500 mark! Might be worth a try? We boosted her
forward a bit using a newborn insert, but I imagine a thin cushion would do just
as well if she needed to be moved out a bit. Britax also do a longer crotch
strap for babies in spicas - look on their website and if you call their
customer service number, they'll send you a special parts order form. The straps
are custom made, and cost £5. We didn't need one in the end, but I've heard
other people say good things about them.

Hope this helps. I won't say all the things that everyone else is no doubt
saying to you (like it's much better to get it sorted now, the time will fly by,
you'll look back in a few years time......) cos after you've heard them a few
times, they don't really mean anything, but you know where we are when you need
a chat. Entertaining a little one in a spica is exhausting, but it really really
does help if you have a contented, laid-back baby. Your Amy sounds just like our
Amy was - giggling all the time - you'll get through this together. You're a
team!

Take care.

Barbara & Amy xxx
----- Original Message -----
From: bushwa20032003
To: clickyhipsclub@yahoogroups.com
Sent: Friday, February 11, 2005 9:14 PM
Subject: [Clicky Hips Club] New member



Hi there

Our daughter Amy is 16 months old and has CDH, she has just come back
from hospital yesterday. It was very hard in hospital, she was
absolutely brilliant though, our little angel. She was in traction
for the week and then had a operation to release her tendon and in
now in a hip spica for 3 months. Unfortunely for our little darling,
she had severe rotavirus on top of this in hospital and had to be on
drip, it was horrible, yet she was so strong. We are, at last, so
pleased to be back home. She is coping very well and is giggling all
the time at the moment! We are trying to find/arrange equipment for
her and not having much luck with carseats, as Amy is older, her legs
are wider in her spica (18 inches) and we are having trouble finding
one (the only one we have found is £500+ yes, right, as if we have
that sort of money!) Any info, advice on everything would be great,
i'd love to talk to others going through the same as us, hope you can
help and look forward to joining the club!

Marie




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