Hi Kirstie,

Kacey is now 15m, she has made good progress in the brace,(since
july last year) even I can see the difference in her x-rays!. She
has another appointment next month and our consultant said last time
that it was going well and if things continue as they have it is
likely that she will be "free". Long term does concern me a bit as I
have read so many stories of kids having op's when older even after
early treatment but I guess you just have to look on the positive
side and when the brace comes off i'm sure we will forget our
worries and celebrate!, live each day as it comes. http://www.steps-
charity.org.uk/home.php has a great chat forum for ddh if you don't
know about it, everyone is so nice. Yes we do use Kacey's time out
for bath etc, she has 30min am to get dressed and play and 30min pm
for bath, play then pyjamas, and as many squishy cuddles as we can
get in!.
I think the only reason Kacey was so active in the Pavlik as she was
before it was fitted. Lucie sounds quite "normal to me, Kacey
rolled over at about 5m but done a lot of "nosediving" before that
and obviously Lucie is still learning as the pavlik had slowed her a
little but she will find her own way and be chasing you before you
know it, it's the parents that suffer, the kids are so resilient!

Take care
Zoe

--- In clickyhipsclub@yahoogroups.com, "kirstieburton"
<kirstie@t...> wrote:
>
> --- In clickyhipsclub@yahoogroups.com, "zoetinkler" <zoe@t...>
wrote:
> > Thanks Zoe,
>
> How old is your daughter now? and do you know what is likely to
> happen long term . I guess you just hope and pray for the best ,
like
> we do and remain positive.
> I too just dress Lucie in mostly dresses and some loose trousers.
> Lucie had a really sore leg when first placed in the harness, the
> ankle strap was done up too tight, then creased and rubbed her
shin
> red raw , She still has the scar now. I check her daily now.
> From your message I see your daughter was crawling and fast.
> Could she roll over in the pavlik or did you need to turn her
over ?
> The consultant at the hospital said to put Lucie on her tummy, but
she
> still just nose dives flat to the floor and doesn't seem to have
the
> strength to push herself up. She has been placed on her back since
> birth, as she was neither rolling or crawling when the harness was
> applies.Lucie was 5 weeks early, maybe this has slowed her down a
bit.
> Has anyone else had this same problem of 'nose diving'?
> The harness your daughter is in sounds much better and much more
> practical. I take it you use the 1 hour for a lovely bath and
stretch.
> I miss bathing Lucie so much.
>
> Good luck to you :)
>
> Kirstie
>
>
>
>
> > Hi Kirsty,
> >
> > My daughter was diagnosed late but was still put in the pavilk
at
> > 8m. Because she was crawling before having it fitted she began
> > crawling again once she was used to it. Our consutltant said
that a
> > bit of movement was fine but she had to stop wearing it as she
was
> > crawling all day long and keeping up with my 3yr old!. She was
then
> > fitted with a brace which covers her back up to her waist & bum
then
> > has straps round the legs to hold them in the abducted
position.
> > Personally I have found this much better, she had a bad rash
with
> > the pavlik and that has cleared up, I mainly put her in dresses
put
> > it is possible to fit loose trousers and when it was fitted she
> > loved it as the bottom of her legs & feet are free, and it is so
> > easy to fit (she is allowed it off 1hr a day). so all round we
were
> > much happier with the brace. If the pavlik is doing the job for
> > Lucie then it may not be a problem to continue with the pavlik
but
> > all consultants have different ways and opinions.
> > Good luck on the 21st
> > Zoe