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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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New member


Hello,
I have a five and a half month daughter currently in the Pavlik harness.
We knew Lucie could have bad hips because my Mum has C.H.D. It still
came as a schock when Lucie was diognosed with the same. Both hips are
affected, but the left more severly. Her sockets were described as
shallow.
Lucie was first placed in a German bead and brace type harness at 3
months old(not sure of the name) , this improved her right, but not
her left hip. Lucie has since been in the Pavlik for the last 3 weeks.
The ultra-sound 1 week ago showed a massive improvement in her right
hip and a considerable improvement in her left.
She still has to wear the harness 24/7. Her next appointment is on the
21st of this month, so I will then know what will happen next.
We attend the Royal Berkshire Hospital and have recieved great care
from all the Staff.
I am also a member of the Australian Hip Group run by Cassidy's Mum,
who has also just posted on this board.
It's good to talk to some English parents as things are done slightly
differently over here.
As Lucie is approaching 6 months old, I realise time may be running
out with the Pavlik. Has anyone's little one's had the Pavlik on over
6 months old ? Thanks Kirstie






Wed Feb 9, 2005 10:08 am

kirstieburton
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Message #2354 of 2500 |
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Hi Joanne, My daughter was diagnosed with CDH at 7 months and had a closed reducton at 8 months. Sophie then spent 3 months in a hip spica. It was a bit...
leanne175uk
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May 27, 2002
9:35 am

Hello, my name is Andrew and my wife (Sarah-Jane) and I discovered yesterday that our 10 month old daughter, Mollie, will require surgery for her Hip...
greenhasland
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Jul 24, 2002
10:16 am

Good afternoon Andrew, Both my wife and I have already gone through a similar sort of procedure as you are right now with our little girl, she was 6 months old...
gazzer_jenkinson
gazzer_jenki...
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Jul 24, 2002
11:32 am

Hi Andrew, Sarah-Jane and Mollie- my daughter Freya is nine months and has just had a closed reduction on her right hip and is in a "frog" style hip spica cast...
sarahandfreya
Offline
Jul 24, 2002
8:36 pm

Hi, I am a new member and would like to introduce myself to everyone. My name is Michelle and my 5 1/2 month old little girl, Kylie, was just diagnosed with...
Michelle
beachlover_m
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Sep 18, 2002
2:07 pm

Hi I am 24 and have CDH on the right. I have had 8 operations and now I am waiting for a total hip replacement. I would like to hear from people who also have...
sally1002003 <sallyeh...
sally1002003
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Jan 3, 2003
5:56 pm

Hi! Amy was born on 31 Jan, and DR has just confirmed that both hips can be dislocated. She's in a harness, which needs to be on 24/7 for at least 3 months. I...
BC
mum2amy2004
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Jun 1, 2004
12:10 pm

Hi Barbara, Welcome to the group. It is good they have found it fairly early, the earlier it is found the better and more chance of success. My daughter was...
leanne175uk
Offline
Jun 1, 2004
12:55 pm

Hello, I have a five and a half month daughter currently in the Pavlik harness. We knew Lucie could have bad hips because my Mum has C.H.D. It still came as a...
kirstieburton
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Feb 9, 2005
10:08 am

Hi Kirsty, My daughter was diagnosed late but was still put in the pavilk at 8m. Because she was crawling before having it fitted she began crawling again...
zoetinkler
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Feb 9, 2005
10:31 am

... How old is your daughter now? and do you know what is likely to happen long term . I guess you just hope and pray for the best , like we do and remain...
kirstieburton
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Feb 9, 2005
11:05 am

Hi Kirstie, Kacey is now 15m, she has made good progress in the brace,(since july last year) even I can see the difference in her x-rays!. She has another...
zoetinkler
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Feb 9, 2005
11:32 am

... That's such good news. I bet you can't wait to be 'free!' . I too have read some not so happy stories about relapses, but also so many positive stories of...
kirstieburton
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Feb 9, 2005
12:48 pm

Hi there Our daughter Amy is 16 months old and has CDH, she has just come back from hospital yesterday. It was very hard in hospital, she was absolutely...
bushwa20032003
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Feb 11, 2005
9:14 pm

HI, Mammas and Pappas did one called sicuro. Its front and rear facing and flat on the bottom so your daughter should fit in it. It cost about £140. They ...
Danielle Cook
danielle5720
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Feb 12, 2005
9:44 am

Hi Marie Welcome to cllickyhipsclub. Sorry to hear hear you've had a rough time. As you say, at least you are back home now. Glad to hear Amy is really happy...
andreajean65
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Feb 12, 2005
10:50 am
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