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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Re: [Clicky Hips Club] Update on Naomi   Message List  
Reply | Forward Message #2270 of 2500 |
Hi Oyn

I'm pleased you have a great consultant as it makes it so much easier on you
expecially if you trust him.

It sounds like Naomi will be having an arthrogram (dye injection) and an open
reduction. My daughter had this operation on both legs aged 7 months. This is
a much less invasive treatment than an osteotomy (which involves pins etc).

All Drs have to let you know the risks of surgery and one of the risks of this
type of surgery is Avascular Necrosis (AVN), but it is a very low risk... Also,
it can correct itself. My daughter had very slight AVN and within 6 months it
was fine!

Try and keep everything as normal for Naomi (and you!) and if that means keeing
her in nursery, then I would. She will adapt well to the cast so there's no
point in upsetting her routine. Just make sure that her daycarers know how to
deal with in the cast i.e. no picking her up under arms, nappy changes etc. On
this same note, I would keep her in the cot, unless she gets too big for it!! I
hope this helps.

Take care and good luck for Monday and 21st Sept.

Sara (Emily's Mum)


----- Original Message -----
From: Naomi Sargent
To: clickyhipsclub@yahoogroups.com
Sent: Thursday, September 02, 2004 4:37 PM
Subject: [Clicky Hips Club] Update on Naomi



Thank you for replies to my introduction, I really appreciate it, yesterday,
we saw the consultant (childrens) orthopaedic here in Ocford. He was absolutely
brilliant. He is the Chairman for STEPS and I got the feeling that he sees loads
and loads of these cases and that we 'gelled'.


Anyway, he wants Naomi to have an operation, and the date has been set for the
21st of this month. It is just her left hip that is dislocated; he said he wants
to do an arthroscopy (is that right? With the dye) and will then try to push
some of the cartiledge back + take it from there. He didn't seem to think that
it would need pins + plates, which was what I had geared myself up for.

He told us about the risks of vascular necrosis (again, not sure if that is
right?) where the cartiledge stops having blood flow to it - there's a 5-10%
chance apparently, so will sit tight. He then wants her in plaster (I think a
spica) for 3 mths.
So that's it, really. We're going in on Monday for pre-op talks - I suppose
it's on stuff like how to manage the plaster?? I'm not looking forward to any of
it, but I know that I need to keep upbeat for Naomi.

Just a few questions- she is 18mths (will be 19 by the time of surgery) and
currently in her cot. I was thinking of moving her to a bed. Should I do this
before the surgery? Does it really matter? Or will she still be okay in the cot
anyway? Also, are there any parents out there who have had their little ones in
plaster and at nursery? Naomi loves going to nursery and I do work. Nursery have
said that it will be fine, but I'm not sure about the logistics of it all.

Many thanks,
Oyn xx


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Thu Sep 2, 2004 4:41 pm

sara_dudley
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Message #2270 of 2500 |
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Hi Oyn I'm pleased you have a great consultant as it makes it so much easier on you expecially if you trust him. It sounds like Naomi will be having an...
Rob & Sara.Dudley
sara_dudley
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Sep 2, 2004
4:42 pm
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