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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Re: [Clicky Hips Club] grandchild   Message List  
Reply | Forward Message #2251 of 2500 |
Re: [Clicky Hips Club] grandchild

Barbara,
I have always been told that if both hips are affected, it is probably more
than just the tight packaging in the womb. One hip the ped orthos can
attribute to the lack of space, but not both. Just my thoughts.

Nancy[keeper of the www.hip-baby.org website, mom to Claudia, misdiagnosed
at 9 months by an adult orthopedic surgeon, diagnosed at 16 months old with
bilaterally dislocated hips and DDH by a pediatric orthopedic surgeon, 8
days traction, adductor tenotomy, closed reduction, AVN in left hip, spica
casts for 20 weeks, full-time abduction brace wearing for 1 year, bilateral
open reductions and pelvic osteotomies, spica casts for 7 weeks, now going
for once a year check-ups!]

----- Original Message -----
From: "BC" <barbara.campbell3@...>
To: <clickyhipsclub@yahoogroups.com>
Sent: Wednesday, July 28, 2004 3:08 PM
Subject: Re: [Clicky Hips Club] grandchild


> Hi!
>
> I'm not entirely sure what the reasons behind Amy having bilateral CDH
are, as she was:
> 1) overdue
> 2) very low amniotic fluid, and I don't think she had much room in
there
> 3) first born
> 4) girl
> 5) she kept kicking me as she was going down the birth canal.
>
> However, when I mentioned that it could be hereditary, my husband's mum
mentioned that his dad had had one leg slightly longer than the other, and
noone ever knew why. It is therefore possible that, while both my husband
and his brother are absolutely fine, it has been passed down from
grandfather to granddaughter.
>
> ....But, as I say, she also had lots of other contributory factors, and it
could've been caused by any one of them.
>
> Think the thing is to recognise that it might happen to your grandchild -
for any number of reasons, not necessarily hereditary - and to know that if
it does, he/she has the best grandma anyone could ask for, cos you've been
there and come out the other end.
>
> Not sure of this answers your question - sorry to start rambling!
>
> Good luck - let us know how your grandchild is, when he/she finally
arrives!
>
> Barbara
> ----- Original Message -----
> From: heartsdelight02
> To: clickyhipsclub@yahoogroups.com
> Sent: Wednesday, July 28, 2004 3:57 PM
> Subject: [Clicky Hips Club] grandchild
>
>
> I was born with cdh, and we are expecting our first grandchild,It may
> be a girl, and am wondering if anyone has had heredity to the
> grandchildren? We had 2 boys , both were fine.Mine was treated with
> many surgeries and the whole nine yards. At 36 I had my hip totaly
> replaced and am doing the best I have ever done.Thanks , new to this
> board.Di P.S. I had a cousin with bilateral.
>
>
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Tue Aug 10, 2004 6:12 pm

njssanders
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Message #2251 of 2500 |
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Hi! I'm not entirely sure what the reasons behind Amy having bilateral CDH are, as she was: 1) overdue 2) very low amniotic fluid, and I don't think she...
BC
mum2amy2004
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Jul 28, 2004
7:27 pm

Barbara, I have always been told that if both hips are affected, it is probably more than just the tight packaging in the womb. One hip the ped orthos can ...
Nancy Sanders
njssanders
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Aug 10, 2004
10:46 pm
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