Thank you all sooo much for your replies - it's so nice to know that
you're all there!

We took Amy for her first week check-up yesterday, and the doctor
did a very quick exam (didn't even ask to take her nappy or dress
off) and said that everything was OK with the harness. Looking back
the first week has gone very very quickly, so here's hoping that the
next 12 or so go like that too. Am I a bad mother for saying that??
Before this happened, I wanted to enjoy every second and make it
last a lifetime with her because they grow up soooo quickly, but now
I can't wait till she gets her harness off and we can play with her
and bath her properly. Still enjoying every minute, though!

Reading some of your stories, I also feel kinda silly cos I see the
hell that you are going through, and realise that so far (touch
wood!) we haven't had to go through half of what you are
experiencing. It is so wonderful to see the success stories, though,
and also to be able to share the heartbreaks. I was shocked at the
lack of information at the hospital, and intend to do something
about that going forwards, so maybe there was a reason why this
happened.

Keep in touch!

B&A xxx
--- In clickyhipsclub@yahoogroups.com, "Nancy Sanders"
<njsanders@i...> wrote:
> Barbara,
> The fact that your daughter is still young and that her hips are
in the
> socket though they can be dislocated is good news. This means
that they are
> what is called subluxable. The pavlik harness is successful in
90% of the
> cases when used. Walking will happen, it just depends on the
severity of
> the case when it will take place. Good luck to you.
>
> Nancy[keeper of the www.hip-baby.org website, mom to Claudia,
misdiagnosed
> at 9 months, diagnosed at 16 months old with bilaterally
dislocated hips and
> DDH, 8 days traction, adductor tenotomy, closed reduction, AVN in
left hip,
> spica casts for 20 weeks, full-time abduction brace wearing for 1
year,
> bilateral open reductions and pelvic osteotomies, spica casts for
7 weeks,
> now going for once a year check-ups!]
>
> ----- Original Message -----
> From: "BC" <barbara.campbell3@n...>
> To: <clickyhipsclub@yahoogroups.com>
> Sent: Tuesday, June 01, 2004 8:11 AM
> Subject: [Clicky Hips Club] New member
>
>
> > Hi!
> >
> > Amy was born on 31 Jan, and DR has just confirmed that both hips
can be
> dislocated. She's in a harness, which needs to be on 24/7 for at
least 3
> months. I know we're lucky that they seem to have caught it early
(she's 4
> months), but still can't believe how little information and
support was
> offered at the hospital! Thank goodness for you guys!
> >
> > Noone at the hospital told us anything about implications for
walking in
> the future, despite my asking several times. I know they've got to
caveat
> everything, but does anyone have any information about likelihoods
of
> success (eg what % children are healed following
harness/cast/surgery).
> >
> > I'm so glad to be reading so many of your success stories. My
thoughts are
> with the rest of you, waiting either for treatment to end or to
see what
> happens next. Noone tells you how hard parenthood can be, do
they?! (Or is
> it more that they do tell you, you just don't listen cos 'it'll
never happen
> to us'?!)
> >
> > Barbara
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >