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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Re: [Clicky Hips Club] New member   Message List  
Reply | Forward Message #2233 of 2500 |
Re: [Clicky Hips Club] New member

Barbara,
The fact that your daughter is still young and that her hips are in the
socket though they can be dislocated is good news. This means that they are
what is called subluxable. The pavlik harness is successful in 90% of the
cases when used. Walking will happen, it just depends on the severity of
the case when it will take place. Good luck to you.

Nancy[keeper of the www.hip-baby.org website, mom to Claudia, misdiagnosed
at 9 months, diagnosed at 16 months old with bilaterally dislocated hips and
DDH, 8 days traction, adductor tenotomy, closed reduction, AVN in left hip,
spica casts for 20 weeks, full-time abduction brace wearing for 1 year,
bilateral open reductions and pelvic osteotomies, spica casts for 7 weeks,
now going for once a year check-ups!]

----- Original Message -----
From: "BC" <barbara.campbell3@...>
To: <clickyhipsclub@yahoogroups.com>
Sent: Tuesday, June 01, 2004 8:11 AM
Subject: [Clicky Hips Club] New member


> Hi!
>
> Amy was born on 31 Jan, and DR has just confirmed that both hips can be
dislocated. She's in a harness, which needs to be on 24/7 for at least 3
months. I know we're lucky that they seem to have caught it early (she's 4
months), but still can't believe how little information and support was
offered at the hospital! Thank goodness for you guys!
>
> Noone at the hospital told us anything about implications for walking in
the future, despite my asking several times. I know they've got to caveat
everything, but does anyone have any information about likelihoods of
success (eg what % children are healed following harness/cast/surgery).
>
> I'm so glad to be reading so many of your success stories. My thoughts are
with the rest of you, waiting either for treatment to end or to see what
happens next. Noone tells you how hard parenthood can be, do they?! (Or is
it more that they do tell you, you just don't listen cos 'it'll never happen
to us'?!)
>
> Barbara
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>





Thu Jun 3, 2004 3:40 pm

njssanders
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Message #2233 of 2500 |
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Hi Andrew and Sarah Jane I understand exactly how you're feeling. My daughter, Leah, was also diagnosed at 10 months, she had her surgery on July 8th, and she...
Kate Astels
astelsk
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Jul 24, 2002
1:37 pm

Sally, There is a group for adults dealing with DDH, it is Congenital_Hip_Dysplasia@yahoogroups.com I know that they would welcome you. Many have dealt with...
The Sanders
njssanders
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Jan 5, 2003
8:19 pm

Hi Barbara Welcome to the group and to parenthood!!! I'm sorry to hear Amy is in a pavlik harness. The harness does fix up to 90% of cases, it is very...
Rob & Sara.Dudley
sara_dudley
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Jun 1, 2004
1:13 pm

Hi Barbara - Sorry to hear about Amy being in a harness - our daughter Carys had one at a slightly older age, was told she'd have it for at least 4 months and...
Bethan Charles
poshjack03
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Jun 1, 2004
6:19 pm

Barbara, The fact that your daughter is still young and that her hips are in the socket though they can be dislocated is good news. This means that they are ...
Nancy Sanders
njssanders
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Jun 4, 2004
12:43 am

Thank you all sooo much for your replies - it's so nice to know that you're all there! We took Amy for her first week check-up yesterday, and the doctor did a...
mum2amy2004
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Jun 4, 2004
9:06 am

Marie, I'm so sorry you're going through this, too, but you're right - they are sooo resilient! My Amy is now just turned a year old, and has been out of her...
BC
mum2amy2004
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Feb 12, 2005
7:55 am
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