Hi Barbara -

Sorry to hear about Amy being in a harness - our daughter Carys had one at a
slightly older age, was told she'd have it for at least 4 months and only had to
have it for 10 weeks - although she was slower starting to move around compared
to her friends (due to the harness) she took no time at all to catch up and
overtake some of them! You wouldn't know it to look at her now as she bombs
around the place. Its a horrible time but hang in there - I don't think the
local hospitals know too much its the specialists that give you ll the info.
Just keep asking questions - I'm sure you'll be okay.

Good luck
Bethan


----- Original Message -----
From: BC
To: clickyhipsclub@yahoogroups.com
Sent: Tuesday, June 01, 2004 1:11 PM
Subject: [Clicky Hips Club] New member


Hi!

Amy was born on 31 Jan, and DR has just confirmed that both hips can be
dislocated. She's in a harness, which needs to be on 24/7 for at least 3 months.
I know we're lucky that they seem to have caught it early (she's 4 months), but
still can't believe how little information and support was offered at the
hospital! Thank goodness for you guys!

Noone at the hospital told us anything about implications for walking in the
future, despite my asking several times. I know they've got to caveat
everything, but does anyone have any information about likelihoods of success
(eg what % children are healed following harness/cast/surgery).

I'm so glad to be reading so many of your success stories. My thoughts are
with the rest of you, waiting either for treatment to end or to see what happens
next. Noone tells you how hard parenthood can be, do they?! (Or is it more that
they do tell you, you just don't listen cos 'it'll never happen to us'?!)

Barbara

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