Hi Barbara

Welcome to the group and to parenthood!!! I'm sorry to hear Amy is in a pavlik
harness. The harness does fix up to 90% of cases, it is very successful. Also,
you mentioned that Amy's hips are dislocatable rather than dislocated, this in
itself is extremely positive!! It means Amy's femur is in the right place and
the harness should immobilise everything so that her hips can grow naturally.

Have you checked out the steps charity website www.steps-charity.org.uk

Take care and let us know how you get on.

Sara x
----- Original Message -----
From: BC
To: clickyhipsclub@yahoogroups.com
Sent: Tuesday, June 01, 2004 1:11 PM
Subject: [Clicky Hips Club] New member


Hi!

Amy was born on 31 Jan, and DR has just confirmed that both hips can be
dislocated. She's in a harness, which needs to be on 24/7 for at least 3 months.
I know we're lucky that they seem to have caught it early (she's 4 months), but
still can't believe how little information and support was offered at the
hospital! Thank goodness for you guys!

Noone at the hospital told us anything about implications for walking in the
future, despite my asking several times. I know they've got to caveat
everything, but does anyone have any information about likelihoods of success
(eg what % children are healed following harness/cast/surgery).

I'm so glad to be reading so many of your success stories. My thoughts are
with the rest of you, waiting either for treatment to end or to see what happens
next. Noone tells you how hard parenthood can be, do they?! (Or is it more that
they do tell you, you just don't listen cos 'it'll never happen to us'?!)

Barbara

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