Amy was born on 31 Jan, and DR has just confirmed that both hips can be
dislocated. She's in a harness, which needs to be on 24/7 for at least 3 months.
I know we're lucky that they seem to have caught it early (she's 4 months), but
still can't believe how little information and support was offered at the
hospital! Thank goodness for you guys!
Noone at the hospital told us anything about implications for walking in the
future, despite my asking several times. I know they've got to caveat
everything, but does anyone have any information about likelihoods of success
(eg what % children are healed following harness/cast/surgery).
I'm so glad to be reading so many of your success stories. My thoughts are with
the rest of you, waiting either for treatment to end or to see what happens
next. Noone tells you how hard parenthood can be, do they?! (Or is it more that
they do tell you, you just don't listen cos 'it'll never happen to us'?!)
Barbara
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Hi Joanne, My daughter was diagnosed with CDH at 7 months and had a closed reducton at 8 months. Sophie then spent 3 months in a hip spica. It was a bit...
Hello, my name is Andrew and my wife (Sarah-Jane) and I discovered yesterday that our 10 month old daughter, Mollie, will require surgery for her Hip...
Good afternoon Andrew, Both my wife and I have already gone through a similar sort of procedure as you are right now with our little girl, she was 6 months old...
Hi Andrew, Sarah-Jane and Mollie- my daughter Freya is nine months and has just had a closed reduction on her right hip and is in a "frog" style hip spica cast...
Hi, I am a new member and would like to introduce myself to everyone. My name is Michelle and my 5 1/2 month old little girl, Kylie, was just diagnosed with...
Hi I am 24 and have CDH on the right. I have had 8 operations and now I am waiting for a total hip replacement. I would like to hear from people who also have...
Hi! Amy was born on 31 Jan, and DR has just confirmed that both hips can be dislocated. She's in a harness, which needs to be on 24/7 for at least 3 months. I...
Hi Barbara, Welcome to the group. It is good they have found it fairly early, the earlier it is found the better and more chance of success. My daughter was...
Hello, I have a five and a half month daughter currently in the Pavlik harness. We knew Lucie could have bad hips because my Mum has C.H.D. It still came as a...
Hi Kirsty, My daughter was diagnosed late but was still put in the pavilk at 8m. Because she was crawling before having it fitted she began crawling again...
... How old is your daughter now? and do you know what is likely to happen long term . I guess you just hope and pray for the best , like we do and remain...
Hi Kirstie, Kacey is now 15m, she has made good progress in the brace,(since july last year) even I can see the difference in her x-rays!. She has another...
... That's such good news. I bet you can't wait to be 'free!' . I too have read some not so happy stories about relapses, but also so many positive stories of...
Hi there Our daughter Amy is 16 months old and has CDH, she has just come back from hospital yesterday. It was very hard in hospital, she was absolutely...
HI, Mammas and Pappas did one called sicuro. Its front and rear facing and flat on the bottom so your daughter should fit in it. It cost about £140. They ...
Hi Marie Welcome to cllickyhipsclub. Sorry to hear hear you've had a rough time. As you say, at least you are back home now. Glad to hear Amy is really happy...
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