Jo,
I think that you need to have someone who has seen this more than 2 times in
15 years. I am not sure why your visitor took the harness off so soon.
From what I remember ( I am from the U.S.) Birmingham Childrens Hospital
does have medical people who have dealt with this more than twice in 15
years. I would suggest that you make sure you get referred and get there as
soon as you can. Your daughter may be okay in the harness, or if they find
that it indeed wasn't working then it is on to the closed reduction. Is it
only one hip that is affected? At only 11 weeks old I think that a closed
will be the most likely operation, if one is needed. Most closed reductions
will require two casts with a change halfway, 6 weeks each cast, total of 12
weeks in the cast. Many have continued to breastfeed while in the cast. It
is a matter of lots of pillows and trying lots of holds until one works. I
am sorry that I can't give real suggestions in the breastfeeding, my
daughter's DDH was not discovered until she was 16 months old and she had
weaned herself just before all of it started. I often wished she had still
been breastfeeding for the comfort it could have given to her. The amount
of time in the hospital is generally only a night, maybe two. I hope that
this helps you some. You should not have to be all alone in dealing with
this.

Nancy[keeper of the www.hip-baby.org website, mom to Claudia, misdiagnosed
at 9 months, diagnosed at 16 months old with bilaterally dislocated hips and
DDH, 8 days traction, adductor tenotomy, closed reduction, spica casts for
20 weeks, full-time abduction brace wearing for 1 year, bilateral open
reductions and pelvic osteotomies, spica casts for 7 weeks, now going for
once a year check-ups!]


----- Original Message -----
From: "Rob & Sara Dudley" <robandsara@...>
To: <clickyhipsclub@yahoogroups.com>
Sent: Sunday, February 01, 2004 6:46 PM
Subject: Re: [Clicky Hips Club] Newbie...


> Hi Jo
>
> Sorry to hear about your little one. Similar story to ours. Emily was
> diagnosed at 8 weeks after an ultra-scan as she was a breach baby too.
>
> It is difficult to answer your questions as every child is different, but,
> it is likely that Emilia (beautiful name) will need an open reduction.
This
> normally involves an arthrogram (dye injection) which allows the surgeon
to
> see what the problem is. All being well they will manipulate the hips
into
> position and cast her. Cast times vary from 6 weeks to 9 months, it all
> depends on the severity/surgeon. She probably be in hospital for a day
or
> two (it might even be a same day surgery). Breastfeeding can still be
done,
> it's tricky though! How did your appointment go. What did Emilia's
surgeon
> suggest. Let us know.....
>
> Take care
> Sara (Emily's Mum )
> ----- Original Message -----
> From: "Jo Bayliss" <jo.bayliss@...>
> To: <clickyhipsclub@yahoogroups.com>
> Sent: Sunday, January 25, 2004 11:50 AM
> Subject: [Clicky Hips Club] Newbie...
>
>
> > Hi, I have an 11 week old daughter, Emilia, who has a fully dislocated
> left hip. She was diagnosed following a routine scan at 8wks, offered
> because she was breech.
> >
> > She's had just 9 days in a Pavlik harness as the consultant said he was
> sure it wouldn't work, it came off last Thursday. We have to go & see him
> again on the 27th Jan. He has told us he will refer us to Birmingham
> Childrens hospital for her treatment. Can anyone help with my questions
> please:
> >
> > Will she have a closed reduction at this age?
> >
> > If so, how will we get on as she is breast-fed?
> >
> > How long will she be in hospital for?
> >
> > How long will she have a spica cast on for?
> >
> > Any thoughts would be greatly appreciated. Our health visitor has only
> seen 2 previous cases in her 15yr career, so we're alone in this area &
> struggling to find support. I hope this group is my lifeline.
> >
> > Thanks
> >
> > Jo
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> > Yahoo! Groups Links
> >
> > To visit your group on the web, go to:
> > http://groups.yahoo.com/group/clickyhipsclub/
> >
> > To unsubscribe from this group, send an email to:
> > clickyhipsclub-unsubscribe@yahoogroups.com
> >
> > Your use of Yahoo! Groups is subject to:
> > http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
>
> Yahoo! Groups Links
>
> To visit your group on the web, go to:
> http://groups.yahoo.com/group/clickyhipsclub/
>
> To unsubscribe from this group, send an email to:
> clickyhipsclub-unsubscribe@yahoogroups.com
>
> Your use of Yahoo! Groups is subject to:
> http://docs.yahoo.com/info/terms/
>
>
>