Karen,
I am mom to Claudia and I also am the person who keeps the www.hip-baby.org
site going. ( with a LOT of help from my husband) The acetabulum developing
slowly is fairly commonplace. It is not a fast fix for any part of this
condition. I also noticed you said that your daughter was diagnosed with
epilepsy. My son, my hipbaby's older brother has epilepsy. I am amazed
that your daughter was diagnosed with absence seizures so young. Absence
seizures are very hard to spot, in fact there are kids at a childhood
epilepsy site who go years with no one quite sure what is happening, just
that something is not right. If you are interested the site is
childhoodepilepsy@yahoogroups.com Good luck, I know what a trial all of
these things are.

Nancy [keeper of the www.hip-baby.org website, and mom to
Claudia,misdiagnosed at 9 months, diagnosed at 16 mo nths with bilaterally
dislosated hips and DDH, traction for 8 days, adductor tenotomy, closed
reduction, 20 weeks of casts, full-time abduction brace wearing for 1year,
open reduction and bilateral pelvic osteotomies, cast for 7 weeks, and now
only going for once a year check-ups!]

----- Original Message -----
From: "karen" <karenprivett@...>
To: <clickyhipsclub@yahoogroups.com>
Sent: Thursday, January 08, 2004 2:06 AM
Subject: [Clicky Hips Club] new member..


> Hi all I am Karen, mum to Charlotte who is 13 months..she was
> diagnosed at 7 months...in traction for 1 week, double full-length
> spica for 14 weeks and is currently in an abduction brace for the
> foreseeable future...her acetabulum is developing very slowly but is
> still shallow, so fingers crossed.....she also has been diagnosed
> with epilepsy (absence seiures) during this period so it has been
> doubly traumatic
> Karen
>
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