Hi all
Just thought i would post a few things about me and my children, I
am an avid reader of this message board as i have congenital
dislocation and so do both of my children. I know how the children
feel as i can still remember my experiences and i also know how a
mother feels. I had my first operation at the age of 5 and 4 more
operations until i was 21. My problems werent spotted until i was 4,
hence all the problems. Luckily my children were both scanned as i
have a history, and both of my boys have it. They were both splinted
from 6 weeks and my youngest has just had his splint off. I'm going
to put some pics in the gallery so you can all see him with his
splint. This disease is quite a horrible one and i believe all
children should be scanned for it regardless of whether the mother or
father has a history. To put it in perspective though my friends son
has just been diagnosed with cf so thank god our children can be
cured.
Hi all, I managed to find your group. I am also a member of another group dedicated to hip dysplasia, hip-baby. I was surprised to find that this group is...
Hi Nancy and thanks for the info I'll certainly be checking it out, I'm sure you'll find lots of varying stories here from the members. Our daughter is...
hi my daughter is six and has had 5 operations on her hips and still seeing a specialist she has been having treatment since she was 18 months old and still...
HI Michelle I hope all goes well for Kylie. My daughter, Leah, was daignosed at 10 months and she did really well with her surgery and has been in a spica...
Hi Kate, Thanks for the welcome. We haven't had any surgery yet but they called this morning and left a message saying they had picked a day for surgery. I...
Hi, I just got back from hospital with my 10 day old daughter having been told her left hip is clicky and we need to see a orthopaedic expert. I have no idea...
Hi Paul, my daughter was diagnosed at her 6 week check but didn't get to see a consultant until over 6 weeks later when he confirmed that her left hip was ...
Hi Paul Welcome to the group. What you are feeling now is completely normal - honest!. You have no idea what to expect and no knowledge of the condition -...
In a message dated 11/03/2003 12:33:07 Pacific Standard Time, ... Hi Jane, Thanks for the advice. Particularly the above. It seems pretty heartbreaking at the...
In a message dated 11/03/2003 12:36:06 Pacific Standard Time, ... Thanks Sara, To be honest I don't know who or what the orthopaedic bloke is because I was a...
Hi Crystal, Thanks for your mail. As you know much better than me the worst thing is the not really knowing. We know there's a problem but we won't find out...
Hi Paul - Having had a Pavlik Harness on my 4 month old daughter for 3 weeks now I I would not say I'm an expert and I know everyone has had so many different...
Hi Paul Yes, it is horrible but you will be amazed how you all cope with it. When we were on the way to the hospital for the first scan we were blissfully...
Hi Paul, You have come to the right place for support and reasurance! I know how you are feeling right now. It is frightening and devastating...but YOU WILL...
Hi all Just thought i would post a few things about me and my children, I am an avid reader of this message board as i have congenital dislocation and so do...
Hi Debbie, Welcome to the group. Its good to have someone who has been though it. I've just seen the pictures of Ethan and it looks as though the harness...
Hi, Congratulations on your baby due in January, have they said whether they are getting the new baby checked as well. Ethan is very cheeky hes just started...
Hi Debbie, Yse they are going to scan the baby once its born which is great as Sophie was 7 months before her hip problem was discovered. I think they are...