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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Reply | Forward Message #18 of 2500 |
Re: Lisa's Story

Thanks so much for your story Jules. It's
wonderful to hear that Lisa is doing all the normal things
a 10 year old does! Sophie,who is now 22 months, is
in the process of waiting for the operation to
remove the pin from her leg where they broke it ,like
Lisa's.How was she after that operation? I'm worrying about
that bit already, and she won't be having the op until
September. I know what you mean about trying to keep them
clean whilst in the pots, it must have been worse for
you though because of Lisa's age,and Sophie was hard
enough to carry around never mind a 3 year old in
plaster and being pregnant also!It wouls be great to see
some photos if you can, and give hope to other parents
out there! Once again thanks,and chat soon.<br>Luv
Liz




Wed May 16, 2001 3:25 pm

lizzie_jenkinson
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Message #18 of 2500 |
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You asked for my story - well here it is.<br><br>My daughter, Lisa, was born with CDH but it was not discovered until the age of three. The specialist said he ...
gaspode26
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May 16, 2001
10:44 am

Thanks so much for your story Jules. It's wonderful to hear that Lisa is doing all the normal things a 10 year old does! Sophie,who is now 22 months, is in the...
lizzie_jenkinson
lizzie_jenki...
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May 16, 2001
3:25 pm

Lisa was OK after the op to remove the pin. She obviously needed pain killers whilst in hospital and her leg was still very badly bruised even a couple of ...
gaspode26
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May 17, 2001
3:07 pm

I have now uploaded some photos of Lisa in her plaster casts. It has certainly brought back memories while sorting through all the pictures - some good, some...
gaspode26
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May 17, 2001
3:46 pm

Thanks so much for the reassurance Jules. I'll keep you posted about when Sophie is actually having the op as we haven't got a date yet.Chat again soon.<br>Luv...
lizzie_jenkinson
lizzie_jenki...
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May 17, 2001
5:52 pm

Your photos are lovely! Lisa is so pretty, does she still have all that gorgeous curly hair? Sophie had a pot like that at one stage,with one leg in plaster...
lizzie_jenkinson
lizzie_jenki...
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May 17, 2001
6:05 pm

Glad you liked my photos. Yes, Lisa does still have her curly hair although it is not quite so blonde now! <br><br>Look forward to seeing some more photos of...
gaspode26
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May 20, 2001
6:25 pm

Hi all,<br><br>Just a quick message to let you know that Lisa has her next check-up at the hospital this Thursday 24th May.<br><br>Although I'm sure she will...
gaspode26
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May 20, 2001
6:37 pm

Hi Jules! I've got my fingers crossed for you and Lisa on Thursday. I know what you mean about worrying when it comes to check up day. Sophie has a check up on...
lizzie_jenkinson
lizzie_jenki...
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May 20, 2001
8:57 pm

Hi Liz,<br><br>Thanks so much for your good luck wishes for Thursday - it does help to talk about such worries. My friends and family do not really ...
gaspode26
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May 21, 2001
1:35 pm

Good luck for Thursday... we haven't got a check-up till November (I think!). <br><br>I guess we were also lucky that Abby was either caught early (6 weeks, ...
squidgy_1967
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May 21, 2001
8:07 pm

Thanks for your message Conch.<br><br>When is the next little one due then?<br><br>When my second was born she had a scan done on her hip and also saw the ...
gaspode26
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May 22, 2001
1:19 pm

Just to let you know I'm on nights until Friday morning so may not get to check the messages every day (though I'll try to).Good luck for Thursday Jules, and ...
lizzie_jenkinson
lizzie_jenki...
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May 22, 2001
6:16 pm

Hi all,<br><br>Well, that's our hospital appointment over for another two years.<br><br>The specialist is very, very pleased with Lisa's progress and has ...
gaspode26
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May 24, 2001
4:12 pm

Hi Jules! I'm so pleased that Lisa is ok, it must be a great relief to you and your family, especially since it looks like she won't need further surgery. I ...
lizzie_jenkinson
lizzie_jenki...
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May 24, 2001
5:56 pm

That's wonderful news Jules - it must be such a relief.<br><br>My second little pixie is due 1st November, so I'm packing my bags from the end of September (I...
squidgy_1967
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May 24, 2001
7:18 pm

Hi mousse and welcome to the club. Feel free to let us know a bit about yourself when you feel ready....
lizzie_jenkinson
lizzie_jenki...
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May 30, 2001
9:12 pm

hi all <br> My son William is three in four weeks time.He was diagnosed at nine weeks and operated on at four months he spent nine weeks in a full length hip ...
mousse_27
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Jun 1, 2001
8:14 pm

Hi Claire!It's so nice to chat with people going through similar problems , although William's condition sound more complicared than our daughter Sophie's.Do ...
lizzie_jenkinson
lizzie_jenki...
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Jun 1, 2001
8:34 pm

Hi charliemom and welcome to the club. Feel free to let us know a bit about yourself and your story when you feel ready.<br>Liz...
lizzie_jenkinson
lizzie_jenki...
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Jun 4, 2001
5:57 pm

Hi all, well its arrived again, Sophie's checkup is tomorrow afternoon at the hospital. I'm feeling confidant that all will be ok, but I shall get nervous ...
lizzie_jenkinson
lizzie_jenki...
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Jun 6, 2001
12:13 pm

Hi Liz,<br><br>I know exactly how you feel! I'm sure everything will be OK.<br><br>I wish you and Sophie good luck and I will be thinking of you tomorrow ...
gaspode26
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Jun 6, 2001
1:13 pm

Good luck for tomorrow... I hope she gets a clean sheet.<br><br>Conch xxx...
squidgy_1967
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Jun 6, 2001
7:55 pm

hi good luck for tomorrow we will be thinking about you hope everything is ok <br>love claire and william...
mousse_27
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Jun 6, 2001
8:32 pm

Hi all again. Well Sophie's check up went well, the Drs are happy with her at the time being. The only thing is we're on the waiting list for the pin removing,...
lizzie_jenkinson
lizzie_jenki...
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Jun 7, 2001
3:09 pm

Brilliant news! It's great that the docs are pleased with Sophie and you can stop worrying, at least for a while, eh!!<br><br>You can now look forward to your...
gaspode26
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Jun 8, 2001
8:59 am

Thanks for your thoughts Jules. Please feel free to post a message anytime and about anything.If anyone knows any body who may be interested in this club also,...
lizzie_jenkinson
lizzie_jenki...
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Jun 8, 2001
6:19 pm

Just thought I would post a quick message to let you all know that Lisa is taking part in "The Wishbone Orthopaedic Walk" on Sunday 24th June. It is taking...
gaspode26
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Jun 18, 2001
9:15 am

Hi Jules! I have not heard of The wishbone orthopaedic walk before, I'm wondering if there is one near to us. I hope Lisa has a great day and raises lots of...
lizzie_jenkinson
lizzie_jenki...
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Jun 18, 2001
6:06 pm

Hi Lizzie,<br>The walk is organised by The Wishbone Trust. Their website is www.wishbone.org.uk. They hold the walk every year as far as I am aware and it is...
gaspode26
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Jun 22, 2001
10:02 am
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