Hi Ila, my name is Debbie and I have suffered from daily headaches since I was at least 3 and I am now 51. I've been checked for everything but the results...
Debbie
dholden@...
May 4, 2001 11:50 pm
61
Hi Carolyn, my name is Debbie and I too suffer from CDH and have since I was about 3. I am now 51. The medication I take helps but I doubt if they will ever...
Debbie
dholden@...
May 4, 2001 11:53 pm
62
Hi folks! I'm Ray, the guy who started this list. The last few days have been somewhat hellish for me because of the summerlike weather Connecticut is getting....
changeagent@...
May 5, 2001 12:57 am
63
Hi Ray, my name is Debbie and am a newcomer to the group. I can sympathize with your throbbing head. Mine gets that way whenever I get overheated. Sometimes...
Debbie
dholden@...
May 7, 2001 9:50 pm
64
I have an appointment with my neurologist Tues. afternoon. My head had been behaving itself pretty much and has gotten worse over the last few months. I hope...
changeagent@...
May 8, 2001 10:39 am
65
Hi Debbie, Sorry it took me so long to respond. I have had CDH for 15 yrs. or so. They came on gradually over a period of about 4-5 yrs. starting when I was...
John and Carolyn Dyess
jcdyess@...
May 13, 2001 2:41 am
66
Hi everyone, I am desperately trying to find information on CPH (Chronic Paoxysmal Hemicrania) having had my 3yo son diagnosed recently with this. Is it the...
buttrfly@...
Jul 1, 2001 11:27 pm
67
Hello Rebecca, From my understanding CPH is not like CDH (chronic daily headache). CPH is a very specific type of headache that responds to Indomethacin. The...
John and Carolyn Dyess
jcdyess@...
Jul 2, 2001 3:58 am
68
Hi Group, I have also had CDH for too long - almost 9 years now. I had a daily headache for a few months prior to the pain starting on a continual basis, but...
In a message dated 5/27/02 2:52:26 PM Pacific Daylight Time, ... Hi I was very surprised to hear from this group, it has been dead so long. I have never heard...
Hi Mike, Has anyone checked out your sinuses? Have they done a head CT for this specific investigation? There is the chance you may have a chronic infection...
Rebecca: Thanks for the suggestion. I've always thought I had a long term sinus infection but several well respected ENT's have told me there's nothing there....
Rebecca: I've corresponded via e-mail with Dr. Tichenor (if you haven't already visited his web site, I have the link below) but he didn't offer much...
Hello Mike, I've had CDH for about 17 years. Unfortunately I don't have any great suggestions for you. I had sinus surgery about 10 years ago and it didn't ...
John and Carolyn Dyess
jcdyess@...
Nov 14, 2002 4:25 am
75
Hi Mike, It does sound possibly sinus related, doesnt it, which is why I was surprised to hear nothing turned up on the CT. Was this done recently? Perhaps...
Rebecca: Thanks. The CT scan is fairly recent, third one in the past 10 years. I also have sleep apnea but was unable to use a CPAP. We tried two different...
Carolyn (nice name - same as my wife's) I take Paxil. Don't know if it helps headache but now I no longer get claustrophobic in airplanes. The last ENT I saw,...
Here is a website that lists every concievable headache remedy and asks members to rate each. Very good information and seems unbiased. Worth checking out: ...
Hi, My daughter has almost daily headaches. She is scheduled for an MRI, and if that comes back negative, her doctor has suggested she try a pain clinic for...
Longell, I have a long history of daily headache. I personally prefer seeing a neurologist that is a headache specialist or an internist that is a headache ...
John and Carolyn Dyess
jcdyess@...
Dec 20, 2002 5:25 pm
82
Hi Carolyn, Thanks so much for your reply! I also see a neurologist for migraine headache, and have been helped from some medication. The doctor my daughter...
Hi, How did the indocin work for you? I take varapamil(for high blood pressure too) and celexa(anxiety), but they also help migraine. Regards, longell...
I've given up on the neurologist / headache specialist I've been seeing the last six months. Visits twice a week and many, many drugs to try. All I have to...
Hi- Well, last night I ended up going to the ER about 1am because I just could not take this headache anymore. I have been throwing up, passing out, ect... ...
Linda: I also get these but rather infrequently... thank God! Unfortunately there is no med that acts quickly enough to relieve the pain once it starts. I've...
Hi everybody, I'm new to this group and read a lot of these messages and I noticed that some of us have experienced the same kind of hellish headaches. I too...
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