There have been no posts to this list for 9 months, is that correct? Is there a need to even have this group if no one cares to participate? Has anyone new...
Kim
kklessig@...
Apr 27, 2001 9:21 pm
56
Kim, I'm the owner. We only have 19 members. I've been going through a series rough patches and forgot about the list and haven't done any real promotion. ...
changeagent@...
Apr 28, 2001 1:32 am
57
Hi, My name is Ila and I'm 17 who's been on the list for a while. I've neen having headaches every day for about 3 years. I've been to 3 nurologists who...
Ila Jones
ilajones@...
Apr 28, 2001 9:18 pm
58
I've had a decades worth of chonic daily headache. At present, I am on four preventative medications which have helped lower the severity but barely touch the...
changeagent@...
Apr 29, 2001 12:07 am
59
Hi Kim, It's me, Carolyn... from the other HA list. I haven't been doing all that great the last few months. Nothing new to add in respect to HA help. I've...
John and Carolyn Dyess
jcdyess@...
Apr 29, 2001 12:18 am
60
Hi Ila, my name is Debbie and I have suffered from daily headaches since I was at least 3 and I am now 51. I've been checked for everything but the results...
Debbie
dholden@...
May 4, 2001 11:50 pm
61
Hi Carolyn, my name is Debbie and I too suffer from CDH and have since I was about 3. I am now 51. The medication I take helps but I doubt if they will ever...
Debbie
dholden@...
May 4, 2001 11:53 pm
62
Hi folks! I'm Ray, the guy who started this list. The last few days have been somewhat hellish for me because of the summerlike weather Connecticut is getting....
changeagent@...
May 5, 2001 12:57 am
63
Hi Ray, my name is Debbie and am a newcomer to the group. I can sympathize with your throbbing head. Mine gets that way whenever I get overheated. Sometimes...
Debbie
dholden@...
May 7, 2001 9:50 pm
64
I have an appointment with my neurologist Tues. afternoon. My head had been behaving itself pretty much and has gotten worse over the last few months. I hope...
changeagent@...
May 8, 2001 10:39 am
65
Hi Debbie, Sorry it took me so long to respond. I have had CDH for 15 yrs. or so. They came on gradually over a period of about 4-5 yrs. starting when I was...
John and Carolyn Dyess
jcdyess@...
May 13, 2001 2:41 am
66
Hi everyone, I am desperately trying to find information on CPH (Chronic Paoxysmal Hemicrania) having had my 3yo son diagnosed recently with this. Is it the...
buttrfly@...
Jul 1, 2001 11:27 pm
67
Hello Rebecca, From my understanding CPH is not like CDH (chronic daily headache). CPH is a very specific type of headache that responds to Indomethacin. The...
John and Carolyn Dyess
jcdyess@...
Jul 2, 2001 3:58 am
68
Hi Group, I have also had CDH for too long - almost 9 years now. I had a daily headache for a few months prior to the pain starting on a continual basis, but...
In a message dated 5/27/02 2:52:26 PM Pacific Daylight Time, ... Hi I was very surprised to hear from this group, it has been dead so long. I have never heard...
Hi Mike, Has anyone checked out your sinuses? Have they done a head CT for this specific investigation? There is the chance you may have a chronic infection...
Rebecca: Thanks for the suggestion. I've always thought I had a long term sinus infection but several well respected ENT's have told me there's nothing there....
Rebecca: I've corresponded via e-mail with Dr. Tichenor (if you haven't already visited his web site, I have the link below) but he didn't offer much...
Hello Mike, I've had CDH for about 17 years. Unfortunately I don't have any great suggestions for you. I had sinus surgery about 10 years ago and it didn't ...
John and Carolyn Dyess
jcdyess@...
Nov 14, 2002 4:25 am
75
Hi Mike, It does sound possibly sinus related, doesnt it, which is why I was surprised to hear nothing turned up on the CT. Was this done recently? Perhaps...
Rebecca: Thanks. The CT scan is fairly recent, third one in the past 10 years. I also have sleep apnea but was unable to use a CPAP. We tried two different...
Carolyn (nice name - same as my wife's) I take Paxil. Don't know if it helps headache but now I no longer get claustrophobic in airplanes. The last ENT I saw,...
Here is a website that lists every concievable headache remedy and asks members to rate each. Very good information and seems unbiased. Worth checking out: ...
Hi, My daughter has almost daily headaches. She is scheduled for an MRI, and if that comes back negative, her doctor has suggested she try a pain clinic for...
Longell, I have a long history of daily headache. I personally prefer seeing a neurologist that is a headache specialist or an internist that is a headache ...
John and Carolyn Dyess
jcdyess@...
Dec 20, 2002 5:25 pm
82
Hi Carolyn, Thanks so much for your reply! I also see a neurologist for migraine headache, and have been helped from some medication. The doctor my daughter...
Hi, How did the indocin work for you? I take varapamil(for high blood pressure too) and celexa(anxiety), but they also help migraine. Regards, longell...
I've given up on the neurologist / headache specialist I've been seeing the last six months. Visits twice a week and many, many drugs to try. All I have to...
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