I live in Wisconsin. I am still trying to catch up on my email...baby's been sick and was admitted at Mayo Clinic and we are finally getting things together....
Wade & Kim Klessig
kklessig@...
Feb 2, 2000 10:35 pm
41
Has everyone here been cured of their chronic daily headaches? If so, please let me know how you did it! I still have daily headaches and desperately want to...
Kim Klessig
kklessig@...
Jul 5, 2000 10:01 pm
42
Cured? Not yet! I've been going through a bad period for about six weeks. Talked to my doc and we decided to cut back on the preventatives. Seems to working...
changeagent@...
Jul 6, 2000 12:13 am
43
I have been trying many different things and changes for the past 3 years and I feel like it just never is going to go away. Sometimes I just want to take a...
Wade & Kim Klessig
kklessig@...
Jul 6, 2000 12:23 am
44
Dear Kim, Sorry to tell you many people suffer from daily HA for years and years including myself for 15 years or so. Some rare people do have break through ...
John and Carolyn Dyess
jcdyess@...
Jul 6, 2000 4:59 pm
45
I am so tired of my aching head. I tried to make an appt at Mayo for it today and was told I might be seen sometime in the next year or maybe not at all...
Wade & Kim Klessig
kklessig@...
Jul 12, 2000 11:08 pm
46
I've had CDH for roughly ten years. It waxes and wanes. This last month has been really tough. I've been getting a distinct increase in the severity and...
changeagent@...
Jul 13, 2000 2:12 am
47
What preventive meds are you on? I am not on any currently but have been in the past. I am just so frustrated and disgusted today with this pain. I want to...
Wade & Kim Klessig
kklessig@...
Jul 13, 2000 3:06 am
48
Dear Kim, I've had CDH for about 15 years or so. I've been to many docs as you can imagine. What part of the country are you in? I've been to the Diamond ...
John and Carolyn Dyess
jcdyess@...
Jul 13, 2000 4:05 am
49
Kim, I can sympathize. Right now my headaches are cutting into the quality and quantity of my sleep which in turn makes the bloody headaches worse! For...
changeagent@...
Jul 13, 2000 4:15 am
50
I received a denial letter from Mayo saying I am not "sick" enough to be seen there! These headaches are getting so debilitating I can hardly stand it...
Wade & Kim Klessig
kklessig@...
Jul 27, 2000 1:43 pm
51
Dear Kim, I just called and made an appointment for myself the first time I went. The nicest Dr.'s are Dr. Merle Diamond or Dr. Betsy Pepper if you can get...
John and Carolyn Dyess
jcdyess@...
Jul 27, 2000 2:37 pm
52
Thanks so much for the help---I'm calling! :O) Kim ... From: "John and Carolyn Dyess" <jcdyess@...> To: <chronicdailyheadache@egroups.com> Sent:...
Wade & Kim Klessig
kklessig@...
Jul 27, 2000 8:37 pm
53
Thank you Carolyn for your Diamond HA Clinic advice! Called this afternoon and was able to get an appt with Dr. Merle Diamond in two weeks! WOW....what should...
Wade & Kim Klessig
kklessig@...
Jul 28, 2000 1:18 am
54
Dr.Merle is very nice and out going.I guess the clinic will send you info about what to bring with you as far as previous Dr. records, test results, etc. and...
John and Carolyn Dyess
jcdyess@...
Jul 28, 2000 3:36 am
55
There have been no posts to this list for 9 months, is that correct? Is there a need to even have this group if no one cares to participate? Has anyone new...
Kim
kklessig@...
Apr 27, 2001 9:21 pm
56
Kim, I'm the owner. We only have 19 members. I've been going through a series rough patches and forgot about the list and haven't done any real promotion. ...
changeagent@...
Apr 28, 2001 1:32 am
57
Hi, My name is Ila and I'm 17 who's been on the list for a while. I've neen having headaches every day for about 3 years. I've been to 3 nurologists who...
Ila Jones
ilajones@...
Apr 28, 2001 9:18 pm
58
I've had a decades worth of chonic daily headache. At present, I am on four preventative medications which have helped lower the severity but barely touch the...
changeagent@...
Apr 29, 2001 12:07 am
59
Hi Kim, It's me, Carolyn... from the other HA list. I haven't been doing all that great the last few months. Nothing new to add in respect to HA help. I've...
John and Carolyn Dyess
jcdyess@...
Apr 29, 2001 12:18 am
60
Hi Ila, my name is Debbie and I have suffered from daily headaches since I was at least 3 and I am now 51. I've been checked for everything but the results...
Debbie
dholden@...
May 4, 2001 11:50 pm
61
Hi Carolyn, my name is Debbie and I too suffer from CDH and have since I was about 3. I am now 51. The medication I take helps but I doubt if they will ever...
Debbie
dholden@...
May 4, 2001 11:53 pm
62
Hi folks! I'm Ray, the guy who started this list. The last few days have been somewhat hellish for me because of the summerlike weather Connecticut is getting....
changeagent@...
May 5, 2001 12:57 am
63
Hi Ray, my name is Debbie and am a newcomer to the group. I can sympathize with your throbbing head. Mine gets that way whenever I get overheated. Sometimes...
Debbie
dholden@...
May 7, 2001 9:50 pm
64
I have an appointment with my neurologist Tues. afternoon. My head had been behaving itself pretty much and has gotten worse over the last few months. I hope...
changeagent@...
May 8, 2001 10:39 am
65
Hi Debbie, Sorry it took me so long to respond. I have had CDH for 15 yrs. or so. They came on gradually over a period of about 4-5 yrs. starting when I was...
John and Carolyn Dyess
jcdyess@...
May 13, 2001 2:41 am
66
Hi everyone, I am desperately trying to find information on CPH (Chronic Paoxysmal Hemicrania) having had my 3yo son diagnosed recently with this. Is it the...
buttrfly@...
Jul 1, 2001 11:27 pm
67
Hello Rebecca, From my understanding CPH is not like CDH (chronic daily headache). CPH is a very specific type of headache that responds to Indomethacin. The...
John and Carolyn Dyess
jcdyess@...
Jul 2, 2001 3:58 am
68
Hi Group, I have also had CDH for too long - almost 9 years now. I had a daily headache for a few months prior to the pain starting on a continual basis, but...
In a message dated 5/27/02 2:52:26 PM Pacific Daylight Time, ... Hi I was very surprised to hear from this group, it has been dead so long. I have never heard...