Hi, My name is Kanina 38 yr old SAHM to dd 5 yrs old and ds 14 yr
old.
I have had headaches for as long as I can remember.  I have taken
just about every migraine med (maxalt, zomig...) out there with
little relief.  I have taken Topamax and Depacote.  The side effects
from the topamax just kept getting worse (numb hands and legs, bad
taste in my mouth and extra sensitive smell)  Depacote landed me in
the hospital with horrible edima (sp?).
Right now I take Migrin-A.  but that doesn't really help much.  I've
seen a couple different neurologists.  I've had an MRI.  They wanted
to send me to the Tampa General Hopital Migraine clinic but my
insurance wont cover it.
I have gotten to the point now where I have headaches every day.  I
am at my wits end as to what to do.  I can't live with this pain
every day.  This is to the point where it is causing problems with
my family.  My husband is sick of me always being in pain, my kids
suffer from it too.. because I can't do normal mommy stuff with them.
My GP Doctor has basically said there is nothing more that he can
do.  Why do I have to suffer the rest of my life with this silent
pain?  The only things that really help is strong pain killers but
I get the impression that my Dr. might think I am a drug seeker..
Which I am NOT!  I have a cupboard filled with controlled drugs and
I don't abuse them!  Myself and both of my kids have ADD.. so we
have lots of adderall and such..
I also take Halcion (sleeping pill) and xanax.  Which I don't abuse
either one.  How do I get my Dr. to take me seriously?

What meds do you all take that actually helps?

Thanks in advance,
Kanina

ALS -  Infertility - autoimmune issues

Anyone know what was going on with Lou Gehrig when he had the flu that would not quit?

We are not only needing another view of DIABETES and what has been harming our military since WWII days to the present ...

We need a new perspective on what the flu really is: a chemical poisoning which causes an autoimmune immune system ... and leaves bacteria and viruses unchecked. Goes back to the 14th century when new forms of warfare .... explosives ... started up

Too much exposure to 2-butoxyethanol and you can get things like MS, Parkinson's and ALS, aka Lou Gehrig's disease.

ED - Infertility ... may be autoimmune issue ... + helps

http://groups. msn.com/oddsnends/infertility. msnw

Headaches and migraines are almost always caused by the same
underlying reason.
We who suffer from these conditions are more sensitive to stress and
tension than other people around us.
The trouble is that we build up emotional tension in the body and
mind every day.
When we¡¯re faced with the smallest rise in tension around us, it¡¯s
like a pot that overflows and we experience a headache attack.
The damn thing is that it doesn¡¯t matter if the tension is positive
or negative. How many times have you been attached by headaches or
migraines when¡­
.There is rising tension between you and your loved one
.You¡¯re faced with the biggest challenge of your life
.An event that you¡¯ve been looking forward to is coming up
.You really need to be there for someone
Other people can handle this overflow of tension or block it out. You
on the other hand, get sick because you suffer from migraine or
chronic headaches.
And because the tension that you¡¯re feeling is different from the
tension of most people around you, their methods of relaxing and
reducing stress do not work.
For example, I¡¯ve found that most people who suffer from headaches
have tension developing in their eyes, neck, shoulders and the
muscles around the skull and face.
If you also have a neck pain, you prove my point!
The tension in your eyes and skull is usually not that obvious and
you may not be aware of it until it¡¯s released.
The method you¡¯re about to discover, gives you ways to avoid
developing more tension in these parts of your body, and simple
techniques to remove the tension that you already have.
Within days, you are totally free of the horrible migraines and
headaches that you¡¯ve been suffering from for so long.
http://headachebi.blogspot.com/#

http://groups.yahoo.com/group/selfawarenessthinkingrevolutionlistening-
http://groups.yahoo.com/group/realize2actualize/

The Headaches are an Autoimmune - Hormonal Issue

Headaches and migraines are almost always caused by the same underlying
reason.
We who suffer from these conditions are more sensitive to stress and
tension than other people around us.
The trouble is that we build up emotional tension in the body and mind
every day.
When we¡¯re faced with the smallest rise in tension around us, it¡¯s
like a pot that overflows and we experience a headache attack.
The damn thing is that it doesn¡¯t matter if the tension is positive or
negative. How many times have you been attached by headaches or
migraines when¡­
.There is rising tension between you and your loved one
.You¡¯re faced with the biggest challenge of your life
.An event that you¡¯ve been looking forward to is coming up
.You really need to be there for someone
http://migraineexvk.blogspot.com/#migraine

There are horrible headaches from a very prevalent chemical in paint, in products that clean that carpenters, mechanics and housewives use

This kind ? 

First you need to AVOID this chemical

2nd see if the rest of the pattern of its harm is there

2-butoxyethanol is the only chemical exposure (after oil)

that the gulf war syndrome vets & the EVOS workers with similar ailments

HAVE in common  

 3-24-06 IS

The Migrain, CFIDS, diabetes causing chemical

Please check the post on Headaches ....

You may be very interested in the chemical I've studied

It affects our military and our housewives, our pets & our babies

 

Hi Tonyjay,
after reading your post, I felt I had to reply.

As a new person on this group, I thought it would be helpful for me
to see if anyone else out there was suffering the same pains as me
and I hoped that we could all pool our research together to try and
find a cure.
I too suffer from cronic daily headaches with migraines thrown in
for good measure.
I have seen 4 different GP's and 2 Neurologists who were unable to
help so I am being refered to a Specialist in London (England)

What frustrates me is the lack of knowledge out there, and given by
health care professionals.
I go into my doctors surgery armed with sheets of paper and leaflets
for him to read before he either misdiagnoses me again (I have been
told that I have cluster migraines- which I clearly dont) or hands
me another prescription for a similar drug to what I have tried.

All I can say to everyone out there is make sure you arm yourself
with as much information as you can before you see ANY health care
specialist.

I have found keeping a food diary, sleep diary, weather diary, and
pain diary useful because it shows a more rounded picture then just
saying I feel fine today but not so good the day before.
Also by keeping these various diarys, you may be able to spot a
pattern of some sort (i.e when I have cheese on my pasta, and red
wine,followed by an orange, I get a migraine, or the pain in my head
moves side. The pain is especially bad when there is a storm)These
are just examples, but it illistrates the point very well. You may
not necessarily be allergic to any food, but the mix of 2 effects
your pain.
You may not see anything at all, but its a worth a try, and it shows
a health care professional that you have made an effort. It also
stops them wasting your time- like telling you to not eat certain
foods, etc

BE PREPARED. Go see your neurologist or GP knowing a little about
normal migraine treatment (epilepsy medication, anti depressents,
suppliments, etc). Understand how they will effect you and your
lifestyle. Epilepsy medication and anti depressents are common
treatments of migraine but they made me very sick, forgetful,
paranoid, and tired.
Also ask his opinion about treatments you have found out about. I
asked me Neurologist about using a feverfew nasal spray and showed
him evidence of the herb working on migraine patients. I am now
looking at importing some from the USA to try.

I sleep very badly, and I think that this either is the cause or has
an effect on my migraines and daily headache. When I go to bed
absolutely exhausted, I find that I enter REM sleep much faster,
need less shut eye, and have less of a headache than when I toss and
turn all night and still feel exhausted after 12 hours sleep.

I really hope that this rather long e-mail helps someone out there
and I hope that we can all help each other in finding knowledge and
sharing it as not one single person I have met (apart from online)
has any idea whats it like to be in pain every single minute of the
day. Its so easy to let the pain win, but I really hope we can all
support each other.

NEVER GIVE UP

I'm 30 and have had occasional headaches since childhood. When I was
17 I started getting migraine, probably the worst pain I have ever
had. In my 20s I would only get about 1-3 a year; they lasted for less
than ½ the day. I was able to sleep them off.

However, for the past 18 months I have had some form of chronic
headache.  The pain is behind my eyes and lately in my neck. I usually
don't get more than 3 days, if that, of not having a headache. Their
not migraines, but they never go away and nothing can touch them. I've
been to my doctor many times trying different "drug of the month", but
it's useless.

I'm going to start seeing a neurologist. I feel this is my last
resort. I find life with constant headaches beyond shitty. I know many
people have it worst than me, but I really don't enjoy life too much
anymore.

Good luck to all you and I hope your pain eases someday.

--- In chronicdailyheadache@yahoogroups.com, changeagent@w... wrote:
>
> Nicholas, glad to hear that you have found something that helps with
> your headaches. Some people find that a change in diet can help
> considerably.
>
Check out this interview with Aajouns Vonderplantiz, I read it three
times. Very interesting reading.
http://www.drbass.com/aajonus.html
   Nicholas Costanza

Nicholas, glad to hear that you have found something that helps with
your headaches. Some people find that a change in diet can help
considerably.

hello everybody
      I just joined this group to share what I have discovered about
migranes. I suffered with migraines over 5 years. I started drinking
raw goat milk back in febuary and I have not had a  headache since
then. What a relief!!!!!! Maybe some of you can try the same thing
also. I don't know if store brought milk will do the trick. It is kind
of hard to find raw milk in this day and age. I have a few web sites
saved in my favorites about raw milk. If the owner of this group will
let me post them I will. Just mostly information about raw milk. I
don't sell milk myself so I have nothing to gain with this information.
      Nicholas Costanza

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

Note: forwarded message attached.




____________________________________________________
Start your day with Yahoo! - make it your home page
http://www.yahoo.com/r/hs

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Hello!
Look at this healthcare information directory.
URL : http://www.hi-fiweb.com/users/anusha/
Cheers!
Amitha

Here is an information wesite about some of the medications you may
be interested in. I hope you will find it useful and it would help
you: http://www.buy-tramadol.biz

-    http://www.drugs-for-health.com is a US licensed pharmacy to buy
drugs at incredibly low prices. All drugs are FDA approved and we
ship by FedEx Overnight. A free online consultation is provided for
each customer.
You could try it! GOOD LUCK

So this must mean that you don't have the condition this med was
supposed to rule out?  I can't remember its name, I'm sorry.  I do
remember it had to do with pain focusing in one eye yet not a
cluster migraine.  The brain isn't totally fried yet.  *L*  Have you
tried holistic methods?  If I asked this already, please forgive
me.  I started typing without referring to previous posts.

My neuro is taking a 1 year leave of absence to study or something
so I have not idea what will go on with me.  I know I seem to have
moved out of my latest phase of more painful headaches.  Now I get
them frequently but they often don't need meds.

Jennifer

--- In chronicdailyheadache@yahoogroups.com, "Mike McTighe"
<mmctighe@a...> wrote:
> --- In chronicdailyheadache@yahoogroups.com, "Jennifer"
> <ny_elaine@y...> wrote:
> > So how is it working?
> >
> > Jennifer
> >
>
>
> Not well at all.
>
> I started taking it on Wednesday.  Friday was a particularly rough
> day, although I seem to have about one of those a week.  Saturday
was
> even worse and Sunday was as bad as anything I can remember in
recent
> years. So I discontinued the indomethacin.
>
> Monday was better. Tuesday was even better and today is a
> normal "light" day.  One of the potential side effects of this
stuff
> is headache and apparently it affected me that way.
>
> It was worth a try.  Unfortunately it not only didn't help, it
> exacerbated the problem.  Hopefully, others will have better
results.
>
> I'm sure there will be a look of shock and disbelief on my doc's
face
> when he learns that yet another med failed to relieve my pain.
>
> Mike

--- In chronicdailyheadache@yahoogroups.com, "Jennifer"
<ny_elaine@y...> wrote:
> So how is it working?
>
> Jennifer
>


Not well at all.

I started taking it on Wednesday.  Friday was a particularly rough
day, although I seem to have about one of those a week.  Saturday was
even worse and Sunday was as bad as anything I can remember in recent
years. So I discontinued the indomethacin.

Monday was better. Tuesday was even better and today is a
normal "light" day.  One of the potential side effects of this stuff
is headache and apparently it affected me that way.

It was worth a try.  Unfortunately it not only didn't help, it
exacerbated the problem.  Hopefully, others will have better results.

I'm sure there will be a look of shock and disbelief on my doc's face
when he learns that yet another med failed to relieve my pain.

Mike

So how is it working?

Jennifer

--- In chronicdailyheadache@yahoogroups.com, "Mike McTighe"
<mmctighe@a...> wrote:
> My doc prescribed another "drug of the month".  This time it's
> indomethacin, generic for indocin.  This is a NSAID frequently
used
> for joint pain and swelling.
>
> It also is given for a specific type of headache, chronic
paroxysmal
> hemicrania, that resembles cluster headaches but the pain is
centered
> in or around one eye.  The only certain diagnosis for this type
> headache is to take indomethacin.  If the pain goes away, that's
what
> you have.  If it doesn't, you don't.
>
> The med can be used long term.  The only major potential side
effect
> can be ulcers or bleeding in the GI system.
>
> I've only started this today so I can't tell if it's going to work
or
> not but thought others might be interested in learning about it.

My doc prescribed another "drug of the month".  This time it's
indomethacin, generic for indocin.  This is a NSAID frequently used
for joint pain and swelling.

It also is given for a specific type of headache, chronic paroxysmal
hemicrania, that resembles cluster headaches but the pain is centered
in or around one eye.  The only certain diagnosis for this type
headache is to take indomethacin.  If the pain goes away, that's what
you have.  If it doesn't, you don't.

The med can be used long term.  The only major potential side effect
can be ulcers or bleeding in the GI system.

I've only started this today so I can't tell if it's going to work or
not but thought others might be interested in learning about it.

I take zyrtc D for my allergies.  I'm allergic to trees, mold, dust
mites and cat dander.  I have two cats and live in a tree hugger
neighborhood.  *L*  Dust and mold are pretty much a given.  I think
you can't really truly get rid of them.  I am supposed to take shots
but they made me feel worse.  Of course, all of my testing and meds
are done with insurance.  If I didn't have it, I wouldn't do it so I
understand waiting for the insurance to kick in.  One office visit
would probably wipe me out entirely.  When I can't get the zyrtec, I
buy sudafed and benedryl and they help me through the bad days.

I used to live in a basement apartment with foundation leaks
(mold).  My roommate and I were constantly sick and I used to take
double the dose of my allergy med. plus double whatever pain
reliever I had at the time.  I have no doubt mold can cause chronic
headaches and migraines and I hope that once your insurance kicks
in, you can get something for it.  People without allergies could
never understand how badly they can affect you.

The sleep study might not be a bad idea.  Snoring is a big predictor
but I think people can have apnea even when they don't snore.  My
doc wants me tested too so I've read up on it a bit and its
surprising what it can do to a person over time.  If your future
insurance covers it, what can it hurt to let them wire you up for
sound and watch you?

Jennifer

--- In chronicdailyheadache@yahoogroups.com, Shari Clark
<slyclark24@y...> wrote:
> Jennifer,
>  I haven't officially been tested to know that the
> allergy headaches are from mold.....that is just what
> I believe causes them in spring and fall only. I don't
> have extra $ for testing and doctors at this point, so
> my philosophy is to tough them out. I was to the point
> for a long time that I was taking Advil every 4 hours
> for them and if I took them every 4 hours around the
> clock (meaning getting up in the night, usually twice)
> I could keep the headaches away. Then after a while,
> that became ineffective. My sister suggested they were
> rebound headaches, so I quit the Advil cold turkey for
> several months. That was hard and it didn't help in
> the least.
>  When my insurance from my job kicks in, I plan to get
> tested for allergies to foods and molds, pollens, etc.
>
>  I occasionally go through periods of very few
> headaches for a few weeks at a time, but they always
> come back. I usually have headaches 5-7 times a week.
> I used to keep track and got tired of it, so I quit.
> The headaches are constant as well. They don't go away
> in the evening. It makes it hard to sleep sometimes.
> It was suggested a while back by my doctor that I may
> have sleep apnea since I almost always have a headache
> every morning. But I was never tested and I don't
> snore much now. It was also suggested that I get a CAT
> scan. I decided against that.
>
>
> Shari
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com

Jennifer,
  I haven't officially been tested to know that the
allergy headaches are from mold.....that is just what
I believe causes them in spring and fall only. I don't
have extra $ for testing and doctors at this point, so
my philosophy is to tough them out. I was to the point
for a long time that I was taking Advil every 4 hours
for them and if I took them every 4 hours around the
clock (meaning getting up in the night, usually twice)
I could keep the headaches away. Then after a while,
that became ineffective. My sister suggested they were
rebound headaches, so I quit the Advil cold turkey for
several months. That was hard and it didn't help in
the least.
  When my insurance from my job kicks in, I plan to get
tested for allergies to foods and molds, pollens, etc.

  I occasionally go through periods of very few
headaches for a few weeks at a time, but they always
come back. I usually have headaches 5-7 times a week.
I used to keep track and got tired of it, so I quit.
The headaches are constant as well. They don't go away
in the evening. It makes it hard to sleep sometimes.
It was suggested a while back by my doctor that I may
have sleep apnea since I almost always have a headache
every morning. But I was never tested and I don't
snore much now. It was also suggested that I get a CAT
scan. I decided against that.


Shari

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

If the feverfew doesn't work, I will try some other herbs that can
help with headache.  There are quite a few.  There are some standard
brands that are well known for their dependability.  I try not to use
unknown brands.  I can't remember them right now, of course.  I have
to see them to recognize them.  I recognize the way the labels look.

Jennifer

--- In chronicdailyheadache@yahoogroups.com, changeagent@w... wrote:
> Jennifier
>
> Some people I know of have done very well of feverfew. Others haven't.
> It would be worth a try. Ask a few questions and fnd out if there is any
> difference between brands.
>
> ~~~The "conventional wisdom" and "accepted  facts"  are often dead
> wrong!~~~
>
> ----I'm high maintenance and worth every bloody cent!----
>
>
> http://community.webtv.net/changeagent/RaysPlace

Have you tried allergy shots since you know its the mold that causes
your headaches?

Jennifer

--- In chronicdailyheadache@yahoogroups.com, Shari Clark
<slyclark24@y...> wrote:
> Hi All,
>  It is great to see some activity on this board. My
> headaches have been bad again due to high mold counts.
> :(
>  I take Propranolol, a med. for high blood pressure
> and it is a migraine preventative and hasn't helped my
> headaches at all. But I would have to be on almost
> double the dosage twice a day to maybe see a benefit.
> At this point, spending money I don't have doesn't
> appeal to me.
>  I hope everyone has a great Labor Day weekend.
>
>
> Shari
>
>
>
> __________________________________
> Do you Yahoo!?
> Yahoo! Mail - 50x more storage than other providers!
> http://promotions.yahoo.com/new_mail

I take a high blood pressure med as well (aside from verapamil).  In
Dec. I suddenly went from average to high blood pressure.  It didn't
do anything for my headaches but since at the time I was complaining
of constant headaches, my doc believes they are fine and just
occasional migraine.  My headaches sort of go in phases.  I have my
usually frequent headaches but every now and then they bump up to
everyday for a few weeks.  Then they go back to just being frequent.
Just after those everyday phases, the frequency will go down for a few
weeks.  I have actually been having less frequent headaches here
lately.  At least I think that is the case.  I keep forgetting to
print out a headache diary so I can track them.  They seem less
frequent, though.  I don't know if I can attribute that the verapamil,
the feverfew or the way my headaches go in phases.  I have been
extremely stressed these last couple of weeks and it seems odd I would
have less frequent headaches when I'm under such stress.  Go figure.

I have started taking St. Johns Wort, too.  Supposed to help balance
mood.  Not sure if that affects seritonin but it seemed like something
I should try.  It'll be a while before it kicks in, though.  And it
doesn't cause that fog that anti-depressants tend to bring on.

Jen



--- In chronicdailyheadache@yahoogroups.com, "Mike McTighe"
<mmctighe@a...> wrote:
> I'm sorry.  Verapimil is a high blood pressure med.  I confused it
> with one of the anti-depressants.  I guess I've tried so many
> different meds over the years they're all starting to run together. I
> keep a list of those I've tried and it pretty much covers a typed
> page.
>
> I also take meds for my blood pressure (three of them) and haven't
> seen the headaches reduce at all as a result.  Although I do have
> excellent BP numbers these days.
>
> As for why the anti-depressants?  Beats me but they are frequently
> prescribed and seem to work quite well for some people.  Possibly
> because some headaches are tension related rather than migraine?
>
> You might give the verapimil a try.  It's mild without much in the
> way of side effects, although one of them is headache...  You can
> learn more at drugs.com.
>
> good luck