Well I don't know why I did not find this group earlier. Maybe it is because there appear to be no such groups like this in the UK. My story (problem!) is like...
Kathleen, I have had CDH for many years too. I am on Zoloft as a preventative. Lots of docs use the antidepressants for headache. It does not take the HA away...
John and Carolyn Dyess
jcdyess@...
Jun 26, 2003 3:07 am
98
Greetings: I have had CDH for about 13 years. I started out in my early twenties with migraines after an industrial injury. I had classic migraines to start...
Hi Kaylee, Sorry to tell you that 90% of all headaches have no known cause--I read that somewhere. Anyway I can relate to the thought of losing your mind when...
Hi Everybody- I just wanted to let you all know that I am going to be going to the ER tonight to (try) get a LP. I honestly feel like I am losing my mind when...
Hi I'm Sharon. I am 35 and have had headaches since I was 10 years old. In the past 3 1/2 years I have had maybe 5 headache-free days. I am now on 600 mg of...
Hi Everybody- Well, after waiting for almost 2 weeks, they finally have my surgery figured out! After that whole mess with my blood work and the possible...
Hospitals all have review boards. I suggest you file a complaint against the doctor with that board. I also suggest you file a complaint with the local...
forgot to say that my pressure is the highest it has ever been……..31/0 when I was DXed with PTC it was 29/0 320/302/145 ... From: Kaylee Sandstrom To:...
Hi Everybody- Well, last night I got so sick (passed out, vomiting, nausea, ect……), so I went to a hospital about 10 miles away (when I live 2 blocks from...
Jeremy, The symptoms you describe about your right nostril being stuffy and pain like a knife in the right eye are classic and well documented symptoms for ...
John and Carolyn Dyess
jcdyess@...
Apr 15, 2003 5:54 pm
89
Hi everybody, I'm new to this group and read a lot of these messages and I noticed that some of us have experienced the same kind of hellish headaches. I too...
Linda: I also get these but rather infrequently... thank God! Unfortunately there is no med that acts quickly enough to relieve the pain once it starts. I've...
Hi- Well, last night I ended up going to the ER about 1am because I just could not take this headache anymore. I have been throwing up, passing out, ect... ...
I've given up on the neurologist / headache specialist I've been seeing the last six months. Visits twice a week and many, many drugs to try. All I have to...
Hi, How did the indocin work for you? I take varapamil(for high blood pressure too) and celexa(anxiety), but they also help migraine. Regards, longell...
Hi Carolyn, Thanks so much for your reply! I also see a neurologist for migraine headache, and have been helped from some medication. The doctor my daughter...
Longell, I have a long history of daily headache. I personally prefer seeing a neurologist that is a headache specialist or an internist that is a headache ...
John and Carolyn Dyess
jcdyess@...
Dec 20, 2002 5:25 pm
80
Hi, My daughter has almost daily headaches. She is scheduled for an MRI, and if that comes back negative, her doctor has suggested she try a pain clinic for...
Here is a website that lists every concievable headache remedy and asks members to rate each. Very good information and seems unbiased. Worth checking out: ...
Carolyn (nice name - same as my wife's) I take Paxil. Don't know if it helps headache but now I no longer get claustrophobic in airplanes. The last ENT I saw,...
Rebecca: Thanks. The CT scan is fairly recent, third one in the past 10 years. I also have sleep apnea but was unable to use a CPAP. We tried two different...
Hi Mike, It does sound possibly sinus related, doesnt it, which is why I was surprised to hear nothing turned up on the CT. Was this done recently? Perhaps...
Hello Mike, I've had CDH for about 17 years. Unfortunately I don't have any great suggestions for you. I had sinus surgery about 10 years ago and it didn't ...
John and Carolyn Dyess
jcdyess@...
Nov 14, 2002 4:25 am
73
Rebecca: I've corresponded via e-mail with Dr. Tichenor (if you haven't already visited his web site, I have the link below) but he didn't offer much...
Rebecca: Thanks for the suggestion. I've always thought I had a long term sinus infection but several well respected ENT's have told me there's nothing there....
Hi Mike, Has anyone checked out your sinuses? Have they done a head CT for this specific investigation? There is the chance you may have a chronic infection...
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