Rebecca:
I've corresponded via e-mail with Dr. Tichenor (if you haven't already visited his web site, I have the link below) but he didn't offer much reassuarance after hearing what results I had, or didn't have, from the tests and ENT visits.
He said he would be happy to see me if I wanted to go to New York but really couldn't offer much encouragement. I'm still thinking about going. My wife and I are over due for a nice vacation...
Mike