Hi Group,
I have also had CDH for too long - almost 9 years now. I had a
daily headache for a few months prior to the pain starting on a
continual basis, but otherwise no real warning that this was coming.
As with many of you, I have visited numerous docs. had all the tests
and have not really found anything wrong as of yet. The meds of
course is an endless list of things that sometimes work and sometimes
don't. My doc continues to want to put me in a 'migraine' category,
however, there isn't much to support that diagnosis. I have had no
luck with the migraine specific drugs, nor do I tend to have any
other symptoms that come along with a classic migraine. My last
attempt to answer the questions around these headaches was to look
for a potential spinal fluid leak. I was seen at the Mayo Clinic by
a neurologist and neurosurgeon and had various tests to check for
leaks. They did not find anything however they told me that it is
still possible that I have a leak somewhere it's just too small for
them to detect with the current technology - comforting isn't it.
They have suggested that I have a epidural blood patch to try to
raise the pressure of the spinal fluid and see if that helps. Like
anything else, it's a try it and see approach. I am honestly, very
frustrated by all this, but can't give up trying either. I would be
interested to know if any of the rest of you have tried this
treatment or been checked for this potential problem. Something to
think about. Thanks for listening.

By the way, my name is Kristy.

--- In chronicdailyheadache@y..., John and Carolyn Dyess
<jcdyess@s...> wrote:
> Hi Debbie,
> Sorry it took me so long to respond. I have had CDH for 15 yrs. or
so. They
> came on gradually over a period of about 4-5 yrs. starting when I
was about
> 30. I'm 47 now. I've been on scores of different meds. Nothing
really great.
> I'm on Zoloft everyday and other migraine meds like Maxalt and
Imitrex when
> they get real bad. I still have a HA everyday, all the time. I can
take
> norgesic forte for pain or ergotamine/caffeine tabs. They work
sometimes for
> a while. I'm on disability and had to quit work as a graphic
designer 8 yrs.
> ago, because of the constant pain and depression that goes along
with it. I
> hate that. I wish I was still working. I get very tired easily and
generally
> feel really old most of the time.I've been to so many docs I quit
counting.
> Accupuncture, bio-feedback, hypnosis, sinus surgery, physical
therapy, botox
> injections....you name it, I've tried it. No luck.
> Carolyn
>
> > From: Debbie <dholden@q...>
> > Reply-To: chronicdailyheadache@y...
> > Date: Fri, 04 May 2001 19:58:47 -0400
> > To: chronicdailyheadache@y...
> > Subject: Re: [chronicdailyheadache] A plea....
> >
> > Hi Carolyn, my name is Debbie and I too suffer from CDH and have
since I was
> > about 3. I am now 51. The medication I take helps but I doubt
if they will
> > ever go away completely. Let me know how yours started. I'm new
to this
> > group and would like to "visit" with others like me. Thanks for
your time.
> > Debbie
> > ----- Original Message -----
> > From: John and Carolyn Dyess <jcdyess@s...>
> > To: <chronicdailyheadache@y...>
> > Sent: Saturday, April 28, 2001 10:25 PM
> > Subject: Re: [chronicdailyheadache] A plea....
> >
> >
> >> Hi Kim, It's me, Carolyn... from the other HA list. I haven't
been doing
> > all
> >> that great the last few months. Nothing new to add in respect to
HA help.
> >> I've been very tired, worn out. I feel like I don't have an
ounce of
> > energy.
> >> Just want to go to bed all the time.I've had CDH for years, with
no
> >> answers.Good to hear from you.
> >> Carolyn
> >>
> >>
> >>> From: Kim <kklessig@n...>
> >>> Reply-To: chronicdailyheadache@y...
> >>> Date: Fri, 27 Apr 2001 21:24:57 +0000
> >>> To: chronicdailyheadache@y...
> >>> Subject: [chronicdailyheadache] A plea....
> >>>
> >>> There have been no posts to this list for 9 months, is that
correct?
> >>> Is there a need to even have this group if no one cares to
> >>> participate? Has anyone new even tried to join?
> >>>
> >>> I am STILL suffering CDH and still waiting for answers,
suggestions,
> >>> all that good stuff.
> >>>
> >>> Owner/Moderator...please come forward and give us a statement!!!
> >>>
> >>> Kim
> >>> mom to Dakota and Jeb
> >>>
> >>>
> >>>
> >>>
> >>>
> >>> Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >>>
> >>>
> >>
> >>
> >>
> >>
> >>
> >> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >>
> >>
> >>
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >