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Hi, I think I may have found something that is beginning to help. I have been undergoing something called vacuum therapy - where they use cups connected to a master vacuum that are placed on accupressure points on the feet and hands. I have gone 6 times in 2 weeks for up to 4 hours each time. The clinic is called Christian Andersend Clinic in Copenhagen, Denmark. I have found this web site that explains how this works: http://www.vacuflex.com/vacuflex.aspx
I was also instructed not to eat any meat from animals with 4 legs, no wheat or oat products and no products from a cow (milk, cheese, etc.), except organic butter. Instead you can have 100% spelt products, barley or rye and goat's milk. Everything else is fine. They recommend doing this for 1 month. I have been on this diet for 2.5 weeks and have lost a couple pounds and do feel better.
Detoxing is also part of this process so perhaps that would help.
Good luck.
From: chronicdailyheadache@yahoogroups.com
Reply-To: "No Reply"<notify-dg-chronicdailyheadache@yahoogroups.com>
To: chronicdailyheadache@yahoogroups.com
Subject: [chronicdailyheadache] Digest Number 104
Date: 16 Feb 2007 11:29:58 -0000
Messages In This Digest (4 Messages)
Messages
- 1a.
CDH
Posted by: "claim55" howell@... claim55
Thu Feb 15, 2007 8:31 am (PST)
I didn't know so many people live like this everyday. Is there any
hope, has anyone found help? I have been this way since 1988,
everyday, day in day out. I have days that are worse, I know when the
next barimetric pressure change will occur and throwing up isn't far
behind, I have days that are better, you know a 3 or a 4. I can't
imagine what life would be like without a headache. I just figure
that it is my cross to bear, like arthritis in the head. I am
allergic to aspirin, demeral just knocks me out but the headache is
still there. I can take a pain pill that takes the edge off, but
never takes the pain away. People ask me, how do you live like this,
I ask: how else am I suppose to live? Drugged, going from doctor to
doctor with no help? I have tried chiropractic, bio-feedback,
accupunture, I quit smoking, tried quitting white foods, no MSG,
etc... and nothing has ever helped, not even a little. Dr says I may
just need to decide that this is just the way things are going to be
and live with it.
I sure do sound like a sad sack, I'm really not. I figure if I can't
beat this, I'll live with it, I seldom miss work, I do volunteer work,
you know how it is..........life goes on, it's my choice how I want to
live everyday. There are so many other people in this world who have
a far worse road to hoe than I do. But doesn't anyone know how to
improve life as I know it?
Thanks in advance, for just reading all this junk, I wouldn't wish CHD
on my worse enemy, so I am so sorry for you, god bless you and keep
you safe.- 1b.
Re: CDH
Posted by: "David James" kjames11@... kaninamarie
Thu Feb 15, 2007 9:32 am (PST)
First of all. find a new Doctor! No doctor should ever say that! I am
hopeful that this is not how the rest of my life is going to be. There is
no way it can be like this! I will commit suicide before I live the rest of
my life in pain.
I just went to a new neurologist. I really like him already! He put me on
a steroid to calm the nerves in my spine that goes up through my head. He
also agreed that me being on Cymbalta should be helpful. He scheduled me
for another MRI because my headaches have gotten worse over the past couple
of years and my mom had a ruptured aneurysm a few years back. I am also
going to physical therapy to help all the tension in my neck and back. I
think its helping but I think it will take a lot of time because my muscles
are so super weak!
There are people who have it worse then we do but that doesn't mean that we
should have to accept a life like this. Just because other people's
illnesses are not "invisible" like our head pain doesn't mean we don't
deserve treatment, answers and care. Keep trying to find something. There
has to be a cause for the pain. Its just finding out what it is.
Kanina
_____
From: chronicdailyheadache@yahoogroups. com
[mailto:chronicdailyheadache@yahoogroups. ] On Behalf Of claim55com
Sent: Thursday, February 15, 2007 11:24 AM
To: chronicdailyheadache@yahoogroups. com
Subject: [chronicdailyheadache] CDH
I didn't know so many people live like this everyday. Is there any
hope, has anyone found help? I have been this way since 1988,
everyday, day in day out. I have days that are worse, I know when the
next barimetric pressure change will occur and throwing up isn't far
behind, I have days that are better, you know a 3 or a 4. I can't
imagine what life would be like without a headache. I just figure
that it is my cross to bear, like arthritis in the head. I am
allergic to aspirin, demeral just knocks me out but the headache is
still there. I can take a pain pill that takes the edge off, but
never takes the pain away. People ask me, how do you live like this,
I ask: how else am I suppose to live? Drugged, going from doctor to
doctor with no help? I have tried chiropractic, bio-feedback,
accupunture, I quit smoking, tried quitting white foods, no MSG,
etc... and nothing has ever helped, not even a little. Dr says I may
just need to decide that this is just the way things are going to be
and live with it.
I sure do sound like a sad sack, I'm really not. I figure if I can't
beat this, I'll live with it, I seldom miss work, I do volunteer work,
you know how it is..........life goes on, it's my choice how I want to
live everyday. There are so many other people in this world who have
a far worse road to hoe than I do. But doesn't anyone know how to
improve life as I know it?
Thanks in advance, for just reading all this junk, I wouldn't wish CHD
on my worse enemy, so I am so sorry for you, god bless you and keep
you safe.- 1c.
Re: CDH
Posted by: "claim55" howell@... claim55
Thu Feb 15, 2007 9:47 am (PST)
Please let me know if the steriod works, even a little bit. I went
to a neurologist once and he suggested I go to Chicago to a headache
clinic, well I never went back, so my experience wasn't that great.
I'd go find a new one, if I just knew what to look for. Please keep
in touch. Thanks for your encouragement.
Teresa
--- In chronicdailyheadache@yahoogroups. , "David James"com
<kjames11@...> wrote:
>
> First of all. find a new Doctor! No doctor should ever say that!
I am
> hopeful that this is not how the rest of my life is going to be.
There is
> no way it can be like this! I will commit suicide before I live
the rest of
> my life in pain.
>
> I just went to a new neurologist. I really like him already! He
put me on
> a steroid to calm the nerves in my spine that goes up through my
head. He
> also agreed that me being on Cymbalta should be helpful. He
scheduled me
> for another MRI because my headaches have gotten worse over the
past couple
> of years and my mom had a ruptured aneurysm a few years back. I
am also
> going to physical therapy to help all the tension in my neck and
back. I
> think its helping but I think it will take a lot of time because
my muscles
> are so super weak!
>
> There are people who have it worse then we do but that doesn't
mean that we
> should have to accept a life like this. Just because other
people's
> illnesses are not "invisible" like our head pain doesn't mean we
don't
> deserve treatment, answers and care. Keep trying to find
something. There
> has to be a cause for the pain. Its just finding out what it is.
>
> Kanina
>
>
>
> _____
>
> From: chronicdailyheadache@yahoogroups. com
> [mailto:chronicdailyheadache@yahoogroups. ] On Behalf Of claim55com
> Sent: Thursday, February 15, 2007 11:24 AM
> To: chronicdailyheadache@yahoogroups. com
> Subject: [chronicdailyheadache] CDH
>
>
>
> I didn't know so many people live like this everyday. Is there any
> hope, has anyone found help? I have been this way since 1988,
> everyday, day in day out. I have days that are worse, I know when
the
> next barimetric pressure change will occur and throwing up isn't
far
> behind, I have days that are better, you know a 3 or a 4. I can't
> imagine what life would be like without a headache. I just figure
> that it is my cross to bear, like arthritis in the head. I am
> allergic to aspirin, demeral just knocks me out but the headache
is
> still there. I can take a pain pill that takes the edge off, but
> never takes the pain away. People ask me, how do you live like
this,
> I ask: how else am I suppose to live? Drugged, going from doctor
to
> doctor with no help? I have tried chiropractic, bio-feedback,
> accupunture, I quit smoking, tried quitting white foods, no MSG,
> etc... and nothing has ever helped, not even a little. Dr says I
may
> just need to decide that this is just the way things are going to
be
> and live with it.
> I sure do sound like a sad sack, I'm really not. I figure if I
can't
> beat this, I'll live with it, I seldom miss work, I do volunteer
work,
> you know how it is..........life goes on, it's my choice how I
want to
> live everyday. There are so many other people in this world who
have
> a far worse road to hoe than I do. But doesn't anyone know how to
> improve life as I know it?
> Thanks in advance, for just reading all this junk, I wouldn't wish
CHD
> on my worse enemy, so I am so sorry for you, god bless you and
keep
> you safe.
>- 1d.
Re: CDH
Posted by: "David James" kjames11@... kaninamarie
Thu Feb 15, 2007 12:42 pm (PST)
Hi Teresa,
Something seems to be helping. I am not sure if it’s the cymbalta or the
steroid. My headaches usually start coming on midmorning and only get worse
as the day goes on. Some times I do wake up with headaches though. But
since starting the new meds I don’t have such intense pain in the evening.
As it isn’t a cure yet… it is a little better. So at least I am thankful
for that. I was also referred to a migraine clinic last year but my
insurance wouldn’t cover it. I was very disappointed as they say that
people get 95% relief with out meds.
The steroid treatment was only a week long. Its called Decadron 4 mg’s. 1
tab 2x a day for 2 days. Then 1 tab 1x a day for 2 days then ½ tab for 2
days. Tomorrow I will start the ½ tab. Its hard to pin point just was is
giving the little bit of relief as I started the cymbalta about 3 weeks ago…
and I think it take about that long for the levels to build in your body. I
also started the physical therapy about 2 weeks ago.
I have seen a few different neurologists. My husband is military so we move
every 2 years. I asked my GP if he knew of a really good neurologist. So
ask around with your other Dr.’s. Also when I go to the Dr. I always tell
them what treatment I have tried and all that failed. I tell them out
treatments that I have heard about. I suggest meds I have heard about and
really try to be a part of as much as I can. I’ve also noticed that I like
the younger neurologists. They seems to still be fresh and eager to find
treatments that really work.
We’ll keep in touch :o) Its nice to have other people to relate to. There
is another women on here named Marie that will be trying botox in March.
I’ve heard this seems to be a promising treatment… but I don’t think my
insurance would cover it… and I’m so needle phobic! LOL
Kanina
_____
From: chronicdailyheadache@yahoogroups. com
[mailto:chronicdailyheadache@yahoogroups. ] On Behalf Of claim55com
Sent: Thursday, February 15, 2007 12:46 PM
To: chronicdailyheadache@yahoogroups. com
Subject: [chronicdailyheadache] Re: CDH
Please let me know if the steriod works, even a little bit. I went
to a neurologist once and he suggested I go to Chicago to a headache
clinic, well I never went back, so my experience wasn't that great.
I'd go find a new one, if I just knew what to look for. Please keep
in touch. Thanks for your encouragement.
Teresa
--- In chronicdailyheadach <mailto:chronicdailyheadache% 40yahoogroups. com>
e@yahoogroups.com , "David James"
<kjames11@...> wrote:
>
> First of all. find a new Doctor! No doctor should ever say that!
I am
> hopeful that this is not how the rest of my life is going to be.
There is
> no way it can be like this! I will commit suicide before I live
the rest of
> my life in pain.
>
> I just went to a new neurologist. I really like him already! He
put me on
> a steroid to calm the nerves in my spine that goes up through my
head. He
> also agreed that me being on Cymbalta should be helpful. He
scheduled me
> for another MRI because my headaches have gotten worse over the
past couple
> of years and my mom had a ruptured aneurysm a few years back. I
am also
> going to physical therapy to help all the tension in my neck and
back. I
> think its helping but I think it will take a lot of time because
my muscles
> are so super weak!
>
> There are people who have it worse then we do but that doesn't
mean that we
> should have to accept a life like this. Just because other
people's
> illnesses are not "invisible" like our head pain doesn't mean we
don't
> deserve treatment, answers and care. Keep trying to find
something. There
> has to be a cause for the pain. Its just finding out what it is.
>
> Kanina
>
>
>
> _____
>
> From: chronicdailyheadach <mailto:chronicdailyheadache% 40yahoogroups. com>
e@yahoogroups.com
> [mailto:chronicdailyheadach
<mailto:chronicdailyheadache% 40yahoogroups. com> e@yahoogroups. com ] On Behalf
Of claim55
> Sent: Thursday, February 15, 2007 11:24 AM
> To: chronicdailyheadach <mailto:chronicdailyheadache% 40yahoogroups. com>
e@yahoogroups.com
> Subject: [chronicdailyheadache] CDH
>
>
>
> I didn't know so many people live like this everyday. Is there any
> hope, has anyone found help? I have been this way since 1988,
> everyday, day in day out. I have days that are worse, I know when
the
> next barimetric pressure change will occur and throwing up isn't
far
> behind, I have days that are better, you know a 3 or a 4. I can't
> imagine what life would be like without a headache. I just figure
> that it is my cross to bear, like arthritis in the head. I am
> allergic to aspirin, demeral just knocks me out but the headache
is
> still there. I can take a pain pill that takes the edge off, but
> never takes the pain away. People ask me, how do you live like
this,
> I ask: how else am I suppose to live? Drugged, going from doctor
to
> doctor with no help? I have tried chiropractic, bio-feedback,
> accupunture, I quit smoking, tried quitting white foods, no MSG,
> etc... and nothing has ever helped, not even a little. Dr says I
may
> just need to decide that this is just the way things are going to
be
> and live with it.
> I sure do sound like a sad sack, I'm really not. I figure if I
can't
> beat this, I'll live with it, I seldom miss work, I do volunteer
work,
> you know how it is..........life goes on, it's my choice how I
want to
> live everyday. There are so many other people in this world who
have
> a far worse road to hoe than I do. But doesn't anyone know how to
> improve life as I know it?
> Thanks in advance, for just reading all this junk, I wouldn't wish
CHD
> on my worse enemy, so I am so sorry for you, god bless you and
keep
> you safe.
>Need to Reply?Click one of the "Reply" links to respond to a specific message in the Daily Digest.
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