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Hi Teresa,
Something seems to be helping. I am not
sure if it’s the cymbalta or the steroid. My headaches usually start
coming on midmorning and only get worse as the day goes on. Some times I do
wake up with headaches though. But since starting the new meds I don’t
have such intense pain in the evening. As it isn’t a cure yet… it
is a little better. So at least I am thankful for that. I was also referred
to a migraine clinic last year but my insurance wouldn’t cover it. I was
very disappointed as they say that people get 95% relief with out meds.
The steroid treatment was only a week
long. Its called Decadron 4 mg’s. 1 tab 2x a day for 2 days. Then 1
tab 1x a day for 2 days then ½ tab for 2 days. Tomorrow I will start the ½ tab.
Its hard to pin point just was is giving the little bit of relief as I started
the cymbalta about 3 weeks ago… and I think it take about that long for
the levels to build in your body. I also started the physical therapy about 2
weeks ago.
I have seen a few different neurologists.
My husband is military so we move every 2 years. I asked my GP if he knew of a
really good neurologist. So ask around with your other Dr.’s. Also when
I go to the Dr. I always tell them what treatment I have tried and all that
failed. I tell them out treatments that I have heard about. I suggest meds I
have heard about and really try to be a part of as much as I can. I’ve
also noticed that I like the younger neurologists. They seems to still be
fresh and eager to find treatments that really work.
We’ll keep in touch :o) Its nice
to have other people to relate to. There is another women on here named Marie
that will be trying botox in March. I’ve heard this seems to be a promising
treatment… but I don’t think my insurance would cover it… and
I’m so needle phobic! LOL
Kanina
From:
Sent: Thursday, February 15, 2007
12:46 PM
To:
Subject: [chronicdailyheadache]
Re: CDH
Please let me know if the steriod works, even a little
bit. I went
to a neurologist once and he suggested I go to
clinic, well I never went back, so my experience wasn't that great.
I'd go find a new one, if I just knew what to look for. Please keep
in touch. Thanks for your encouragement.
Teresa
--- In chronicdailyheadach
<kjames11@..
>
> First of all. find a new Doctor! No doctor should ever say that!
I am
> hopeful that this is not how the rest of my life is going to be.
There is
> no way it can be like this! I will commit suicide before I live
the rest of
> my life in pain.
>
> I just went to a new neurologist. I really like him already! He
put me on
> a steroid to calm the nerves in my spine that goes up through my
head. He
> also agreed that me being on Cymbalta should be helpful. He
scheduled me
> for another MRI because my headaches have gotten worse over the
past couple
> of years and my mom had a ruptured aneurysm a few years back. I
am also
> going to physical therapy to help all the tension in my neck and
back. I
> think its helping but I think it will take a lot of time because
my muscles
> are so super weak!
>
> There are people who have it worse then we do but that doesn't
mean that we
> should have to accept a life like this. Just because other
people's
> illnesses are not "invisible" like our head pain doesn't mean we
don't
> deserve treatment, answers and care. Keep trying to find
something. There
> has to be a cause for the pain. Its just finding out what it is.
>
> Kanina
>
>
>
> _____
>
> From: chronicdailyheadach
> [mailto:chronicdailyheadach
> Sent: Thursday, February 15, 2007 11:24 AM
> To: chronicdailyheadach
> Subject: [chronicdailyheadac
>
>
>
> I didn't know so many people live like this everyday. Is there any
> hope, has anyone found help? I have been this way since 1988,
> everyday, day in day out. I have days that are worse, I know when
the
> next barimetric pressure change will occur and throwing up isn't
far
> behind, I have days that are better, you know a 3 or a 4. I can't
> imagine what life would be like without a headache. I just figure
> that it is my cross to bear, like arthritis in the head. I am
> allergic to aspirin, demeral just knocks me out but the headache
is
> still there. I can take a pain pill that takes the edge off, but
> never takes the pain away. People ask me, how do you live like
this,
> I ask: how else am I suppose to live? Drugged, going from doctor
to
> doctor with no help? I have tried chiropractic, bio-feedback,
> accupunture, I quit smoking, tried quitting white foods, no MSG,
> etc... and nothing has ever helped, not even a little. Dr says I
may
> just need to decide that this is just the way things are going to
be
> and live with it.
> I sure do sound like a sad sack, I'm really not. I figure if I
can't
> beat this, I'll live with it, I seldom miss work, I do volunteer
work,
> you know how it is..........
want to
> live everyday. There are so many other people in this world who
have
> a far worse road to hoe than I do. But doesn't anyone know how to
> improve life as I know it?
> Thanks in advance, for just reading all this junk, I wouldn't wish
CHD
> on my worse enemy, so I am so sorry for you, god bless you and
keep
> you safe.
>
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