Dear Neil,
So sorry to hear you have been suffering so much. You have several health
problems going on that take good management by a good doctor. Is there any
Headache Clinic or Headache Specialist in the UK? That sounds like what you
may need. Some of the drugs you mentioned I have never heard of. I have
daily chronic headache everyday for 15 years. Mostly it is a medium
intensity headache that sometimes gets severe. Have you tried any of the
Migraine Meds like Imitrex, Maxalt, Zomig or Amerge? These might not be good
for you if you have high blood pressure though. Has anyone ever mentioned
you might have cluster headaches? The pain in the eye is sometimes
associated with cluster headaches. Sometimes they use pure oxygen to treat
cluster headache. One drug I take for pain is Norgesic Forte. It brings the
pain down some although it doesn't wipe it out. Some days it really helps
though. The National Headache Foundation here in the US has a website that
can be helpful. I also get their newsletter which is informative. They have
a list of docs that are members and help you find one near you but I'm not
sure about the UK. I know what you mean about the work situation because I
loved my job I had for 12 years but finally had to quit and go on disability
because of the headaches. I hope you can find a good doc you like and is
knowledgeable and sympathetic to your case. This battle with daily headache
is exhausting and depressing. I hope you find some relief soon.
Carolyn
> From: "Try a e appear to be no such groups like this in the UK. My
> story (problem!) is like this;
> Nearly 18 years ago I was on holiday with my parents. We were
> staying in a large (by UK standards) caravan on a good site. My
> parents were in the club when I went back to the caravan. I bent down
> to take off my shoes and, unfortunately for me, banged my head very
> hard on a solid wooden shelf as I stood back up. I was very dazed and
> had to stumble to sit down. When my parents returned (1 to 2 hours
> later) they found me still sitting with my head in my hands. I did
> not go to hospital, but took paracetamol for a couple of days.
> However I have a nice straight grove in my head, which is still
> there. When we got back to our home I visited my local Doctor (GP)
> who prescribed me Co-Dydramol and Ibuprofen. I took this for nearly 4
> years, through a University Degree, which I graduated from. I had
> regular visits (6 monthly) to my GP with the same medication as
> always, also with 2 CT Scans - nothing found. It took me to suggest
> to him that I have Physiotherapy to my neck. This appeared to work
> for around 6 months then they came back - only worse. Physiotherapy
> this time did not work. I have moved house, married, and changed
> jobs, all with headaches. My new GP has tried me on all sorts of
> medications - Amitriptyline, Indocid, Co-Dydramol, Diclofenac Sodium,
> and others, all with no change. Since I have been on so many drugs
> now I have problems with my erections (Erectile Dysfunction) so am
> now on Viagra (at 34 years old). I have had 2 CT-Scans again with
> nothing found. The GP says I have - Tension Headaches, Depression,
> now Sinus Headaches. I have High Blood Pressure which is under
> control with Istin and Enalapril Maleate. My Head-Pain is constantly
> low to moderate however I now get bad hot sweats after all food, and
> when my head gets BAD its a powerful pain in the left side of my
> head. This pain is sometimes so great that it throbs so much that my
> eyes start to throb with the pain. Nothing at all helps when its like
> that. Just now its a very dull pressure throb at the back right of my
> head. I work, although my pain has reduced my output in my job quite
> a bit. I do not know what to do. Lots of the messages in here talk
> about drugs that are not available over here. PLEASE, PLEASE, PLEASE,
> IF ANYBODY CAN HELP, I AM HERE, AND NOT GOING ANYWHERE FAST. Reply
> direct if you like, to g1ovh at hotmail dot com where I shall try and
> check e-mails weekly - pain forgiving. By the way its taken nearly 3
> hours to type this so hope you are not bored. Thanks for a great
> group. Neil.
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