I just received this update from Trina a mother who is currently in China with her son Brandon who is receiving treatment for ONH.  She has given me permission to share this wonderful news with you.

K

Hi Kirshner,

I just wanted to email you & let you know that we are seeing changes in Brandon. We started using letters today. I typed a letter on Microsoft word (started off at 300 pt until he learned the letters). He learned what A-L looked like today FOR THE FIRST TIME!! Then after I asked him randomly what each letter was, I changed it to 200 pt. He was 2 ft away & he could see what the letters were. I changed it to 72 pt & he had to put his face up against the screen but he could still see it. Our goal : learn the alphabet & numbers 1-9 by the time we go home!! Yeah Brandon!! Oh and not a single headache or backache this time. He had a great experience.

Talk to you soon!

 

We're ready to shout it from the rooftops! Today I went even smaller & he can see 28 pt. but not 24 pt. So there's our marker for later. If he can see 24 pt later then we'll know that he's improved even more. We are also up to the letter Q!!

Trina