I no longer work for Beike thus I can not speak as a repersentative
of Beike. I can thus only speak about my own experiences.
Regarding long term follow up I can tell you that I myself have tried
to carry out long term follow up on those who have recieved treatment
to follow thier progress and it is extremly difficult to get people
to respond to emails asking for detailed information and just about
impossible to get folks to go in and have follow up testing done.
You might think it would "take a little work" but that is far from
the truth as in reality it takes a ton of time and effort to collect
follow up data.
K

--- In chinastemcells@yahoogroups.com, "James Juracka"
<j.juracka@...> wrote:
>
> Hi Kirshner
>
> I was wondering the same thing as Elizabeth - Beike seems to
totally neglect longer term follow-up with patients - it would take a
little work, but would be crucial to furthering industry knowledge
and increase Beike's credibility. So many more children could be
helped if there was a better clinical approach taken, with analyses
submitted for independent review.
>
> It would be great to see a response from you to the group - and
please don't take this as critical - we want to become customers of
Beike, but need more than 1-2 month web blogs to be convinced.
>
> Many thanks
>
> James
>
>
>
> Re: BBC NEWS
> Posted by: "Elizabeth Somogyi" eksomogyi@... eksomogyi
> Thu Jan 29, 2009 6:35 pm (PST)
> I am wondering, other than all the testimonies that your company
continues to put out, why isn't any effort to actually collect and
publicize scientific patient data to prove the efficacy of the
treatment you are offering? I have not seen any such data to back up
the claims, other than what some of the patients have to say. By
searching the Internet, the comments about the current treatment is
all over the place.
>
> I would really appreciate an honest response to address this issue,
which I believe from more than just me.
>
> Kindly,
> Elizabeth
>