Thought some of you may be interested in this.. Have a great pain free day! Paula Subject: [ChiariConnectionInternational] Announcement: Washington DC Area...
Hello everyone~ Hope you all are feeling well & pain free! I wanted to pass on some information about last night's CSF meeting at the Doctor's Community...
Hello everyone, I came across this online. If you purchase so many tombstone pizza's they will pay your bills, $5, $10, $15. I know every little bit counts. ...
Hi all... I have been lurking quietly watching in on the group since before my decompression surgery which was on March 30th (almost exactly 4 months ago). I...
Hello Scott,  First of all, don't panic. I think it's probably true that more decompression patients notice a return of symptoms, than those who find they...
Hi, I had decompression and detethering. Both did really well. One year post-op I noticed that some symptoms that I used to have would pop up from...
fyi... i have a substantial pseudomeningocele, have had it for 3 years now. Mine was caused by my body's inability to heal quick enough. I was later dx with...
Hello, I am passing this on. I know several of you may be interested. Have a great pain free day! Paula Hi all. Hope everyone is having a pain free day. I...
Hello everyone, As you know Awareness month is right around the corner. Our Maryland Proclamation is about to be signed by the Governor. I just spoke to Chris...
Kellie is coming into town for the Chairi meeting and is looking for a campground near Leesburg, does anyone have any recommendation. I only know of a few in...
Hi Everyone, Once again I am participating in the walk to raise money for autism research on October 10, 2009 and would greatly appreciate your donations....
Michelle Turnof
mturnof@...
Sep 16, 2009 1:48 am
398
Is there one near us? If so, who is all doing the Walk Across America on Sept 26th? Queli...
I found this on the net and just wanted to share w/my fellow chiarians! May you all have a pain free day! A Chiari and Syringo Prayer I ask the Lord to help...
Hello- I was wondering if anyone was interested in getting together. I have yet to meet anyone in person in our area w/CM or SM. Please let me know and I will...
ME too!! I cant wait to get the chance to go to another gettogether. I know a lot of people are headed to VA for the Chiari walk. I promised a young Chiarian I...
I am going to miss the walk this year I am bummed but it is my son's last campout with Cub scouts. No EDS here that I know of and no one has contacted me with...
I have developed trigeminal neuralgia (TN), which causes pain along the left side of my face. Is this common with ACM? Anyone hear of it before? -- Take care...
Is anyone interested in getting together for lunch around 1 or 1:30 on Sunday the 15th? Depending on who's interested, we can choose a place that's neutral...
I requested to be removed from the emal, somehow I am back on, could u please remove me again. Jan I requested to be removed from the emal, somehow I am back...
Amanda,  Are you still interested in getting together on Sunday? I have two others from facebook that can do Sunday. I would like to ask if we can...
Hey everyone, We're going to go with Frederick as the meeting place this time...since I've got some definites from there. Looks like maybe 4 of us so far...? ...
Hello Everybody, Â I haven't gotten to any of these get togethers yet. Now might be a really good time for me to get together and talk with some of you as I...
Amanda Frederick is about 2-1/2 hours from me. I don't drive that far by myself. the Columbia or Glenn Burnie area is about my limit. My husband has church...
Hello Everybody, Hope everyone is doing well. I don't have the time to make a LONG post right now as I am at work but I was wondering if anybody has any...
