Hello everyone, You all know this is a very laid back group. I don't police things like other moderators do. But we do NOT allow any members (myself ...
My active, relatively pain free, 6 year old son just received his 2nd MRI on May 7 (the 2nd was to compare the sizes of the syrinx after a couple of months and...
Hi Janice, First, let me ask...has your son been EXHAUSTIVELY tested for a hidden tethered cord? I strongly believe that all people with chiari have SOME form...
Thank again for the response. This is a wonderful response. I'll respond to last one first. His MRI shows that where the bone is pressing against the area...
If you'd like my input on Hopkins, send me an email. Candice in Baltimore ... From: HT <hpsundance@...> To: chiarimalformationmd@yahoogroups.com Sent:...
Well, about opening the dura.... It's a double edged sword. If they DO open the dura, they can cauterize the tonsils...which makes more room for flow. But it...
Though it is good to know these things before surgery, sometimes the doctor has to make a judgment call at the time of surgery about what needs to be done. ...
I would like to add my two cents here too. You asked is there is risk that it will bring on other problems (headaches and other pains)? Let me tell you what...
Also, let me add..... I did a little research on shunts and meningitis. I can't remember WHERE the link was...but I read that you are 8 times more likely to...
He got meningitis BEFORE he got the shunt. On Fri, May 9, 2008 at 4:45 PM, Amanda Baker <amandamariebaker@...> ... -- To read all about Chiari, go to...
I see. Well...I would think the same holds true for ANY kind of surgery (i.e. decompression, shunt, or any surgery that compromises the dura). Having it in a...
HOPE THIS HELPS! JUST FOUND THIS IS COPIED FROM THE PAGE AND LINK BELOW WITH MORE DETAILS! Through the generosity of the Bobby Jones Open, college scholarships...
Hi everyone, I'd like to schedule a group BBQ for Friday July 18th starting at 3:30pm. This will require some people to get off work early (myself included)....
That would work for me. I just got done with my chiari and occult tethered cord surgeries, so it would be great to see/meet everyone.  Stephen ... From:...
hi there,   we have never met, but I have emailed you. My daughter Megan is the one with chiari. We will be out of town that weekend. We would love...
Yes...kids...family....bring the grandparents...lol. I figure, we'll just have hot dogs, burgers, potato salad, etc. Your typical bbq food. It's not very...
Hey folks; Just wanted to introduce myself. I'm a soon to be 36 yr. old. I'm a single mother of 2 boys ages 14 and 4. I reside in Rockville with both of my...
Welcome. We have a two members in Rockville, one in Hagerstown, and the others are scattered around.  I am curious who you work with locally?  I see Dr....
I would love to come. Can my daughter's come as well? I will be coming from upper montgomery co/frederick co line, if anyone needs a ride. Blessings, Ann...
yes, absolutely. You can bring any family members you like...the same goes for good friends.  Again, there will be plenty of food, drink and shade (we have...
