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chiarigroup_malformation · World Wide Arnold Chiari Malformation & Related Disorders Support Group

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Activity within 7 days:

10 New Messages - New Questions

Description

New Look !

"Private Chairi Chat Room Coming to the group soon"

Debra is currently making the chat room.

Last Updated May 14, 2008

Welcome To The Chiari Group Home Page !

And yes Home it is here!

I had Decompression Surgery on April 3, 2003 for Arnold Chiari Malformation, 20 mm herniated, no syrinx,I had a laminectomy of the c1, c2, and c3,I have a bovine graft. (Lining Of A Cow's Heart)

Before surgery I suffered with Blepharospasms. The BEB is not as bad since my decompression surgery. I still get botox injextions. Symptoms that went away after surgery are: Sleep Apnea,Tinnitus, Syncope (Different Than Passing Out), Paraathesia, Apnea, Aspirate, Ataxia, Atrophy, Basilar Invagination, Clonus, Dysesthesia (sensation of pins needles varies in differant parts of body in different poeple), Dysequilibrium (stumbling to one side), Dysphagia (difficulty in swallowing), Ectopia and More...

Anyhow, most of my symptoms are gone. I made this group as I want to help you understand Chiari and to let you know you are not alone.

There are caregivers in the group, such as parents, sisters, brothers. bestfriends,nieces/nephews spouses, cousins and more. Also, this group is for people who have Spina Bifida, Migraines, Lupus, MS, Chiari 0 Hydrocephalus, PTC, Buldging/Herniated Disc.

Below This Page There Is A Link Called "Related Links" This Link Will Take You To My Web Site I Created Regarding Chiari. Please Take A Look.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 23 23 23 62 24
2007 88 95 75 34 8 16 12 9 4 13 57 37
2006 80 63 63 45 11 41 28 39 41 80 249 90
2005 116 90 105 105 73 79 45 58 55 77 80 63
2004 219 251 243 367 254 205 295 222 152 105 156 142
2003 31 209 264 155
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