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chILDparentssupport · chILD Parents Support Group
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Folder A chILD center hospital near you
links of hospitals dealing with chILD
 
Folder Air travel
useful links concerning travel by air....
 
Folder Apparel,mugs,cards and more featuring designs by chILD children
funds will go to help families
 
Folder Family Resource sites
links for state by state family resources for children with disabilities and for siblings too
 
Folder God's Little Angles Haiti
A great place to donate your unused medical supplies you no longer need.
 
Folder Helpful Medical Supplies
posey products, masks, syringes and more
 
Folder Links on ILD
Links to a few generic articles on ILD
 
Folder Lung Sounds
 
Folder Medical Groups/Labs
Place for the Genetic Testing
 
Folder Nutritional product sites
products to add calories, vitamin products and like items
 
Folder O2 links
links for o2 education, products, and more
 
Folder Occupation Therapy sites
 
Folder Related Organizations
Other Lung Organizations
 
Folder Sleeping Products
elevate the child head for better breathing and reflux problems
 
Folder Specific chILD diseases
support groups for the specific chILD diseases (NEHI, Surf Defs, PIG). The same parents are on this site too......these are just places to ask specific disease related questions.
 
Folder Transition information
A key in any disease is to get teens to “take ownership” of their condition so they can manage their health care in college and young adulthood. The info inside I hope is helpful.
 
Folder WDW with special needs
Walt Disney World special needs links
 
American Sign Language
online video dictionary of ASL ...great for children dealing with speach issues due to feeding tubes or developmental delays
http://www.aslpro.com
jenn_tony_ro...
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Body Mass Calculator
provides a way to calculate body mass for children....which the doctors are saying is more important than just weight gain
http://www.cdc.gov/nccdphp/dnpa/bmi/index.htm
jenn_tony_ro...
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Children's Interstital Lung Disease Article
Decent, general article on ILD - 2006
http://www.emedicine.com/ped/topic1950.htm
jeans446
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Emergency & Distaster Planning
papers to have on file in case of an emergency (English and Spanish versions)
http://www.dshs.state.tx.us/cshcn/pdf/emer_plan.pdf
jenn_tony_ro...
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Lung Biopsy Article
Good description of lung biopsy surgery
http://www.webmd.com/a-to-z-guides/Lung-Biopsy
jenn_tony_ro...
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Pediatric Pulse Oximeters
Portable finger oximeters in USA
http://www.devonsuperstore.com/SearchResult.aspx?CategoryID=58
tennesseechic25
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Pollen counts
gives you the daily pollen counts for your zip code area
http://www.pollen.com
jenn_tony_ro...
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Power Point Viewer
free power point viewer so you can view the power point presentations should you not have power point on your computer
http://www.microsoft.com/downloads/details.aspx?FamilyId=428D5727-43AB-4F24-90B7-A94784AF71A4&displaylang=en
jenn_tony_ro...
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irs charitable organization search link
Website to obtain information on non-profits
http://apps.irs.gov/app/pub78
luziettir
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