Miriam: (lets try this again: message I sent was not actually the same I received ~Brian) Buddy-hope you get the kinks all worked out--I am looking forward to...
Hi all, I just joined this group. We are the parents of 6 wonderful kids..ranging in ages from 13 to 5.5 yrs old. Our youngest daughter has CP (spastic...
Hi Karen - Welcome to the group. I also have a daughter with spastic diplegia, auditory processing and vision issues and ADHD. She started on Adderall XR at...
Hi Barabra, Your daughter sounds like our Presley....she also has auditory processing issues and had strabismus ...she has had surgery for that and is much...
Hi everyone, I have a question?Hunters nero.wants to do a diet to see if it will help with his sizeures.They are lasting for more than 10 min.She hope this...
I think you are referring to the Ketogenic Diet. It has helped our son tremendously! He still has daily seizures, but he went from hundreds a day to maybe...
[NOTE: SENDING THIS ONE AGAIN, BECAUSE I WANT TO MAKE SURE THAT I HAVE SENT IT TO THE GROUP - HAD A "HICCUP" IN MAIL AND WANT TO MAKE SURE THE GROUP GETS THIS...
Hello Everyone: Well, I got a call from the Fletcher Allen Seating Clinic in Burlington (VT) on Monday May 4. My Evaluation and fitting appointment will occur...
Hello Laura, I live in Spring. We looked and looked and the closest one was in Lufkin. We took our son their January '08. We did 40 treatments and saw and...
Approximately 4 million Americans have developmental disabilities. Some children with high needs, and others at age 21 move into the special needs and adult...
Hi everyone I need some Info on how I can split up the forulma for the keto diet.I need to split it up so I can mix one bottle at a time instead of mixing all...
Krys is now 19-of all the meds we have tried for various reasons with her disabilities, oral baclofin was the one that was a "no go" from the first day or two....
Hi there. I have a 3 year old son diagnosed with spastic quad CP and Dysphagia (swallowing issues). As soon as we started him on the oral baclofen, within a...
Matt is 5 and he is on 10mg 3 times a day. It is a muscle relaxent so he was sleepy for the first week, but it all evens out. I think it helps keep his...
Hi there - Katie has taken baclofen by her g-tube. I found . that at first it did make her very sleepy, even a tiny dose. Now, that seems to have evened out,...
hi my daughter is 4 and has mild cp only in her legs, she is high funtioning,she walks and runs granted her gait is a little odd but she keeps up with her 6...
I wanted to comment to tell you that we are blessed with a son Luke that has Quad Cp . He is only four and we have been following his hip development with an...
good morning thanks for your post. how severe is matts cp. i am concerened about the bacolfin because moriah also has seizures and that is one of the side...
That's a hard one to answer. Matt is 5. He had a vagus nerve stimulator implanted just after 2 years old. He has complex partial seizures. Up until the...
Hi Everyone. I had a quick question. What exactly does a seizure look like? My 1 yo son does not have a history of seizures but as he was sleeping the other...
my daughter has seizures and is sounds like he might have been dreaming but I would let your nero dr know ________________________________ From: Colin Kong...
Hello I am posting this request in hopes that there may be a parent whose child that is diagnosed with Cerebral Palsy and has had the Anterior Obutrator...
Hi everyone It's been a while.My son Hunter is on the keogentic diet.He is in school and we have to send water and the formula to school .The formula i put...
You could help me win $15,000 toward a new IKEA space. All you have to do is vote for my entry. The more votes I get, the better chance I have to win. Just...
http://www.pnwlocalnews.com/whidbey/wnt/lifestyle/57374152.html#storyComments This is a great blessing to see Luke's Wheels helping others ....Please check out...
Hi all, Do any of your kids have a hard time with socializing with other children. I find it so sad ...as many times I will see Presley in the schoolyard...
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