cerebralpalsy : Messages : 2291-2320 of 2351

Buddy-hope you get the kinks all worked out--I am looking forward to hearing what you think about the assistive wheels--we too are having chair issues over a new chair Krys took delivery of in the fall--it just absolutely fits through or under anything!!!She is a slight young lady of under 100LBS-but she has very long legs, so those have to be accomodiated for--the durable med person ordered this kid a 17" frame!!!That would fit most large men!-the chair is 4 inches taller than her other--just this week she went to the movie, sat in her chair in a handicapped seating area next to her moms seat(which she towered over her mom by about a foot!) and actually had another person from behind to fuss loudly, that her child could not see over that big old tall chair!!!!GRRRRRRRR!So--that was the last straw--he will remake this chair!!!This is just another thing--and frankly, with so many things in life, this one should not even come up--they should get it right the first time!!Let me know how it works out--and I love the toxic green-tried to get Krys to go that way, but being a huge Georgia Bulldog fan, she went with the red and black this time-have a great day!Miriam

--- On Fri, 4/17/09, **Buddy** <bakerb33@myfairpoint.net> wrote:

From: **Buddy** <bakerb33@myfairpoint.net>
Subject: RE: [cerebralpalsy] RE: Wheelchair Evaluation [E-Motion Wheels] [**UPDATE**]
To: cerebralpalsy@yahoogroups.com
Cc: wizkid33@myfairpoint.net, bakerb33@myfairpoint.net
Date: Friday, April 17, 2009, 11:03 AM

This is just another Update in my wheelchair saga:

I had originally stated that I was going to get the Quickie Xtenders: I have been in contact with my vendor and my prescribing PT, and have found out that putting the Xtenders on the chair would make the front of my wheelchair about 1.5” HIGHER off the ground – they want a 19.5” height for the seat in the front, and a 17” height for the seat in the rear, and in order to make this correct for the Xtender, I have to have the front of the chair 1.5” inches – I could not fit the chair under tables, and other obstacles – This is not feasible, so I had asked my equipment vendor to go back to the PT and check the original script to make sure there were so specifics that had to be met. (reasons why we could not make changes to the wheel type) and apparently the Emotion wheels keep the chair at the prescribed height, width, depth and seat height, without causing me to hurt my shoulder or throw my body mechanics off. So my chair will fit under obstacles.

To that End – I have instructed the Vendor to order the Emotion wheels over the Xtenders – This keeps the Q2 chair as “stock” as possible – I will also get a seatbelt, cushion upgrade, Crutch Holder, and front 8” FLAT FREE SOLID front casters. I can transfer the Clothing Guards to my new Q2. With the Q2, I also get my Stock 24” BLACK MAGS NEW with chair, and I will have the backup chair’s tires as well, so I am happy. J I got the vendor to also to do some preventative maintenance on my RED Q2, so my tires, tubes, and bearings are all set – They did that one pro bono, because Medicaid did NOT get that I wanted to have a safe chair to keep using while the new one was being approved (and the work was needed)

I got the approval for all of these things on April 11 – I just got word that the supplier (Sunrise) will ship the chair from California on April 21, and Frank Mobility will ship the emotion wheels and the vendor will assemble, mount, test and deliver me the chair sometime at the beginning of May 2009. Then I will have my final eval with the PT and have the chair adjusted for my needs at that time. I asked that EVERYTHING that is ON my current chair be EXACT, so I can change chairs, tires, etc if needed.

I will add red LED Flashers to all visible points on my new Q2, as I am worried about my safety when using my chair – The emotion wheels are SPOKED so I should be able to add these and activate these as needed when using the chair at night or the early morning hours.

Wish me Luck – She is a’gonna be TOXIC GREEN J

Buddy

-----Original Message-----
From: cerebralpalsy@ yahoogroups. com [mailto:cerebralpal sy@yahoogroups. com] On Behalf Of **Buddy**
Sent: Sunday, November 30, 2008 1:31 PM
To: cerebralpalsy@ yahoogroups. com
Cc: 'Brian S. Baker'
Subject: [cerebralpalsy] RE: Wheelchair Evaluation [E-Motion Wheels] on Test Chair

Hello All:

Just an update to what I had posted earlier RE: my Wheelchair Evaluation. I was asked to update you regarding the testing I have done with a Kuchall Chair (from Sweden) mounted with E-Motion Wheels.

BACKGROUND

I’ve had a Quickie 2 Manual Wheelchair for about 8 years. I had injured my shoulder in 2005-2006, so I was experiencing pain, and I think it was due to overuse. Two or so months ago, I started the process to get me a new chair, after I reported that my seat cushion and chair were showing their age. During the Wheelchair Evaluation, I was told about “Power assisted Wheels. I was asked to TRY them and then if I liked them, I could possibly get these, which could help reduce shoulder strain and strain on my arms, back and other body parts. Here is my report

I have been testing this chair for approximately 2 �-3 weeks. The Wheels are mounted to an Ultra-Lite chair, with 24” rear spoked wheels. The front wheels on this chair are 2-3” in size, so they are quite small, and can get caught in holes and other obstacles you encounter. The chair is REALLY light, so the Vendor had to adjust the sensitivity of the wheels so that I can easily and safely move the chair without causing injury to myself.

OPERATION: Chair is operated by pressing the buttons on the hub of each wheel. Press them both once to turn the chair ON, then again to turn the chair OFF. You will hear a BEEP, followed by ONE BEEP or TWO BEEPS. ONE BEEP means “INDOOR Mode” and TWO BEEPS means “OUTDOOR Mode”. There are 3 buttons on each wheel - The Power Button, (On Each hub in the Center) The Battery Charge Level Indicator Button (to the Left or Right of the Power Button, depending on the wheel position, on the Dark Gray portion of the wheel), and the Mode Button (On the outside of the light gray portion of the wheel). Pressing this button changes the mode. You turn The chair OFF by pressing the buttons in the center of the wheel hub and when it is off, you hear a “Chirp”

Note, that when you power the wheels OFF you can still move the chair, but it will be harder then if you had the wheels powered up, but not as hard as to push a manual chair.

Once you select to power the wheels on, you can then adjust the sensitivity of the handrim’s sensors for each wheel (This is something that should be done by the vendor as he is watching you maneuver the chair.) Once he shows you how to do this, and explains the settings, you should be able to understand the way it works, and can adjust it as needed.

CONTROL: Controlling these wheels takes a little practice and it took me about 2-3 days to get used to the way it moved around. This chair, being a demo chair had NO seatbelt, so I had to be extra careful when moving around. The wheels are adjustable for the user and can allow for differing arm strength and abilities. Each person using this chair should realize that you DO NOT have to push as HARD with the Emotion wheels as you would have to if you were using a manual chair. You can control the speed of the chair on a downgrade, such as a wheelchair ramp or small hill by either lightly holding the handrims as you decend the downgrade, or by simply lightly hitting the handrim with your hands as you decend.

E-MOTION TESTS

INDOOR CHAIR TEST: NO POWER TO EMOTION WHEELS: Doing this test was a no-brainer for me: The chair is a tad hard to push, but no harder then to push a manual chair. This would be a plus, because you don’t have to worry about the chair being hard to maneuver if power is off, or battery is low or dead. I was able to maneuver throughout my building quite well, including the ramp that I have to acend to get to my apartment (Less then 15 degrees)

INDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (INDOOR MODE): Indoor mode tests included me going up and down the hallway in my building, going up and down the ramp, and testing the responsiveness of the chair as I pushed myself through the building. Indoor Mode allows the user to push the chair as much as they need, but you have to push it more frequently, because you don’t have as much assistance, and the push does not go as far as in Outdoor Mode.(1 Push = � a revolution or so in this mode)

INDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (OUTDOOR MODE): I performed the same tests in OUTDOOR Mode to determine the difference, and WHAT a difference. Chair was turning and stopping on a DIME, and when pushing with my arms, I was getting 2 � revolutions of the wheels for each cycle with my arms. INCREDIBLE, and awesome, because I was NOT tired. However, I must WARN you that this chair is an UltraLite, and as such, when you take off, you can and I DID pop a wheelie, and this is why the antitippers are REQUIRED for this wheel package. I was even riding the tippers for 2 � feet before coming down and to a stop. Outdoor Mode does hold the power longer, which means that you get more revolutions (1 push = to 2 � revolutions or so in this mode.) Chair responds quicker in this mode, and has more speed.

OUTDOOR CHAIR TEST: NO POWER APPLIED TO EMOTION WHEELS): Doing this test was about the same as you would expect for the Indoor Test, same results.

OUTDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (INDOOR MODE): Tests in This mode were similar: I went Up and Down a 15 degree access ramp outside my building and went from my driveway to the bus stop in this mode. Only problem I had was that I had to be extra careful of deteriorating sidewalks, potholes and bumps. I quickly realized that I could handle this mode outside, so I went to the Next Test.

OUTDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (OUTDOOR MODE): Boarded a Public Bus and had to power the wheels down when on the ramp. Once at my destination, I powered up the wheels, changed the mode, and away I went. Be sure to keep your hands close by the rims in case you have to stop or slow down, as the Outdoor Mode is faster, and more sensitive. Also, when moving from a stopped position, you should be aware of the fact that the chair I used also like to do a wheelie, so you have to lean forward just a little to give it some weight to counteract the wheelie. I estimated that I had given about 20 revolutions with my arms, so it took me 10 minutes less to get to my destination when using the chair in this mode. I also went up and down a steep driveway in seconds in this mode, and I was NOT hurting afterwards. Users should keep BOTH hands on the wheels when in this mode, so you can STOP or TURN if necessary in an emergency situation.

It is important to note that you should ALWAYS POWER OFF THE WHEELS when sitting still, Transferring from or to the chair, or on Public Transit. This will make sure you don’t run out of power and end up dead somewhere when you need the power. Do Not just rely on your Wheel Locks (Brakes) to stop and hold the chair, as touching the rim or pushing it can make it MOVE.

BATTERY LIFE: Seems to do OK – I charged it once a night, and I could go a whole day without too much difficulty

CHARGER AND CHARGE CYCLE: 8 HOURS USING AN EXTERNAL PLUG IN CHARGER

BATTERY LOCATION: Batteries are IN the wheels as are the Charge Ports.

RESULTS: Will Inform Vendor and PT that I WANT the comparable wheels for the Q2 series of chairs: Was told that if the PT says “Yes” that My Doctor would APPROVE the Script for the chair, stating med. Necessity for the Extenders – Now, to see what Medicare says.

I was told that the EMOTION Wheels are very similar to the Quickie Extenders. The only difference is that the Emotion Wheels can be placed on ANY manual chair frame, while Extenders are a quickie product which is specifically for a Quickie 2 chair. Since I own a Quickie 2 and like that chair, I will have these ordered. That way, I can order the chair I want, add my crutch holder, and seatbelt and other options and go with it. I will make DARN SURE that the cushion I sit on is really comfy too – This test chair helped my back SO MUCH!!!

Buddy

#2319

From: "**Buddy**" <bakerb33@...>
Date: Sun Apr 19, 2009 10:06 pm
Subject: RE: RE: Wheelchair Evaluation [E-Motion Wheels] [**UPDATE**]

seminole002

Offline

This is just another Update in my wheelchair saga:

Wish me Luck – She is a’gonna be TOXIC GREEN J

Buddy

Hello All:

Just an update to what I had posted earlier RE: my Wheelchair Evaluation. I was asked to update you regarding the testing I have done with a Kuchall Chair (from Sweden) mounted with E-Motion Wheels.

BACKGROUND

Note, that when you power the wheels OFF you can still move the chair, but it will be harder then if you had the wheels powered up, but not as hard as to push a manual chair.

E-MOTION TESTS

OUTDOOR CHAIR TEST: NO POWER APPLIED TO EMOTION WHEELS): Doing this test was about the same as you would expect for the Indoor Test, same results.

BATTERY LIFE: Seems to do OK – I charged it once a night, and I could go a whole day without too much difficulty

CHARGER AND CHARGE CYCLE: 8 HOURS USING AN EXTERNAL PLUG IN CHARGER

BATTERY LOCATION: Batteries are IN the wheels as are the Charge Ports.

Buddy

#2318

From: miriam weir <mweir2@...>
Date: Fri Apr 17, 2009 3:16 pm
Subject: RE: RE: Wheelchair Evaluation [E-Motion Wheels] [**UPDATE**]

mweir2

Offline

From: **Buddy** <bakerb33@...>
Subject: RE: [cerebralpalsy] RE: Wheelchair Evaluation [E-Motion Wheels] [**UPDATE**]
To: cerebralpalsy@yahoogroups.com
Cc: wizkid33@..., bakerb33@...
Date: Friday, April 17, 2009, 11:03 AM

This is just another Update in my wheelchair saga:

I had originally stated that I was going to get the Quickie Xtenders: I have been in contact with my vendor and my prescribing PT, and have found out that putting the Xtenders on the chair would make the front of my wheelchair about 1.5” HIGHER off the ground – they want a 19.5” height for the seat in the front, and a 17” height for the seat in the rear, and in order to make this correct for the Xtender, I have to have the front of the chair 1.5” inches – I could not fit the chair under tables, and other obstacles   – This is not feasible, so I had asked my equipment vendor to go back to the PT and check the original script to make sure there were so specifics that had to be met. (reasons why we could not make changes to the wheel type) and apparently the Emotion wheels keep the chair at the prescribed height, width, depth and seat height, without causing me to hurt my shoulder or throw my body mechanics off. So my chair will fit under obstacles.

To that End – I have instructed the Vendor to order the Emotion wheels over the Xtenders – This keeps the Q2 chair as “stock” as possible – I will also get a seatbelt, cushion upgrade, Crutch Holder, and front 8” FLAT FREE SOLID front casters. I can transfer the Clothing Guards to my new Q2. With the Q2, I also get my Stock 24” BLACK MAGS NEW with chair, and I will have the backup chair’s tires as well, so I am happy. J    I got the vendor to also to do some preventative maintenance on my RED Q2, so my tires, tubes, and bearings are all set – They did that one pro bono, because Medicaid did NOT get that I wanted to have a safe chair to keep using while the new one was being approved (and the work was needed)

I got the approval for all of these things on April 11 – I just got word that the supplier (Sunrise) will ship the chair from California on April 21, and Frank Mobility will ship the emotion wheels and the vendor will assemble, mount, test and deliver me the chair sometime at the beginning of May 2009. Then I will have my final eval with the PT and have the chair adjusted for my needs at that time. I asked that EVERYTHING that is ON my current chair be EXACT, so I can change chairs, tires, etc if needed.

I will add red LED Flashers to all visible points on my new Q2, as I am worried about my safety when using my chair – The emotion wheels are SPOKED so I should be able to add these and activate these as needed when using the chair at night or the early morning hours.

Wish me Luck – She is a’gonna be TOXIC GREEN J

Buddy

-----Original Message-----
From: cerebralpalsy@ yahoogroups. com [mailto:cerebralpal sy@yahoogroups. com] On Behalf Of **Buddy**
Sent: Sunday, November 30, 2008 1:31 PM
To: cerebralpalsy@ yahoogroups. com
Cc: 'Brian S. Baker'
Subject: [cerebralpalsy] RE: Wheelchair Evaluation [E-Motion Wheels] on Test Chair

Hello All:

Just an update to what I had posted earlier RE: my Wheelchair Evaluation. I was asked to update you regarding the testing I have done with a Kuchall Chair (from Sweden) mounted with E-Motion Wheels.

BACKGROUND

I’ve had a Quickie 2 Manual Wheelchair for about 8 years. I had injured my shoulder in 2005-2006, so I was experiencing pain, and I think it was due to overuse. Two or so months ago, I started the process to get me a new chair, after I reported that my seat cushion and chair were showing their age. During the Wheelchair Evaluation, I was told about “Power assisted Wheels. I was asked to TRY them and then if I liked them, I could possibly get these, which could help reduce shoulder strain and strain on my arms, back and other body parts. Here is my report

I have been testing this chair for approximately 2 ½-3 weeks. The Wheels are mounted to an Ultra-Lite chair, with 24” rear spoked wheels. The front wheels on this chair are 2-3” in size, so they are quite small, and can get caught in holes and other obstacles you encounter. The chair is REALLY light, so the Vendor had to adjust the sensitivity of the wheels so that I can easily and safely move the chair without causing injury to myself.

OPERATION: Chair is operated by pressing the buttons on the hub of each wheel. Press them both once to turn the chair ON, then again to turn the chair OFF. You will hear a BEEP, followed by ONE BEEP or TWO BEEPS. ONE BEEP means “INDOOR Mode” and TWO BEEPS means “OUTDOOR Mode”. There are 3 buttons on each wheel - The Power Button, (On Each hub in the Center) The Battery Charge Level Indicator Button (to the Left or Right of the Power Button, depending on the wheel position, on the Dark Gray portion of the wheel), and the Mode Button (On the outside of the light gray portion of the wheel). Pressing this button changes the mode. You turn The chair OFF by pressing the buttons in the center of the wheel hub and when it is off, you hear a “Chirp”

Note, that when you power the wheels OFF you can still move the chair, but it will be harder then if you had the wheels powered up, but not as hard as to push a manual chair.

Once you select to power the wheels on, you can then adjust the sensitivity of the handrim’s sensors for each wheel (This is something that should be done by the vendor as he is watching you maneuver the chair.) Once he shows you how to do this, and explains the settings, you should be able to understand the way it works, and can adjust it as needed.

CONTROL: Controlling these wheels takes a little practice and it took me about 2-3 days to get used to the way it moved around. This chair, being a demo chair had NO seatbelt, so I had to be extra careful when moving around. The wheels are adjustable for the user and can allow for differing arm strength and abilities. Each person using this chair should realize that you DO NOT have to push as HARD with the Emotion wheels as you would have to if you were using a manual chair. You can control the speed of the chair on a downgrade, such as a wheelchair ramp or small hill by either lightly holding the handrims as you decend the downgrade, or by simply lightly hitting the handrim with your hands as you decend.

E-MOTION TESTS

INDOOR CHAIR TEST: NO POWER TO EMOTION WHEELS: Doing this test was a no-brainer for me: The chair is a tad hard to push, but no harder then to push a manual chair. This would be a plus, because you don’t have to worry about the chair being hard to maneuver if power is off, or battery is low or dead. I was able to maneuver throughout my building quite well, including the ramp that I have to acend to get to my apartment (Less then 15 degrees)

INDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (INDOOR MODE): Indoor mode tests included me going up and down the hallway in my building, going up and down the ramp, and testing the responsiveness of the chair as I pushed myself through the building. Indoor Mode allows the user to push the chair as much as they need, but you have to push it more frequently, because you don’t have as much assistance, and the push does not go as far as in Outdoor Mode.(1 Push = ½ a revolution or so in this mode)

INDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (OUTDOOR MODE): I performed the same tests in OUTDOOR Mode to determine the difference, and WHAT a difference. Chair was turning and stopping on a DIME, and when pushing with my arms, I was getting 2 ½ revolutions of the wheels for each cycle with my arms. INCREDIBLE, and awesome, because I was NOT tired. However, I must WARN you that this chair is an UltraLite, and as such, when you take off, you can and I DID pop a wheelie, and this is why the antitippers are REQUIRED for this wheel package. I was even riding the tippers for 2 ½ feet before coming down and to a stop. Outdoor Mode does hold the power longer, which means that you get more revolutions (1 push = to 2 ½ revolutions or so in this mode.) Chair responds quicker in this mode, and has more speed.

OUTDOOR CHAIR TEST: NO POWER APPLIED TO EMOTION WHEELS): Doing this test was about the same as you would expect for the Indoor Test, same results.

OUTDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (INDOOR MODE): Tests in This mode were similar: I went Up and Down a 15 degree access ramp outside my building and went from my driveway to the bus stop in this mode. Only problem I had was that I had to be extra careful of deteriorating sidewalks, potholes and bumps. I quickly realized that I could handle this mode outside, so I went to the Next Test.

OUTDOOR CHAIR TEST: POWER APPLIED TO EMOTION WHEELS (OUTDOOR MODE): Boarded a Public Bus and had to power the wheels down when on the ramp. Once at my destination, I powered up the wheels, changed the mode, and away I went. Be sure to keep your hands close by the rims in case you have to stop or slow down, as the Outdoor Mode is faster, and more sensitive. Also, when moving from a stopped position, you should be aware of the fact that the chair I used also like to do a wheelie, so you have to lean forward just a little to give it some weight to counteract the wheelie. I estimated that I had given about 20 revolutions with my arms, so it took me 10 minutes less to get to my destination when using the chair in this mode. I also went up and down a steep driveway in seconds in this mode, and I was NOT hurting afterwards. Users should keep BOTH hands on the wheels when in this mode, so you can STOP or TURN if necessary in an emergency situation.

It is important to note that you should ALWAYS POWER OFF THE WHEELS when sitting still, Transferring from or to the chair, or on Public Transit. This will make sure you don’t run out of power and end up dead somewhere when you need the power. Do Not just rely on your Wheel Locks (Brakes) to stop and hold the chair, as touching the rim or pushing it can make it MOVE.

BATTERY LIFE: Seems to do OK – I charged it once a night, and I could go a whole day without too much difficulty

CHARGER AND CHARGE CYCLE:    8 HOURS USING AN EXTERNAL PLUG IN CHARGER

BATTERY LOCATION: Batteries are IN the wheels as are the Charge Ports.

RESULTS: Will Inform Vendor and PT that I WANT the comparable wheels for the Q2 series of chairs: Was told that if the PT says “Yes” that My Doctor would APPROVE the Script for the chair, stating med. Necessity for the Extenders – Now, to see what Medicare says.

I was told that the EMOTION Wheels are very similar to the Quickie Extenders. The only difference is that the Emotion Wheels can be placed on ANY manual chair frame, while Extenders are a quickie product which is specifically for a Quickie 2 chair. Since I own a Quickie 2 and like that chair, I will have these ordered. That way, I can order the chair I want, add my crutch holder, and seatbelt and other options and go with it. I will make DARN SURE that the cushion I sit on is really comfy too – This test chair helped my back SO MUCH!!!

Buddy

#2317

From: "**Buddy**" <bakerb33@...>
Date: Fri Apr 17, 2009 3:03 pm
Subject: RE: RE: Wheelchair Evaluation [E-Motion Wheels] [**UPDATE**]

seminole002

Offline

This is just another Update in my wheelchair saga:

I had originally stated that I was going to get the Quickie Xtenders:� I have been in contact with my vendor and my prescribing PT, and have found out that putting the Xtenders on the chair would make the front of my wheelchair about 1.5” HIGHER off the ground – they want a� 19.5” height for the seat in the front, and a 17” height for the seat in the rear, and in order to make this correct for the Xtender, I have to have the front of the chair 1.5” inches – I could not fit the chair under tables, and other obstacles�� – This is not feasible, so I had asked my equipment vendor to go back to the PT and check the original script to make sure there were so specifics that had to be met. (reasons why we could not make changes to the wheel type) and apparently the Emotion wheels keep the chair at the prescribed height, width, depth and seat height, without causing me to hurt my shoulder or throw my body mechanics off.� So my chair will fit under obstacles.�

To that End – I have instructed the Vendor to order the Emotion wheels over the Xtenders – This keeps the Q2 chair as “stock” as possible – I will also get a seatbelt, cushion upgrade, Crutch Holder, and front 8” FLAT FREE SOLID front casters. I can transfer the Clothing Guards to my new Q2.� With the Q2, I also get my Stock 24” BLACK MAGS NEW with chair, and I will have the backup chair’s tires as well, so I am happy. J�� I got the vendor to also to do some preventative maintenance on my RED Q2, so my tires, tubes, and bearings are all set – They did that one pro bono, because Medicaid did NOT get that I wanted to have a safe chair to keep using while the new one was being approved (and the work was needed)

I got the approval for all of these things on April 11 – I just got word that the supplier (Sunrise) will ship the chair from California on April 21, and Frank Mobility will ship the emotion wheels and the vendor will assemble, mount, test and deliver me the chair sometime at the beginning of May 2009.� Then I will have my final eval with the PT and have the chair adjusted for my needs at that time.� I asked that EVERYTHING that is ON my current chair be EXACT, so I can change chairs, tires, etc if needed.�

Wish me Luck – She is a’gonna be TOXIC GREEN J

Buddy

-----Original Message-----
From: cerebralpalsy@yahoogroups.com [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of **Buddy**
Sent: Sunday, November 30, 2008 1:31 PM
To: cerebralpalsy@yahoogroups.com
Cc: 'Brian S. Baker'
Subject: [cerebralpalsy] RE: Wheelchair Evaluation [E-Motion Wheels] on Test Chair

Hello All:

Just an update to what I had posted earlier RE: my Wheelchair Evaluation. I was asked to update you regarding the testing I have done with a Kuchall Chair (from Sweden) mounted with E-Motion Wheels.

BACKGROUND

Note, that when you power the wheels OFF you can still move the chair, but it will be harder then if you had the wheels powered up, but not as hard as to push a manual chair.

E-MOTION TESTS

OUTDOOR CHAIR TEST: NO POWER APPLIED TO EMOTION WHEELS): Doing this test was about the same as you would expect for the Indoor Test, same results.

BATTERY LIFE: Seems to do OK – I charged it once a night, and I could go a whole day without too much difficulty

CHARGER AND CHARGE CYCLE: 8 HOURS USING AN EXTERNAL PLUG IN CHARGER

BATTERY LOCATION: Batteries are IN the wheels as are the Charge Ports.

Buddy

#2316

From: Stacy <goflymykite@...>
Date: Wed Apr 1, 2009 10:28 am
Subject: Re: My home

goflymykite

Offline

Have they given you a date that you have to be out? It usually takes about six months to process a foreclosure. A friend of mine is in foreclosure, and she has to be out by august.
they can refuse to take a partial payment (less than the total needed to bring it current). If you really want to save your house (can you afford it if there weren't a past due amount?). you could consider bankruptcy. It's not a guarantee, but sometimes you can get your loan rewritten that way. I'm not sure if that applies in the current economy, but it shouldn't be hard to find an attorney who could talk to you about it without asking a fee....

--- On Wed, 3/25/09, missy rager <sadie79995@...> wrote:

From: missy rager <sadie79995@...>
Subject: [cerebralpalsy] My home
To: cerebralpalsy@yahoogroups.com, parentsofseverelydisabledkids@...
Date: Wednesday, March 25, 2009, 5:51 PM

Hi everyone

I have a question ?I'm not sure anyone can help but it wount hurt to ask.My home is in forecloser.I' m going to talk to a lawyer on tThursday.Can they throw us out? I even have some money to pay but they will not talk or send my lawyer anything.Any

#2315

From: missy rager <sadie79995@...>
Date: Mon Mar 23, 2009 4:32 pm
Subject: Fw: Re: belly problems i think

sadie79995

Offline

He is getting the same meds.at home that he was getting in the hospital.They also did check the nessen after they were done with a upper GI.They said it looked great.

--- On Mon, 3/23/09, Debra Marasco-McNulty <debraphp@...> wrote:

From: Debra Marasco-McNulty <debraphp@...>
Subject: Re: [cerebralpalsy] belly problems i think
To: cerebralpalsy@yahoogroups.com
Date: Monday, March 23, 2009, 1:05 AM

I don't know from my experiences with Jason, not something we've dealt with. Was he getting sleep meds in the hospital, which he is not getting now?

Debra M-Mc (mom to Jason, age 32, micro cp, spastic quad, trach, g-tube)

--- On Sun, 3/22/09, missy rager <sadie79995@yahoo. com> wrote:

From: missy rager <sadie79995@yahoo. com>
Subject: [cerebralpalsy] belly problems i think
To: parentsofseverelydi sabledkids@ yahoo.com, cerebralpalsy@ yahoogroups. com
Date: Sunday, March 22, 2009, 6:00 PM

Hi

My name is Missy my son Hunter is 5 he have quad.cp,VP shunt,Mickey button,blindness, hearing loss,He had surgery last Monday for his tonsils,adenoids, tubs,and fondant had to be tightened.Because of reflex.So sorry about the spelling.And we had hie shunt checked also.But EVERY morning between 5-6am he gets up screaming and it is very scary.He Did NOT do it the hospital.He just started to do it again 2 nights again .Any advice will help the doctors think I'm crazy and I think my family is think that also. HELP!!!

#2314

From: missy rager <sadie79995@...>
Date: Wed Mar 25, 2009 10:51 pm
Subject: My home

sadie79995

Offline

Hi everyone

I have a question ?I'm not sure anyone can help but it wount hurt to ask.My home is in forecloser.I'm going to talk to a lawyer on tThursday.Can they throw us out? I even have some money to pay but they will not talk or send my lawyer anything.Any

#2313

From: JnDysn@...
Date: Mon Mar 23, 2009 7:04 pm
Subject: Re: belly problems i think

jndysn

Offline

Hi Aisha,

My son Jacob had severe pain in his stomach and it took us over a year to convince the Dr.'s that something was wrong. What they found was that his nissen had come undone and they also found that he had a Hiatal hernia, his stomach wasn't emptying properly and he had a spot in the esophagus where food was getting hung up. We finally convinced them to do surgery to repair all of that and he has been great since. When we went back for post-op visit the Dr. said (with a big smile) "well mom you were right all a long" Everyone tried to say it was all in Jakes head.

Keep pushing the Dr.'s. You know your child better then anyone, you live this day in and day out and you know what is normal behavior and what isn't.

God Bless you,
Georgianna

-----Original Message-----
From: Aisha Lusk <Aisha.Lusk@...>
To: cerebralpalsy@yahoogroups.com
Sent: Mon, 23 Mar 2009 10:51 am
Subject: RE: [cerebralpalsy] belly problems i think

Have they checked to make sure the nissen is operating correctly since it was tightened? Maybe he is still having reflux problems.

From: cerebralpalsy@yahoogroups.com [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of missy rager
Sent: Sunday, March 22, 2009 9:01 PM
To: parentsofseverelydisabledkids@...; cerebralpalsy@yahoogroups.com
Subject: [cerebralpalsy] belly problems i think

My name is Missy my son Hunter is 5 he have quad.cp,VP shunt,Mickey button,blindness,hearing loss,He had surgery last Monday for his tonsils,adenoids,tubs,and fondant had to be tightened.Because of reflex.So sorry about the spelling.And we had hie shunt checked also.But EVERY morning between 5-6am he gets up screaming and it is very scary.He Did NOT do it the hospital.He just started to do it again 2 nights again .Any advice will help the doctors think I'm crazy and I think my family is think that also. HELP!!!

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#2312

From: "Aisha Lusk" <Aisha.Lusk@...>
Date: Mon Mar 23, 2009 2:51 pm
Subject: RE: belly problems i think

mom_to_di

Offline

Have they checked to make sure the nissen is operating correctly since it was tightened? Maybe he is still having reflux problems.

==============================================================================
Confidentiality Notice
This message is intended exclusively for the individual or
entity to which it is addressed. This communication may
contain information that is proprietary, privileged,
confidential or otherwise legally exempt from disclosure.
If you are not the named addressee, you are not authorized
to read, print, retain, copy or disseminate this message
or any part of it. If you have received this message in
error, please notify the sender immediately either by
phone (800-237-2000) or reply to this e-mail and delete
all copies of this message.
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the purpose of (a) avoiding penalties under the Internal
Revenue Code or (b) promoting, marketing or recommending
to another party any transaction or tax-related matter[s].
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avoid penalties under the Internal Revenue Code will
necessarily entail additional investigations, analysis and
conclusions on our part.
==============================================================================

#2311

From: Debra Marasco-McNulty <debraphp@...>
Date: Mon Mar 23, 2009 5:05 am
Subject: Re: belly problems i think

debraphp

Offline

I don't know from my experiences with Jason, not something we've dealt with. Was he getting sleep meds in the hospital, which he is not getting now?

Debra M-Mc (mom to Jason, age 32, micro cp, spastic quad, trach, g-tube)

--- On Sun, 3/22/09, missy rager <sadie79995@...> wrote:

From: missy rager <sadie79995@...>
Subject: [cerebralpalsy] belly problems i think
To: parentsofseverelydisabledkids@..., cerebralpalsy@yahoogroups.com
Date: Sunday, March 22, 2009, 6:00 PM

Hi

My name is Missy my son Hunter is 5 he have quad.cp,VP shunt,Mickey button,blindness, hearing loss,He had surgery last Monday for his tonsils,adenoids, tubs,and fondant had to be tightened.Because of reflex.So sorry about the spelling.And we had hie shunt checked also.But EVERY morning between 5-6am he gets up screaming and it is very scary.He Did NOT do it the hospital.He just started to do it again 2 nights again .Any advice will help the doctors think I'm crazy and I think my family is think that also. HELP!!!

#2310

From: missy rager <sadie79995@...>
Date: Mon Mar 23, 2009 1:00 am
Subject: belly problems i think

sadie79995

Offline

#2309

From: "roberthartsoe" <rhartsoe@...>
Date: Sun Mar 22, 2009 6:42 pm
Subject: HBOT is no longer expensive

roberthartsoe

Offline

Just a note to let you know that hbot is not as expensive as it used to be.  
Miracle Mountain in NC is a cooperative and since we have paid off our loans we
have lowered our price to $2500 which includes 40 sessions of HBOT, Auditory
Integration Training (AIT), and patterning via the equipment we have.  In
addition, we provide housing free of charge.

In the month of May we have privately funded grants available of $200 each but
they must be used in May.  This brings the total cost of everything to $2300.   
We have provided almost 20,000 treatments to children with BI.

We are celebrating our 10th year.
Our web page is located at www.miraclemountain.org
For those who are to far away to drive, we arrange for free airline tickets
through Miracle Flights.

Our experience and success rate is extensive.

Feel free to call Alice at 336-385-1775

I think we may still have an opening in April.

thanks
Robert Hartsoe
www.miraclemountail.org

#2308

From: "sloneczko2004" <bakster6@...>
Date: Sun Mar 15, 2009 12:53 am
Subject: Stem cell

sloneczko2004

Offline

Hello everybody
Just an up date on Sidney status. Unfortunately we don't have enough cells for
re-infusion. We are very disappointed,after the last weeks of high hopes we had
with this procedure.But I guess we just have to re focused again and move on.
Krys

#2307

From: "JASON SALLY BECK" <familybeck5@...>
Date: Sat Mar 14, 2009 4:35 pm
Subject: Re:Hyperbaric Chamber

familybeck5

Offline

Tammy,

Lauren actually just got a CP diagnosis when she was about 5 1/2. We had been to the cp clinics when she was younger, but they had never given her the formal diagnosis, which was fine with us. We always used the diagnosis of hypotonia to get her equipment from ins. Then when we wanted to do HBO, a pediatrician we had at the time (no longer), really thought she needed that formal diagnosis. So I called up the CP clinic (who hadn't seen her for 2 years) asked them to review the charts and send us the CP diagnosis. The next day they faxed me the letter that said Athetoid CP. I don't really know or care what that means. I can tell you about Lauren and that will give you a better idea. She is very low tone, for the most part. Sometimes her limbs get stiff if she is trying hard to do something or really excited. She has difficulty holding her head up, until her first round of 40 she could not push herself up onto all fours, or into sitting, nor any pulling up to stand. She's mentally 100%, but she is hard to understand sometimes, they say do to the low tone of her neck muscles. Just from what you have said about Tyler, they sound similar. Our insurance has yet to help cover the treatments, but my husband's company just switched to UHC, so I will start trying with them. We are still on a wait list for the children's waiver to get back up medicaid for Lauren. Our tx run $130 per treatment. For this session of 40 there is a donor who has seen Lauren's progress who is paying for all but $50 a treatment! The treatments are an added expense, but we have found them to be VERY worth it. We did not see a lot of results until 3 months after Lauren had completed her first round of 40. She is in a regular, professional grade chamber on 100% oxygen. Any questions, or if you would like some video of Lauren just to see some of the improvements, I would be more than happy to send them to you. You can email me on this group or privately.

Good Luck

Sally

mom to Dylan 16, Lauren 7 CP, and Sage 2 1/2

#2306

From: "tammyshueh" <tshueh@...>
Date: Fri Mar 13, 2009 9:04 pm
Subject: Re:Hyperbaric Chamber

tammyshueh

Offline

Sally:

What type of CP does Lauren have? Tyler is almost 6 and we've not tried HBOT
yet.  He has Spastic Quad CP - no head control and low tone. cannot sit up etc.,
I am still considering this type of therapy but would like your thoughts since
it is so costly.

thanks again
Tammy

Mother of Tyler, 5 CP, and Piper 3.

--- In cerebralpalsy@yahoogroups.com, "JASON SALLY BECK" <familybeck5@...>
wrote:
>
> We did a round of 40 HBO tx in the spring of last year.  Lauren was 6, before
the tx she could not push herself up to sitting, sit, hold herself in a crawl
position or stand.  Three months after her first 40 and over the following two
months she pushed herself to sitting, can hold for 1 min in a crawl position,
and grab your hands and pull herself to standing.  We also noticed clarity of
speech after the first 40.  We are on treatment number 10 of our next 40.  We
will not break for as long in between this time.  We use the chambers in
Boulder, CO; Rocky Mountain Hyperbaric.  Dr Stoller has chambers in New Mexico,
and I think in California.  You could get his contact info and check with him at
www.hbotnm.com<http://www.hbotnm.com/> .
> Good Luck
> Sally
> mom to Dylan 16, Lauren 7 CP, and Sage 2 1/2
>

#2305

From: "JASON SALLY BECK" <familybeck5@...>
Date: Fri Mar 13, 2009 7:50 pm
Subject: Re:Hyperbaric Chamber

familybeck5

Offline

We did a round of 40 HBO tx in the spring of last year. Lauren was 6, before the tx she could not push herself up to sitting, sit, hold herself in a crawl position or stand. Three months after her first 40 and over the following two months she pushed herself to sitting, can hold for 1 min in a crawl position, and grab your hands and pull herself to standing. We also noticed clarity of speech after the first 40. We are on treatment number 10 of our next 40. We will not break for as long in between this time. We use the chambers in Boulder, CO; Rocky Mountain Hyperbaric. Dr Stoller has chambers in New Mexico, and I think in California. You could get his contact info and check with him at www.hbotnm.com .

Good Luck

Sally

mom to Dylan 16, Lauren 7 CP, and Sage 2 1/2

#2304

From: tasha thompson <tasha_n_thompson@...>
Date: Fri Mar 13, 2009 12:12 pm
Subject: new to group

tasha_n_thom...

Offline

I've delayed introducing myself... but I'll give it a try.

My name is Tasha and I live in Northeast China with my husband and foster son, Nathan (3 yrs old). My husband and I are American citizens but we have lived in China for 6 years now.

We first started fostering Nathan almost two years ago and he has made an amazing turn-around. He was severely malnourished and had only enough strength to move his eyes at first. The doctors gave him only another week to live and we were given 'emergency' permission to foster him for no more than three months. But, here we are two years later...

He's thriving now and making some slow (but exciting) progress physically and emotionally.

We have little access to therapists, and some of Nathan's records are in Chinese, so I'm not very familiar with the correct terms. (thus my hesitation and embarrassment to introduce myself!)

All four limbs are affected by the Cerebral Palsy. Low muscle tone. thumbs, wrists, ankles turn in a little bit... but his hands are less so than they used to be. No words yet, but a lot of fun sounds. He's improving every day - getting a little more motivation to hold his back up, reach out for something, or move his legs. He can sit up against the wall now and is starting to reach for toys and grab our faces and hands.

We do massage, exercises, and positioning. Some friends from Africa who are studying medicine here volunteered their time to help us at first by teaching us some physical therapy exercises.

I know I can learn a great deal from this group.

I would especially appreciate any advice about simple therapies that don't require special equipment / doctors / surgery.

Any resources that would help me understand more about massage? Do doctors in the US suggest massage therapy? It seems to be the most popular method used by the Chinese people.

Thank you.

Tasha

Reply | Forward | Messages in this Topic (12)

#2303

From: "Laura" <lvanchiere@...>
Date: Thu Mar 12, 2009 5:23 pm
Subject: Hyperbaric Chamber

laura74

Offline

Has anyone used HBOT?  If so what were your results. Also does anyone know of a
place in the Houston/Pearland area that does HBOT for CP?

#2302

From: Dianna Gibson <diannagibson@...>
Date: Tue Mar 3, 2009 1:13 am
Subject: (No subject)

diannagibson...

Offline

hey its dianna im just checking in have a good day

Love Always,

Dianna

#2301

From: Stacy <goflymykite@...>
Date: Sun Mar 1, 2009 2:02 pm
Subject: Re: File - Roll Call-Check In

goflymykite

Offline

We're doing pretty well in SD. Katie just had mods done to her w/c, and now somehow the laterals are bruising the backs of her arms :< - So, we'll go in next week to get that looked at. She's also started trying out a power chair, with head controls. She has some scoliosis to the right- loves to lean her head to the right, so basically she's driving in circles so far. But, she seems to be having fun with it.
Still watching one hip, which is slowing dislocating. I'm not sure on when to pull the trigger on fixing that. She can't tell me if it hurts, has always been a fussy kid, so that isn't even a great indicator, and I hate to put her through surgery and that pain if it isn't fixing her pain...
In other news, we're expecting our second baby :> Not due until October. We decided to give it one last try - it took three years to have Katie, so I honestly didn't think anything would happen. I was just coming to my senses, thinking, how can I possibly do this? And that we should just get fixed and be done with it - when we popped up preggie. Um, yeah, one month of trying. I'll be 35 next month, so that piece of it is also a little worrisome. But oh well, everybody's doing it, right?
That's about it for us.....

Stacy and Katie...

--- On Sun, 3/1/09, cerebralpalsy@yahoogroups.com <cerebralpalsy@yahoogroups.com> wrote:

From: cerebralpalsy@yahoogroups.com <cerebralpalsy@yahoogroups.com>
Subject: [cerebralpalsy] File - Roll Call-Check In
To: cerebralpalsy@yahoogroups.com
Date: Sunday, March 1, 2009, 2:19 AM

How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your life. Also remember to post a link to your personal website.

Thanks!
Castle
Group Owner

Reply | Forward | Messages in this Topic (142)

#2300

From: cerebralpalsy@yahoogroups.com
Date: Sun Mar 1, 2009 8:19 am
Subject: File - Roll Call-Check In

cerebralpalsy@yahoogroups.com

How is everyone doing?  Please take a second to give us a update.  Let us know
if there are any new milestones your child has reached.  Anything new in your
life.  Also remember to post a link to your personal website.

Thanks!
Castle
Group Owner

Reply | Forward | Messages in this Topic (142)

#2299

From: cerebralpalsy@yahoogroups.com
Date: Sun Mar 1, 2009 8:19 am
Subject: File - Netiquette

cerebralpalsy@yahoogroups.com

A few things to remember....

-No advertisements allowed.  Please refrain from advertising your business.

-When relying to a post please remember to remove the fully quoted text
  from your message.  Remember to cut and paste only a few lines of relevant
  text from the message you are replying to.

-When replying to a digest sent to your email address please remember to
  delete all messages from the digest before sending the message to the group.

-ONLY send attachments or files when they are relevant to the topic of the
  group.

-Never open attachments from senders you do not know.

-Do not post in ALL CAPS it is hard to read and concidered "YELLING"
  in the online community.


Thank you,
Castle
Group Owner

Reply | Forward | Messages in this Topic (49)

#2298

From: Denise Stier <dstier2001@...>
Date: Tue Feb 24, 2009 12:15 am
Subject: Re: Stem cells

dstier2001

Offline

Hi,

We have not noticed any changes since the reinfusion. They told us that it would take a few months to see anything, and it is 4 months now and we still see nothing. My daughter is the oldest child that they have treated so far, she's almost 8, so that may be part of the reason that we don't see any improvements. On a more positive note, she does still improve her function little by little and is doing very well. :)

Denise

--- On Mon, 2/23/09, T Shueh <tshueh@...> wrote:

From: T Shueh <tshueh@...>
Subject: Re: [cerebralpalsy] Stem cells
To: cerebralpalsy@yahoogroups.com
Date: Monday, February 23, 2009, 6:14 PM

Please keep us posted on how your daughter is doing - has she progressed??

On Sun, Feb 22, 2009 at 6:00 PM, Denise Stier <dstier2001@yahoo. com> wrote:

Hi,

My daughter had her cord blood reinfused in October. The hospital reserved a hotel room for us a few blocks away at a reduced rate. We had to go to the hospital on a Monday for a physical and blood draw. It took about an hour and a half. On Tuesday, we had to arrive at the hospital late morning and they did the reinfusion. After the stem cells are done, they give fluids for a few hours, so you end up staying there the whole day.

Everyone was very helpful and we had no problems with anything. If you have any other questions, please ask.

Denise

--- On Fri, 2/20/09, sloneczko2004 <bakster6@hotmail. com> wrote:

From: sloneczko2004 <bakster6@hotmail. com>
Subject: [cerebralpalsy] Stem cells
To: cerebralpalsy@ yahoogroups. com
Date: Friday, February 20, 2009, 3:30 PM

Hello
We finally heard from Duke's and they accepted Sidney for her cord
blood infusion. Has any one went thru this procedure or know that
hospital and area? Any suggestion welcome Krys

#2297

From: T Shueh <tshueh@...>
Date: Mon Feb 23, 2009 11:14 pm
Subject: Re: Stem cells

tammyshueh

Offline

Please keep us posted on how your daughter is doing - has she progressed??

On Sun, Feb 22, 2009 at 6:00 PM, Denise Stier <dstier2001@...> wrote:

Hi,

My daughter had her cord blood reinfused in October. The hospital reserved a hotel room for us a few blocks away at a reduced rate. We had to go to the hospital on a Monday for a physical and blood draw. It took about an hour and a half. On Tuesday, we had to arrive at the hospital late morning and they did the reinfusion. After the stem cells are done, they give fluids for a few hours, so you end up staying there the whole day.

Everyone was very helpful and we had no problems with anything. If you have any other questions, please ask.

Denise

--- On Fri, 2/20/09, sloneczko2004 <bakster6@...> wrote:

From: sloneczko2004 <bakster6@...>
Subject: [cerebralpalsy] Stem cells
To: cerebralpalsy@yahoogroups.com
Date: Friday, February 20, 2009, 3:30 PM

Hello
We finally heard from Duke's and they accepted Sidney for her cord
blood infusion. Has any one went thru this procedure or know that
hospital and area? Any suggestion welcome Krys

#2296

From: Denise Stier <dstier2001@...>
Date: Mon Feb 23, 2009 2:00 am
Subject: Re: Stem cells

dstier2001

Offline

Hi,

My daughter had her cord blood reinfused in October. The hospital reserved a hotel room for us a few blocks away at a reduced rate. We had to go to the hospital on a Monday for a physical and blood draw. It took about an hour and a half. On Tuesday, we had to arrive at the hospital late morning and they did the reinfusion. After the stem cells are done, they give fluids for a few hours, so you end up staying there the whole day.

Everyone was very helpful and we had no problems with anything. If you have any other questions, please ask.

Denise

--- On Fri, 2/20/09, sloneczko2004 <bakster6@...> wrote:

From: sloneczko2004 <bakster6@...>
Subject: [cerebralpalsy] Stem cells
To: cerebralpalsy@yahoogroups.com
Date: Friday, February 20, 2009, 3:30 PM

Hello
We finally heard from Duke's and they accepted Sidney for her cord
blood infusion. Has any one went thru this procedure or know that
hospital and area? Any suggestion welcome Krys

#2295

From: "sloneczko2004" <bakster6@...>
Date: Fri Feb 20, 2009 10:45 pm
Subject: Re: Stem cells

sloneczko2004

Offline

Hi
Yes, it is her own. They checking  the blood right now, I hope they
have a good news for me.      Krys

#2294

From: "Aisha Lusk" <Aisha.Lusk@...>
Date: Fri Feb 20, 2009 8:37 pm
Subject: RE: Stem cells

mom_to_di

Offline

That is great news. I d/k anything about the procedure, but wanted to ask if Sidney using her own cord blood for the procedure?

From: cerebralpalsy@yahoogroups.com [mailto:cerebralpalsy@yahoogroups.com] On Behalf Of sloneczko2004
Sent: Friday, February 20, 2009 3:31 PM
To: cerebralpalsy@yahoogroups.com
Subject: [cerebralpalsy] Stem cells

Hello
We finally heard from Duke's and they accepted Sidney for her cord
blood infusion. Has any one went thru this procedure or know that
hospital and area? Any suggestion welcome Krys

==============================================================================
Confidentiality Notice
This message is intended exclusively for the individual or
entity to which it is addressed. This communication may
contain information that is proprietary, privileged,
confidential or otherwise legally exempt from disclosure.
If you are not the named addressee, you are not authorized
to read, print, retain, copy or disseminate this message
or any part of it. If you have received this message in
error, please notify the sender immediately either by
phone (800-237-2000) or reply to this e-mail and delete
all copies of this message.
To ensure compliance with the requirements imposed by the
IRS, we inform you that any U.S. federal tax advice
contained in this communication (including the
attachments) is not intended or written to be used, for
the purpose of (a) avoiding penalties under the Internal
Revenue Code or (b) promoting, marketing or recommending
to another party any transaction or tax-related matter[s].
To provide you with a communication that could be used to
avoid penalties under the Internal Revenue Code will
necessarily entail additional investigations, analysis and
conclusions on our part.
==============================================================================

#2293

From: "sloneczko2004" <bakster6@...>
Date: Fri Feb 20, 2009 8:30 pm
Subject: Stem cells

sloneczko2004

Offline

Hello
We finally heard from Duke's and they accepted Sidney for her cord
blood infusion. Has any one went thru this procedure or know that
hospital and area? Any suggestion welcome        Krys

#2292

From: "Castle" <castletowery@...>
Date: Sat Feb 14, 2009 6:22 pm
Subject: Re: Perc videos?

castletowery

Offline

I do not have video....uggg why didn't I video her before hand....I
can give you some pics and describe her....and I may be able to find
some video to give you an idea of how spastic she was....her legs were
always straight out and scissored when laying down, with her toes
pointed out....and to sleep her legs would be drawn up and crossed as
ankles...legs so tight that you not pull them apart...we probably
could have held her up in the air and her legs would have stayed in
that possition, util she woke up then she would have them stiff and
straight out toes pointing and scissored...well hopefully we will have
some great pics of the changes in the coming weeks once she gets her
casts off

Castle

"ChiuHelen" <chiuhelen@...> wrote:
>
> I was wondering if anyone is willing to share with me their pre and
> post perc video? I have search hi and low for any information on SDR
> and Perc. I have found many videos of SDR but I have not found any
> videos of perc. If anyone has any links or their personal success
> stories I would really really appreciate it!
> Thanks!
>

#2291

From: "ChiuHelen" <chiuhelen@...>
Date: Sat Feb 14, 2009 7:26 am
Subject: Perc videos?

ChiuHelen

Offline

I was wondering if anyone is willing to share with me their pre and
post perc video? I have search hi and low for any information on SDR
and Perc. I have found many videos of SDR but I have not found any
videos of perc. If anyone has any links or their personal success
stories I would really really appreciate it!
Thanks!