How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Dec 1, 2008 8:48 am
2232
A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Dec 1, 2008 8:48 am
2233
Hi, my son Zak is 3 years old and due to a very traumatic birth he has cerebral palsy and a brachial plexus injury~ but he's the cutest, sweetest little boy :)...
I can't exactly relate to your Zak but my 7 year old Gil seems a little like him. Gil was born slightly premature at 33 weeks and has a diagnosis of Myotonic...
I took the three little ones to see our Physiatrist today. The baby and our 7 year old are doing really well and there are no changes. Our 5 year old, Topher...
Elks program have home therapy that you could check into and then have your MD request in home PT ? OT and see if you can get an agency to provide . It may be...
Can anyone give me info on PERCS?...here is what I know...but I want practical info and firsthand experience.... Selective Percutaneous Myofascial Lengthening...
Miriam: Miriam>>she too uses the Quickie 2--do you mind me asking you a few questions about your chair?Krys is just under 100lbs at 19 yrs old-we got a new...
Castle - My daughter (spastic diplegia) was a real toe walker at age five and had PERC procedures done on both heel cords by Dr. Nuzzo in Summit, New Jersey....
Thank you so much Barbara... Dr. Yngve in Texas went to Dr Nuzzo for his training... We actually scheduled an appointment for Dr Yngve theappt is Dec 22 ...
Have you looked to see if anyone is offering a summer intensive therapy program that is near your home? Also, I would ask the Physiatrist to recommend another...
You might ask your son's docs if he fits a dystonia diagnosis. I was told my son has some dystonia since his tone varies. I was told that children with...
Yes!! Where are you located?? Cuz there are intensive therapy programs that can offer awesome results and are not inpatient programs. If you cannot find one...
Maybe it was Yogi Berra he is always saying odd things...like it anit over til its over....or cash which is just as good as money...lol...and a million...
LOL...I have no idea how I just put this response on the CP group...lol....it has nothing to do with anything at least not on this group....I was supposed to...
Sorry it took so long to respond but we lost power for 6 days after an ice storm. We live in Western Massachusetts. Anyone hear of anything. ... From:...
yes i think the term dystonia has been used with Zak, as well as athetosis... yes it's hard to let go our our babies and stop interpreting their needs... I can...
hi ~ Katie is on clonazepam and baclofen for her dystonia, by g-tube. Some kids get baclofen by a pump, but we aren't there yet. She has dystonia and...
Hi Everyone. Yes. My wife and I can definitely relate. Our son was recently diagnosed with CP with dystonia and atheosis. He has a mix of tone and sometimes...
Hi Colin, I have a question regarding your son's breathing: 1) Does the irregular breathing sound like he is gasping for air (similar to children who try to...
Hi. Yes, that is exactly how my son's breathing sounds sometimes. Like he is gasping for air - especially when he is stressed or agitated. I have long wondered...
Wow! That is so interesting. My son is 3yrs old. He was officially diagnosed with Mixed CP in 2007. He has moments of spasticity and other times his...
A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Jan 1, 2009 8:38 am
2256
How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Jan 1, 2009 8:38 am
2257
hi my daughter is 4 and has very mild cp. the drs arewanting to do surgery on her legs to rotate them out, because she is pigontoed. not sevsre but it dosent...
Which surgery are they wanting to do on her? There are several different surgeries out there to "fix" issues with legs...some of the surgeries are major and...
I'm on a few sites and there is frequent talk about Dr Nuzzo and his PERCs proceedure. Anyone know of a physician in Massachusetts who is doing this...
DOn;t know of anyone in Mass..... Cayden is having PERCS done Jan 27th in Galveston TX at UTMB Hospital. . Luckily we only live around 100 miles away from...
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