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cerebralpalsy@yahoogr...
Jun 1, 2008 8:05 am
2041
How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Jun 1, 2008 8:05 am
2042
Happy June!!! I have not been very active....winter was hard....my son Jordan was sick all the time and hospitalized for a 5 day stay for pneumonia. Now that...
My name is Craig Shishido and my sister is Liane Komatsu. I am trying to help her get some much needed information for her son Chase. We are looking for any...
I'm sorry to hear about Chase's pain. My son Topher is also spastic quad CP who was born at 24 weeks premature. Topher took oral Baclofen for about 1 year...
Angela ... quad CP who was born at 24 weeks premature. Topher took oral Baclofen for about 1 year with "OK" results but we were not finding increased relief...
Angela~ Thank you for your posting. All this information is so helpful in our efforts to help Chase. Sincerely, Craig ... quad CP who was born at 24 weeks...
Did your son Topher have any seizures before or after having the pump installed. We are considering the pump, but have seizures are a possible side effect. I...
Sorry to write back so late...life happened. Topher did not have any seizures either before or after the pump. It is my understanding that seizures are a...
Hi Kristin - Baclofen is to help loosen his muscles. Has he used baclofen? My daughter has taken this through her g-tube, but we've switched to klonopin,...
Hi Kristin, My son is only 4, but the seizures were a constant, daily thing that screwed up everything else with his cp. At age two and a half, he...
Several of my friends and children I work with have VNS implants, what a Godsend, no negative feedback so far, only good. Debra M-Mc (mom to Jason, age 31,...
My 22-month old son, Finlan, just started the Ketogenic Diet about a month ago. We are having amazing success! He was having hundreds of seizures a day, and...
I have heard of the VNS. His doc said that the two options were the Keto diet and the VNS. I don't really want him to have to have a surgery if it's not going...
Hello! Thanks for your reply! I haven't got to talk to anyone that has a child on this diet yet. My son, Alex has a feeding tube also. And he doesn't walk or...
My son's seizures sound a lot like your son's... like an exaggerated startle response. He is rarely having these anymore. It used to be that if the dog...
Dominic was just given a diagnosis of mild scoliosis. Has anyone else dealt with this? It is my understanding that it can cause horrifying arthritis, interfere...
Zak has mild scoliosis and so far no one has really said anything about it... he's just over 2 1/2 and is learning how to use a walker and sit independently,...
Hi, Our son, 15 also has mild scoliosis. This is very common in kids with CP. The best thing you can do is have his spine adjusted on a regular basis to try...
We waited till Jason was 19 for his spinal fusion so that he'd have 'maybe' finished his growth.  Most males in my family don't finish their growth till...
My son, Alex will be 11 in August and he's already been going through puberty since he was about 6. He started getting hair where a 6 year old usually doesn't...
Cyndi, Who do you have adjust your child's spine, when did you start, how often are adjustments, and how do you go about picking out the right practitioner? ...
My son Jacob?is 11-years old and has CP and mild scoliosis of the spine which they told us about when he was 2-years old.? So far it has not progressed at all...
my daughter has it and I took her to a chiropractor and although they can't cure it they can help it from getting worse in many, many cases. I also have a...
Hi, I use a chiropractor that specialized in pediatrics and cranial therapy. We live in southern CA. I use Dr. N. Richards in Glendora. She does not do bone...
Do you have a Hoyer Lift? If not, it is the next item you should consider; unless you can afford a ceiling track system.  Jason seemed to be warmer with...
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