How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
May 1, 2008 8:01 am
2023
A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
May 1, 2008 8:01 am
2024
Hi, My name is Lisa and my son Joshua is 4 1/2 yrs old and has CP, Hydrocephalus, CVI, and profound cognitive delays. We have been working on strengthening his...
my son is doing alot better he was put on baclafin in march we can see a little bit off changes in his activity he is starting on it very slowly he is getting...
Austin (9 yo w/spastic diplegia) is doing very well. He is in a physically challenged sports program that is awesome. Yesterday, he did the backstroke all by...
Hi everyone its been some time .But im having some problems with my son going to school next year.The school he was going to go to said that they will...
Hello! I don't THINK they can do that. But, if the other school is better equiped to handle your child, then maybe that's why they want to send him there. My...
I would look through the govt web site in IEPs and choosing schools: http://www.ed.gov/parents/needs/speced/iepguide/index.html Also, if you can prove that the...
I am not sure what state you are in but you can definitely fight if the school wrote it up in the IEP that they are going to accommodate him, then they need...
Hi, My sister is a vice principal of a school she said you can ask for an advocate (free). She said that just telling them that you are getting an advocate...
Each child is guaranteed the right to FAPE (Free and Appropriate Public Education) no matter what their disability.? It also is to be in the least restrictive...
I have a book that I go through every year before my daughters IEP it's called "Negotiating Your Child's IEP" It is a great resource. It was one I was able to...
You can even have a friend or a friend's spouse accompany you, I had one come dressed in a suit with a leather notebook, introduced him as a friend, and he...
Debra, There are many non-for profit agencies that do have advocates that will go to the meeting with parents.? I work for an agency now and previously worked...
I know in our school district (which is a very large district) they often send special needs kids to spacific campuses that are in a different zone(so not the...
Where we live....our regular school bus takes over an hours to get our kids to and from school...we live kinda in a rural area so our schools are not right...
It depends on the area/state and the agencies available. Also, parents don't know that they have a right to have an advocate unless they are told or read the...
Castle, you explained it very well-our child has a primary diagnosis of Orthopedic Impaired-her home is on the road behind a high school football field, and ...
A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Jun 1, 2008 8:05 am
2041
How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Jun 1, 2008 8:05 am
2042
Happy June!!! I have not been very active....winter was hard....my son Jordan was sick all the time and hospitalized for a 5 day stay for pneumonia. Now that...
My name is Craig Shishido and my sister is Liane Komatsu. I am trying to help her get some much needed information for her son Chase. We are looking for any...
I'm sorry to hear about Chase's pain. My son Topher is also spastic quad CP who was born at 24 weeks premature. Topher took oral Baclofen for about 1 year...
Angela ... quad CP who was born at 24 weeks premature. Topher took oral Baclofen for about 1 year with "OK" results but we were not finding increased relief...
Angela~ Thank you for your posting. All this information is so helpful in our efforts to help Chase. Sincerely, Craig ... quad CP who was born at 24 weeks...
Did your son Topher have any seizures before or after having the pump installed. We are considering the pump, but have seizures are a possible side effect. I...
Sorry to write back so late...life happened. Topher did not have any seizures either before or after the pump. It is my understanding that seizures are a...
Hi Kristin - Baclofen is to help loosen his muscles. Has he used baclofen? My daughter has taken this through her g-tube, but we've switched to klonopin,...
Hi Kristin, My son is only 4, but the seizures were a constant, daily thing that screwed up everything else with his cp. At age two and a half, he...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
