A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Aug 1, 2007 8:07 am
1642
How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Aug 1, 2007 8:07 am
1643
www.taylorrumph.com I try to keep this updated. cerebralpalsy@yahoogroups.com wrote: How is everyone doing? Please take a second to give us a update. Let us...
Braden had Spinal Fusion surgery on July 3rd and after numerous complications and an almost three week hospital stay, he is finally home doing well. He is all...
Hi Michele, I wish I knew these answers...my son is totally hypotonic, although one PT felt his legs could be a little spastic at times. I have never heard of...
Sorry have not been on lately my son Tony has been dealing with recovering from Bacterial Meginitis. We had alot of set backs and he has come down with 4...
Hi Michele, From my understanding your muscle tone could be affected in more than one way with CP. You can have spastic legs but a weak trunk. Thats exactly...
Michele, Yes having spastic arms and legs and low tone in the trunk is normal for spastic quad CP. Cayden has spastic arms and legs and hypotonic trunk and is...
Well, Shay is doing well. She's enjoying summer school and talking more and more each day. She'll turn 8 on sept. 3rd. Its so hard to believe!! Julianna is...
My son is 30 and spastic quad. As it was explained to me by his peers, quadraplegic means that all 4 limbs do not function normally. Movement, feeling, and...
Cayden had 40 million stem cells transplatned 3 weeks ago. In a few weeks we should begin to see some changes....we hope! Cayden had a hip xray a few weeks...
Where did you go for your Stem Cell Infusion? How old is Cayden again? We are headed to Duke University next Sunday to do this. I would love to hear about...
Carole Rosen
cbr424@...
Aug 4, 2007 4:18 pm
1654
Cayden is 3 yrs old. We went to Progreso Mexico, south of Texas for the stem cells. The cells are taken from the umbilical cords and the placenta and...
I was really happy to find this group. I'm looking forward to getting to learn more about CP from other families since we are fairly new to this. Our names are...
Welcome, Maria...where in VA do you live? We are in Leesburg. My 3 year old son has some of the same issues. The doctors discussed putting a feeding tube in...
Welcome to the group. I am fairly new myself but this group truly is a blessing. Sandy mama to Brandon (6) Cameron (5) Ethan (3-CP) and Logan (4 mos) ...
Thank you for your reply Mary. Its encouraging to think that Baby John still has a chance. We have another doctor appointment this week so I'll learn a bit...
I have a dumb question. Maybe it's not dumb but I feel dumb for asking it. My little one has a seizure disorder from her stroke but her seizures are controlled...
Do insurance companies usually pay for things like positioning seats for example the special tomato? or say the ladybug corner chair. How would I go about...
Carole, What kind of program do they have at Duke U? Is it difficult to get in to? Michele Carole Rosen <cbr424@...> wrote: Where did you go for your...
Does your child go to PT? The PT would request an order from the pediatrician and they would contact a DME company (locally) that works with your insurance...
Hi Michele, We just got a script for a wenzelite seat2go. We spoke to our insurance company (United Healthcare) and they had to look up an item number. This...
hi and welcome!! Feeding issues have been our battle till very recently. My Matt is 3.5 and the battle has been reduced to just a scirmish. it sounds like...
Has anyone used Hippotherapy with their child? Im excited as it looks like we are going to start it very soon with my little one. Any thoughts or comments from...
hi Yes I have been doing hippotherapy with my daughter for the past one year. It is very good to put the legs in abduction and the idea is that the horse gait...
Hi, I would like to know if anyone has come across the issue of hip subluxation or partial dislocation for their child and if so what treatment options have...
Im hoping to get this all typed before my baby (14 mo) wakes up and realizes she is not being held. My daughter has been sick this Friday will be 3 weeks....
Hi there, I'm thinking maybe she allergic to the antibiotics or the new formula? Ask a doc and let us know I hope she gets better.... My cousins daughter had a...
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