How is everyone doing? Please take a second to give us a update. Let us know if there are any new milestones your child has reached. Anything new in your...
cerebralpalsy@yahoogr...
Jun 1, 2007 8:18 am
1577
A few things to remember.... -No advertisements allowed. Please refrain from advertising your business. -When relying to a post please remember to remove the...
cerebralpalsy@yahoogr...
Jun 1, 2007 8:18 am
1578
Hi, Jamie is doing well. He hasn't had any siezures since he got his glasses, up until today. The eye dr gave him by-focals because he has weak eye muscles...
Hello, I was wondering if any of the members or their children have had myotomies and would be willing to share their experiences with us. My daughter is 4.5...
Carole Rosen
cbr424@...
Jun 2, 2007 1:26 am
1580
Carole, My daughter had Hip flexors, abductors and hamstrings done in September. She turned 12 in April. She scissor walked and on her toes. The doctor was...
Braden has been doing pretty good, health wise. He is now eleven and the most precious little boy that I have ever met. He has been able to have his bipap...
Carleen, Thanks for the info and your speedy reply. I certainly appreciate it. Can you tell me your daughter's degree of hip subluxation before and at the...
Carole Rosen
cbr424@...
Jun 2, 2007 2:51 pm
1583
Carole, I don't remember the degree but she was tight and really turned. Because she was always in a walker or crutches they suggested putting the surgery off...
I have BRAND NEW Good Nites size S-M (36-65 lbs) for $6.50 PACK or $25.00 a case. Email questions if you are interested. Serious inquiries only. If you want me...
How many diapers in a pack? in a case? Thanks. ________________________________ From: cerebralpalsy@yahoogroups.com [mailto:cerebralpalsy@yahoogroups.com] On...
Cayden is now 3 yrs old...yesterday was her birthday!!! We did not have a party...though we had a cake and sang happy birthday to her and she was very...
I have several cases of 500ml Entera Lite Infinity pump bags If you need them or know someone who does please contact me at castletowery @ yahoo.com(remove...
FINALLY YEAH I am so excited!!!!!!!!!......I hope I am not speaking (rather typing) to soon....but it looks like in the next few weeks we will FINALLY have...
I'm happy for you!! I know it would make it a lot easier!!!! We just bought (paying on) a 2001 Honda Odyssey, and after we got it, I can a van place around...
Have you tried other places?...That really sucks! Castle ... just bought (paying on) a 2001 Honda Odyssey, and after we got it, I can a van place around here...
Hi. I'm Faith and my husband Jeff and I have 8 children. The three oldest are our birth children they are Tyler 16, McKenzie 14, and Rachelle 13 in a few...
Hi Faith glad to have you here there are many people here to can relate and I am sure will give you some good suggestions. Where do you live? You may want to...
Hi, I'm Deb, 33, and my DH is 33 also. We have a 6 month old son Matthew with mild CP. He was diagnosed at 2 months with Torticollis and thank goodness for...
Hi Faith, I can speak to the sippy cup issue! We went through them all, with very little success at first. We finally found that the the tall skinny Nuby ...
Hi thanks for the welcome. I am very thankful for the MILD part of the CP as you read..im experienced with the severest end. But, Because it is mild..many...
Mary is this the Gerber cup you are talking about...it is the transition cup. Brady (our typical 9 month old, does best with these cups) When we were trying to...
I think the people who say things like "her seems fine..." etc...are the ones who are in denial we are not the one paranoid....people would AWAYS say to me...
Yes.....that's the one! It did take Phillip months of practice on sippy cups before he mastered this one. He used a bottle until he was about 40 months old,...
We finally found a center that deals with CP all day long (the Kluge Clinic in Charlottesville). I know Johns Hopkins also has a rehabilitative center....
...so I'll start a new one. Sorry! Regarding sippy cups - Matthew is using the Nuby ones that someone else mentioned. Outside of his CP, he's a very normal 6...
Hi everyone it has been a while .Hunter has been i the hospital for 3 weeks .he had a mic-key button placed. and know he is haveing some redness under and...
Is it red due to drainage? It could be kinda like a diaper rash....have you tried some Balmex, or any other diaper rash creams? Try the balmex and then but a...
Exactly...if your child is able to use a bottle and that works...there would be no rush to go to a sippy just because others his/her age are doing it...same if...
We use Triple A antibiotic ointment around Jason's Stoma. He got his g-tube 22 yrs ago. Definately the gauze around the site will help, anchor with a bit of...